Most cancer survivors learn to live with the shadow of the disease. But what happens when fear, systems failure, and personal trauma collide? In this deeply authentic episode, twice-diagnosed kidney cancer patient and counselor Steve Pointon shares his extraordinary journey from shock to resilience—and how he’s now turning his pain into purpose.
You’ll discover the raw truth about the mental and practical battles cancer patients face—covering everything from life-saving treatments like immunotherapy (IL-2), to navigating the crushing bureaucracy of benefits and employment systems, and the loneliness of waiting on scans. Steve dives into the often-overlooked emotional toll, the importance of peer support, and the power of storytelling in healing and advocacy.
We break down:
The moment doctors dropped a terminal diagnosis on Steve, and how he fought to find hope
The hidden struggles of returning to work after cancer and fighting for workplace justice
Why systemic failures in healthcare, benefits, and employment make survival even harder
How community support, charities, and real stories can be lifelines during the darkest times
The inspiring ways Steve is giving back—becoming a counselor, patient advocate, and international speaker
This episode is perfect for anyone fighting their own cancer battle, supporting loved ones, or advocates pushing for systemic change. If you’re ready to hear the unfiltered truth about what it really takes to survive—and rewrite the narrative of beyond cancer—hit play now.
Steve Pointon is a cancer survivor, counselor, and advocate for patient rights. His story of resilience, advocacy, and transformation highlights the importance of community, systemic reform, and hope.
Don’t miss this raw, empowering conversation—because survival is more than remission; it’s a journey we all share.
S2 Ep 6 - Marathon Runner to incurable Prostate Cancer - Tony Collier BEM
In this episode of Living With and Beyond Cancer, host Steve Pointon interviews Tony Collier, a prostate cancer survivor who shares his journey from being a marathon runner to facing a life-altering diagnosis. The conversation delves into the emotional and psychological challenges of living with cancer, the importance of mental health support, and the impact of treatment on relationships. In this conversation, Tony Collier shares his journey with prostate cancer, discussing societal perceptions of cancer, the challenges of maintaining work-life balance during treatment, and his transition into advocacy and community support. He emphasizes the importance of hope and the impact of giving back to others facing similar struggles.
Takeaways
Cancer impacts mental health
Support for partners is crucial Cancer has no stereotypes
Hope is essential for healing
Chapters
00:00 Introduction to Living With Cancer
02:02 Meet Tony Collier: A Life Beyond Cancer
06:03 The Impact of Cancer on Life Choices
10:41 From Marathon Runner to Cancer Patient
17:01 Receiving the Diagnosis: A Life-Changing Moment
19:53 The Journey to Mental Health Recovery
22:29 Understanding Treatment Options and Side Effects
29:00 The Psychological Impact of Cancer on Relationships
30:00 Understanding Cancer Perceptions
31:57 Navigating Work and Financial Challenges
39:14 Becoming a Patient Advocate
45:05 Living with Hope and Purpose
53:00 Community Engagement and Recognition
20 Sept 2026
S2 Ep5 - Two Diagnosis in one day - Jemma Falloon
Jemma Falloon shares her journey of battling kidney and thyroid cancer, from diagnosis to treatment and recovery. She discusses the challenges, support, and misconceptions surrounding cancer patients, shedding light on the physical and emotional impact of the experience. Jemma Falloon shares her journey of battling cancer, advocating for patient support, and the importance of self-advocacy. She emphasizes the need for better workplace support and the value of peer support for cancer patients.
Takeaways
Resilience in the face of adversity
The hidden struggles of cancer survivors Advocacy for patient support
Importance of workplace support
Chapters
00:00 Diagnosis and Treatment
07:16 Recovery and Coping
10:23 Support and Isolation
16:48 Life After Treatment
24:31 Perceptions and Realities
26:19 Journey of Battling Cancer
29:48 Advocacy for Patient Support
33:44 Importance of Workplace Support
35:38 Self-Advocacy and Peer Support
40:41 Inspiring Others and Advocacy Work
46:16 Realities of Cancer and Advocacy
51:36 Final Thoughts and Call to Action
6 Sept 2026
S2 Ep 4 - Working with Cancer - Barbara Wilson
The episode features a conversation with Barbara Wilson, the founder of Working with Cancer, who shares her personal experience of managing work while undergoing cancer treatment. The discussion highlights the lack of support and understanding from employers, the impact of cancer on work, and the need for education and awareness among employers. Barbara Wilson discusses the importance of proper policies and support for individuals with cancer and chronic illnesses in the workplace. She shares her journey of setting up a social enterprise, 'Working with Cancer,' and highlights the need for corporate support in this area. The conversation also delves into the changing landscape of cancer awareness and the challenges faced by individuals and carers in the workplace.
Takeaways
Workplace support for individuals with cancer is crucial
Employers need education and awareness about supporting employees with cancer Workplace policies and support for individuals with cancer and chronic illnesses are crucial.
The need for corporate support and awareness in addressing the challenges faced by individuals and carers in the workplace.
Chapters
00:00 Introduction and Podcast Overview
01:55 Barbara Wilson's Background and Career Change
02:45 Barbara's Cancer Diagnosis and Treatment Journey
04:13 Impact of Cancer Diagnosis on Work and Life
06:07 Support and Challenges at Work During Treatment
08:41 The Therapeutic Quality of Work and Managing Work Challenges
10:08 Employer Support and Organizational Challenges
13:29 Lack of Understanding and Support from Employers
20:23 Educating Employers and Line Manager's Role
43:45 The Continued Need for Support and Awareness
16 Aug 2026
S2 Ep3 - Stories of Cancer & Hope - Kevin Donaghy
Kevin Donaghy shares his journey of being diagnosed with stage two melanoma, the shock of discovering it had spread to stage four, and the impact of the COVID-19 pandemic on his treatment and mental well-being. Kevin Donaghy shares his experience with cancer, the support he received, and his efforts to help others through his book 'Stories of Cancer and Hope'. He emphasizes the importance of seeking support and the impact of sharing personal stories.
www.storiesofcancerandhope.co.uk (http://www.storiesofcancerandhope.co.uk)
Takeaways
Resilience in the face of unexpected health challenges
The importance of finding a supportive community during difficult times Support from organizations like Macmillan and Maggie's was invaluable for Kevin and his family.
Sharing personal stories and experiences with cancer can provide hope and support to others.
Chapters
00:00 Diagnosis and Treatment
13:56 Life-Altering News
17:44 Coping with COVID-19 and Treatment
24:16 Support and Assistance
27:12 Navigating Treatment and Support
30:08 Impact of Immunotherapy
35:56 Creating 'Stories of Cancer and Hope'
40:44 Spreading Hope and Support
46:28 Final Thoughts and Call to Action
2 Aug 2026
S2 Ep2 - Diagnosed on the other side of the world - Charlotte Rutherford
The podcast episode features a conversation between Steve and Charlotte, a cancer survivor, discussing her journey from diagnosis to treatment and recovery. Charlotte shares her experiences of being diagnosed with stage four metastatic colon cancer, her struggles with symptoms, challenges in Australia, financial difficulties, and the fear of the unknown during her cancer journey. The conversation also covers her return to the UK, surveillance, and the emotional impact of the limbo phase. Charlotte shares her experience of facing cancer recurrence, undergoing treatment, and making difficult decisions about her health. She also discusses her advocacy work, the importance of mental health support, and the impact of cancer on the workplace. Charlotte provides an update on her health and reflects on planning for the future.
Takeaways
Early symptoms of cancer can be overlooked or misdiagnosed, leading to delayed diagnosis and treatment.
The limbo phase of waiting for test results and diagnosis can be emotionally challenging and traumatic for cancer patients. Facing cancer recurrence can be unexpected and emotionally challenging.
Advocacy and peer support play a crucial role in providing support and raising awareness for cancer patients.
Chapters
00:00 Introduction and Sponsorship
03:05 Charlotte's Diagnosis and Early Symptoms
05:28 Challenges in Australia and Diagnosis
13:11 Treatment in Australia
15:50 Financial and Emotional Struggles
20:32 Return to the UK and Surveillance
22:59 The Limbo Phase and Fear of the Unknown
25:26 Facing Recurrence
26:21 Treatment and Decision Making
33:17 Advocacy and Support
36:17 Mental Health and Peer Support
40:04 Advocacy Work and Impact
44:20 Workplace Support and Future Planning
45:28 Health Update and Moving Forward
19 Jul 2026
S2 Ep 1 - Versus Cancer - Crewe Alexandra
The podcast episode features a discussion with Ray Walker about the Versus Cancer project at Crewe Alexander Football Club. The project aims to provide support and exercise opportunities for cancer patients, promoting prehab and post-hab activities, peer support, and community engagement. The episode also highlights the financial sustainability of community development initiatives and the potential expansion of the Versus Cancer project to other EFL clubs.
Takeaways
Importance of prehab and post-hab for cancer patients
Community engagement and peer support for cancer patients
Chapters
00:00 Introduction to Living With and Beyond Cancer
01:26 The Resilience Room Sponsorship
02:13 Community Development at Crewe Alexander Football Club
04:18 Funding and Financial Sustainability
08:24 Versus Cancer Project and Pilot Scheme
10:25 Prehab and Post-hab for Cancer Patients
12:20 Peer Support and Community Engagement
18:21 Accessibility and Contact Information
20:37 Expansion of Versus Cancer Project
22:29 Closing and Sponsor Acknowledgment
21 Jun 2026
Episode 12 - World Kidney Cancer Day Special - Action Kidney Cancer - Emotional Wellbeing
The podcast episode features a discussion on the importance of emotional well-being and the support networks available for kidney cancer patients. It delves into the initial reactions to kidney cancer diagnosis, coping strategies, the role of support networks, and the value of peer support and information sharing. The episode also highlights the access to clinical trials and the significance of volunteering and paying it forward.
Takeaways
Emotional well-being is crucial for kidney cancer patients
Peer support and information sharing are invaluable for patients
Access to clinical trials and support services is essential for comprehensive care
Chapters
00:00 Introduction to Living With and Beyond Cancer
08:44 Support and Coping Strategies
14:04 The Value of Peer Support and Information Sharing
20:31 The Role of Support Networks in Emotional Well-being
29:26 Support Services and Resources
36:09 Accessing Clinical Trials and Information
7 Jun 2026
Episode 11 - Is Mental Health Support for Cancer Patients is Falling Short? - Dr Alex Turner
This episode features Dr. Alex Turner, a psychologist and cancer survivor, who shares her journey of being diagnosed with stage 3 breast cancer and her approach to recovery. Dr. Alex also discusses her career in sports psychology and the impact of environment on performance. The conversation delves into the late diagnosis, coping with dismissal, taking ownership of diagnosis and recovery, and the need for mental health support and trauma of diagnosis. The conversation delves into the impact of a cancer diagnosis, the mental health challenges associated with it, and the need for psychological support. It also explores the importance of psychological safety, emotions, acceptance, and well-being in the context of cancer recovery. The discussion highlights the need for more psychological support for cancer patients and the significance of celebrating milestones in the recovery journey.
Takeaways
Late cancer diagnosis can be traumatic and may require a holistic approach to recovery.
The impact of environment on performance and recovery is significant in both sports and cancer treatment. Psychological support is crucial for cancer patients
Well-being and recovery are interconnected
Chapters
00:00 Introduction to Living With and Beyond Cancer
06:03 The Development of Psychology in Sport
11:27 Late Diagnosis and Coping with Dismissal
20:35 Mental Health Support and Trauma of Diagnosis
28:12 Impact of Cancer Diagnosis
36:15 Acceptance and Expectations
44:34 Personal Health Journey
50:49 Well-being and Recovery
1 Jun 2026
Episode 10 - From Cancer Diagnosis to Making A Real Difference For Others - Fay Peace
Faye shares her journey of being diagnosed with gynaecological cancer, the challenges of getting a correct diagnosis, and the impact of cancer treatment on her mental health. Her story highlights the importance of early detection and the need for better support for mental health during cancer treatment. The conversation delves into life after cancer treatment, the impact of the 'no evidence of disease' diagnosis, the anxiety surrounding regular checkups, turning personal experience into advocacy, and the achievements in cancer advocacy. Takeaways include the lasting impact of cancer on life and the importance of self-advocacy in healthcare.
Takeaways
Early cancer symptoms can be misdiagnosed or overlooked
The impact of cancer treatment on mental health Life after cancer is never the same
Advocating for oneself is crucial in the healthcare journey
Chapters
00:00 Faye's Cancer Journey Begins
08:00 The Diagnosis and Treatment
23:03 Coping with Treatment and Mental Health
31:49 Life After Treatment
41:33 Turning Experience into Advocacy
53:31 Advocacy Achievements
24 May 2026
Episode 9 - From moving in together to heart brake: How Love and Loss Unfolded in Just 5 months
The podcast episode features Tracy's journey as a carer for her partner, Graham, who faced challenges with remote diagnosis, delayed diagnosis, and a lack of support and care in the healthcare system. The story unfolds with the transition to a new living accommodation, Graham's health decline, a hospital ordeal, a terminal diagnosis, financial and work challenges, and the lack of compassion and care in some aspects of the healthcare system. The conversation delves into the journey of resilience and emotional support in the face of adversity. Tracy's experiences highlight the importance of closeness, emotional support, and the challenges faced in the healthcare system. The story also emphasizes the significance of anticipatory grief and the coping strategies adopted during difficult times.
Takeaways
Remote diagnosis challenges
Impact of delayed diagnosis
Lack of support and care in healthcare system Resilience in the face of adversity
The importance of support and closeness in difficult times
Chapters
00:00 Introduction and Podcast Overview
06:25 Challenges with Remote Diagnosis and Care
13:57 Hospital Ordeal and Lack of Support
21:11 Terminal Diagnosis and Emotional Impact
27:28 Financial and Work Challenges
33:53 Lack of Compassion and Care in Healthcare System
39:12 Coping and Emotional Support
44:46 Challenges and Christmas
50:25 Marriage and Emotional Moments
58:44 Challenges with Hospice Staff
10 May 2026
Episode 8 - From Caregiver to Patient - Richard Barker
The Living With and Beyond Cancer podcast features Richard Barker's journey with kidney cancer, including his experience as a caregiver, post-operative recovery, and life changes. Richard shares his challenges, coping mechanisms, and advocacy for cancer patients, along with his plans for life after cancer.
Takeaways
Caregiver support is crucial
Post-operative recovery can be challenging
Advocacy and support are essential for cancer patients
Chapters
00:00 Introduction to Living With and Beyond Cancer Podcast
08:48 Caring for a Loved One with Cancer
17:08 Post-Operative Recovery and Life Changes
29:15 Challenges and Coping Mechanisms
43:45 Support and Advocacy for Cancer Patients
53:18 Life After Cancer and Future Plans
26 Apr 2026
Episode 7 - Real life treatment struggles - Ali Stripling
The conversation delves into Ali's journey with anal cancer, from the initial symptoms and diagnosis to the challenges of treatment and its impact on her daily life. It also highlights the importance of patient advocacy and shared decision-making in the treatment process. The conversation covers Ali's journey through cancer treatment, recovery, and the challenges she faced post-treatment. It delves into the emotional struggles, reintegration into society, and the importance of support and awareness.
Takeaways
Understanding the impact of cancer on daily life
The importance of patient advocacy and shared decision-making in cancer treatment Cancer treatment and recovery are physically and emotionally challenging
Support and awareness are crucial for post-treatment reintegration
Chapters
00:00 The Journey Begins
06:00 Acceptance and Realization
11:22 Challenges and Coping Mechanisms
22:27 Impact on Daily Life
30:04 Treatment Challenges and Realization
35:26 Dietary Challenges and Coping
41:36 Stigma and Awareness of Anal Cancer
49:43 Reintegration and Support
57:36 Emotional Struggles and Relationships
12 Apr 2026
Episode 6 - From Cancer worker and Counsellor to Cancer Patient - Amanda Burridge
Amanda Burridge shares her journey from working in the cancer field to being diagnosed with bowel cancer. She discusses her transition to becoming a counselor and the impact of her diagnosis on her work. The story highlights the challenges and emotional experiences of a cancer diagnosis and the journey of treatment and recovery. Amanda Burridge shares her personal journey through cancer, from diagnosis to recovery, highlighting the challenges and insights gained along the way. She emphasizes the importance of mindfulness and the value of being fit to cope with the effects of cancer treatment.
Takeaways
Cancer diagnosis impact on work
Transition to becoming a counselor
Challenges of cancer treatment and recovery Mindfulness in the midst of illness
The importance of being fit to cope with cancer treatment
Chapters
00:00 Radiotherapy Experience
52:01 Counseling Modality and Conclusion
29 Mar 2026
Episode 5 - Not your ordinary school trip - Sarah Briggs
The podcast episode features a conversation with Sarah Briggs, a cancer patient, and covers her journey from diagnosis to recovery. It explores the impact of the diagnosis, the hospital experience, mental state, and the support offered during the treatment. Sarah's determination and recovery process are also highlighted. Sarah Briggs shares her journey of survival and resilience after being diagnosed with cancer. From desperate determination to return home to living life to the fullest, Sarah's story is one of courage, hope, and finding joy in every day. Despite devastating news and financial challenges, Sarah's mindset and belief to live have been instrumental in her unexplained survival and positive outlook on life.
Takeaways
Hospital experience and diagnosis delivery can have a significant impact on the patient's emotional state.
The support offered during the treatment plays a crucial role in the patient's recovery. Resilience and Determination
Finding Joy in Every Day
Chapters
00:00 Introduction and Podcast Overview
07:01 Hospital Experience and Diagnosis Delivery
13:19 Impact of the Diagnosis
23:05 Treatment Plan and Support Offered
28:47 Mental State and Surgery Preparation
34:36 Managing Pain and Recovery
40:16 Bucket List and Determination
45:38 Navigating the Benefit System
51:25 Treatment Options and Scans
58:23 Peer Support and Shared Experiences
15 Mar 2026
Episode 4 - Giving back to others - Sharron Moffatt
The conversation covers Sharron Moffatt's journey with cancer, from her initial diagnosis to the challenges of treatment and recovery. It delves into the psychological impact of cancer, financial struggles, coping strategies, and the misconceptions surrounding cancer treatment and recovery. Sharron's work in raising awareness and fundraising for cancer support is also highlighted. The conversation covers the experiences of cancer treatment and mental health challenges, highlighting coping mechanisms, recovery, and the need for mental health support. It also delves into the impact of cancer diagnosis on mental health and the importance of advocacy and support for cancer patients.
Takeaways
Psychological impact of cancer
Navigating the challenges of cancer treatment Cancer treatment experiences
Mental health challenges
Chapters
00:00 Introduction and Background
06:00 Impact of Diagnosis and Treatment Plan
13:09 Living in the Present
22:27 Navigating Benefits and Social Stigma
30:29 Brave the Shave Fundraiser
39:32 Mental Health Challenges and Support
48:20 Mental Health and Cancer Diagnosis
56:07 Advocacy and Support
1 Mar 2026
Episode 3 - Cancer Whilst Pregnant - Louise Wilson
The conversation covers the journey of a cancer diagnosis, pregnancy, and the challenges of managing work while undergoing treatment. It explores the emotional impact of diagnosis, the complexities of pregnancy and cancer treatment, and the support received from the workplace during this challenging time. The conversation covers Louise's journey through cancer treatment, from navigating uncertainty to life after treatment. It explores the psychological impact, fear of reoccurrence, reconstructive surgery, and ongoing health concerns. Louise shares valuable advice for cancer patients, emphasizing the personal nature of the journey and the importance of finding small wins in every experience.
Takeaways
Early Cancer Diagnosis
Pregnancy and Cancer
Work and Cancer Surviving cancer is a deeply personal journey
The fear of reoccurrence and progression is a common experience for cancer survivors
Chapters
00:00 Employment and Organizational Support
31:22 Radiotherapy and Post-Treatment Concerns
40:10 Reconstructive Surgery and Complications
47:58 Life After Treatment and Ongoing Health Concerns
53:08 Advice for Cancer Patients
16 Feb 2026
Episode 2 - A shocking twist after tragic loss - Charlotte Forster
In this episode of Living With and Beyond Cancer, host Steve Pointon speaks with Charlotte Forster, who shares her deeply personal journey through love, loss, and resilience in the face of cancer. Charlotte recounts her relationship with Andy, who was diagnosed with kidney cancer, and the challenges they faced together, including treatment, side effects, and the impact on their family life. After Andy's heartbreaking passing, Charlotte unexpectedly receives her own cancer diagnosis, leading her to navigate her recovery while raising their daughter. Throughout the conversation, Charlotte emphasizes the importance of community support, mental health, and the profound changes that a cancer diagnosis brings to one's life. She also discusses her advocacy work for bereavement support and the need for reform in financial assistance for young widows.
Link to the bereavement payment petition that Charlotte talks about Raise Bereavement Support Payment and extend beyond 18 months - Petitions (https://petition.parliament.uk/petitions/752501)
2 Feb 2026
Episode 1 - How did we get here?
Most cancer survivors learn to live with the shadow of the disease. But what happens when fear, systems failure, and personal trauma collide? Join Steve Pointon, a twice-diagnosed kidney cancer patient, as he shares his extraordinary journey from shock to resilience—and how he’s now turning his pain into purpose.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Spotify
5.0 / 5
7 ratings
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