Life's a Polyp Foundation is a 501(c)(3) nonprofit organization with a mission to empower individuals living with Familial Adenomatous Polyposis through education, mental health advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and pushes research for new treatments and a vision to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.
Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives.
Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere
Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehttps://a.co/d/0aAgefYI
Ann Lamphere's Rare Disease Children's Book:
Pebbles' Golden Stripes: A Story of Uniqueness, Friendship, and Rare Disease Dayhttps://a.co/d/0677lJ3c
Jenny's FAP Children's Book
Life's a Polyp: with Zeke and Katie https://a.co/d/02eetaHy
Life's a Polyp Foundation is a nonprofit 501(c)3 that works to empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options.
Through this we aim to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.
A Daughter's Love Podcast is housed under Life's a Polyp Foundation. In it, Jenny and Amy heal grief through storytelling and exploring cancer, caregiving, and more.
Find more at www.LifesaPolyp.org and @LifesaPolyp across Social Media Platforms
#LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome #FamilialPolyposis #Coloncancer #ColorectalCancer #HereditaryCancer #AttenuatedFAP #FAP #AFAP #Nonprofit #Podcast #Chronicillness #Cancer #Panel #Advocacy
1 Jun 2025
Cognitive Behavioral Therapy for Chronic Pain
Jenny discusses cognitive behavioral therapy techniques for managing chronic pain and improving overall quality of life.
10 Apr 2025
Caregiving for Mom - The Last Years
Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.
28 Mar 2024
Post Concussion Syndrome
Jenny shares about her experience developing and living with Post Concussion Syndrome
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7 Dec 2023
How We Can Use Hardship to Build Our Resiliency
Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.
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30 Nov 2023
Comfytemp Weighted Heated Vest: AD - A Sponsored Review
Jenny shares her sponsored review and her family's reviews of the Comyftemp Weighted Heated Vest.
Disclaimer: I have been given Comfytemp Heating Pad for Neck and Shoulder Pain Relief (https://amzn.to/3R0Pn0I) as part of a product review. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
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28 Nov 2023
3 Self-Care Habits That Can Be Started Today
Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.
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17 Nov 2023
Changing Our Perspectives to Better Our Well-Being
Jenny discusses ways of changing perspective for well-being betterment.
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25 Sept 2023
La Mémoire Noire: Part 1
La Mémoire Noire or The Dark Memory is a letter series written to Jenny's first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of my life. Ultimately, I instead would require 7 surgeries and experience repeated life-threatening complications resulting in medical PTSD, suicidal and homicidal ideation. This is trauma I am still trying to heal from nearly 30 years later that has touched every aspect of my life and how I react, view, and process the world. As part of my therapeutic efforts to heal, I am writing this series to him. It is my raw, unedited thoughts and feelings towards this man and all that transpired following my first surgery that he performed. It will be a series that is periodically updated as I process each letter, my trauma, and continue inching towards healing embodying full love and forgiveness for myself and others.
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23 Jun 2023
Living My Best Life
Jenny shares in her latest blog post what the last two years have been like for her and through it all, why she says she’s living her best life
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30 Apr 2023
When You're Eager for Medical Testing
Jenny shares how unexplained vomiting for 10 months has left her eager to undergo medical testing, in spite of medical PTSD
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31 Jan 2023
Learning Balance
Jenny shares her struggle to balance life, how it affects her physical and mental health and how she's finding balance now
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28 Oct 2022
Chronic Pain and Physical Therapy
How physical therapy has become an integral part of my chronic pain management.
Written format available on Life's a Polyp Blog (https://www.lifesapolyp.com/2022/10/chronic-pain-and-physical-therapy.html)
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20 Oct 2022
What is Familial Adenomatous Polyposis and Life's a Polyp?
A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp.
This Episode was originally published to Life's a Polyp's Youtube in 2017.
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Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
92,294
Score snapshot 15 Sept 2025
Podcast Authority Score: 29 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
16
Social presence
0
YouTube
76
Engagement
27
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