In this series of podcasts you will hear from patients and many healthcare experts caring for patients with Multiple Myeloma.
The conversations focus on the patient journey from diagnosis, through treatment and living well post treatment. The conversations aim to provide information and signpost support to all patients living in Ireland with MM and their families.
Conversations include Caroline's patient journey of living with a new diagnosis and Anne's patient journey of living well with relapsed MM. You will hear experts discuss the different stages of MM including Smouldering Myeloma, active disease and relapsed refractory MM. Managing a diagnosis of MM requires a multidisciplinary approach, therefore this series features conversations around patient involvement, nursing and dietary advice as well as psychosocial support.
Finally our conversations also focus on the progress of research and development in managing MM into the future.
Behind the Blood: The Caregiver’s experience of blood cancer
In this podcast Orlaith Cormican a PhD student and Nurse chats with Maire Treasa and shares her findings from the research she undertook over the last number of years exploring psychosocial vulnerability in caregivers of individuals with a chronic blood cancer.
She talks about the impact that caring for someone has on all aspects of a caregivers life, the life adjustment and the crucial role they play on the patient journey. She also talks about caregivers who are potentially more at risk of becoming psychosocially vulnerable and the need to include caregivers as part of the patient’s treatment trajectory in order to move future care forward.
Thanks for listening.
Multiple Myeloma Ireland:
Website
Facebook
Twitter
This podcast has been produced by Fuzion.
18 Nov 2024
Title – Living with Myeloma - A Spouse Perspective
In this engaging podcast, Marie Treasa Ni Cheallaigh chats to Ally Bryne, whose husband was diagnosed with Multiple Myeloma in 2021.
Sharing her family's experience, they discuss everything from diagnosis to fundraising to spreading awareness and the impact of Michael’s diagnosis has had on their young family.
Thanks for listening
Multiple Myeloma Ireland:
Website
Facebook
Twitter
This podcast has been produced by Fuzion. (https://www.fuzion.ie/podcasting)
29 Oct 2024
Living with Cardiac AL Amyloidosis, a personal journey from Michael Bond, Galway native, retired teacher and renowned Ex- Offaly hurling manager
In this podcast, legendary hurling manager Michael Bond, shares his experience of living for a
number of years with cardiac AL amyloidosis. Chatting with our host MT, Michael outlines his
previous cardiac health, and how he initially attributed his symptoms including shortness of breath
to his underlying condition.
Michael talks about the importance of advocating for one’s own health and pushing for further
investigations when symptoms persist. He candidly shares his journey from diagnosis to treatment, and his visits to the Royal Free AL Amyloidosis centre, Uk.
He explains how the treatment he received has been effective in controlling his condition, and
improving his quality of life with some minor adaptations. His positive attitude is uplifting and
inspiring. It’s clear his sporting career, ‘can do attitude’ and fighting spirit have helped him navigate his diagnosis, treatments and assisted him to overcome challenges faced, including weight loss and losing his identity.
Michael has used fundraising as a powerful tool to raise awareness of AL Amyloidosis and a way to give back to the Amyloidosis centre, Uk. Michael speaks of the need for greater awareness of this rare condition and his donation to MMI to support their efforts in promoting further support and information to patients living with AL Amyloidosis. He stresses that being informed is so important to living well. Of course, no conversation with Michael could be complete without discussing his knowledge of hurling and predications for the future. This engaging and encouraging podcast provides great encouragement for any patient or family affected by this rare condition.
We hope you find this podcast helpful.
Multiple Myeloma Ireland:
Website
Facebook
Twitter
This podcast has been produced by Fuzion Communications.
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Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
4.5 / 5
4 ratings
Spotify
5.0 / 5
4 ratings
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