Living With PSC

About Living With PSC

Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofit organization dedicated to providing education and support to PSC patients and caregivers, and raising funds to research causes, treatments and cures for primary sclerosing cholangitis. PSC Partners has awarded $2.6 million in international research grants, has a growing patient registry, and holds annual conferences for patients and caregivers.

Publisher

PSC Partners Seeking a Cure

Category

health & fitness · health & fitness

Language

en

Explicit

No

First episode

4 Apr 2018

Latest episode

3 Jul 2026

Latest episodes

1 of 48 episodes have a transcript.

1. 

   3 Jul 2026TRANSCRIPT

   Ricky and Audra Speak about the Exciting New Treatments for PSC

   Host Niall speaks with Ricky Safer and Audra Flemming from PSC Partners about exciting new treatments and patient-led advocacy shaping the future of PSC care.

2. 

   26 May 2025

   Harriet Medeley talks about Outpatient her new play about PSC

   Playwright Harriet Medeley discusses her Primary Sclerosing Cholangitis diagnosis and how it fuels her award-winning comedy, Outpatient, in an interview with Niall McKay.

3. 

   28 Apr 2025

   The link between mental wellbeing and physical recovery after liver transplant.

   Host Niall McKay speaks with Dr. Sharron Millen, a health psychologist at Queen’s University Hospital, Belfast in Northern Ireland. Dr. Millen, a two-time liver transplant recipient, completed her PhD on psychological well-being in liver transplant patients. Her research found a significant link between physical recovery and mental well-being. Niall and Dr. Millen also share their personal experiences with liver transplant, discussing the psychological impact on patients and emphasizing the importance of mental preparation, social support, and counseling. They highlight the challenges faced both before and after transplant, including social isolation, financial difficulties, and post-operative complications.

Inside a recent episode

Ricky and Audra Speak about the Exciting New Treatments for PSC

Published 3 Jul 2026 · Transcript excerpt

[…] I really do. I see it. It's coming. It's coming. Like there's this excitement at the conference last year of something's coming. Yes. So I think with everything that we've built, we now, we do have an international reputation. I'm thrilled what you just told me about Ireland, for example. And so because just like Audra said, some of the researchers are coming to us because they want the patient input. One thing I wanted to just review real quickly for everybody is, so research used to be done just whatever the researchers wanted. So they meet, they get together, they have all the data, they have all the expertise, but they don't really know what we want. […]

Who has been a guest on Living With PSC

Names identified in recent episode analyses. Showing up to five guests.

• Ricky Safer
• Audra Flemming
• Harriet Medeley

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views

113,264

Score snapshot 15 Sept 2025

Apple Podcasts (US)

4.9 / 5

27 ratings

Spotify

5.0 / 5

1 ratings

Podcast Authority Score: 49 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

30

Social presence

0

YouTube

86

Engagement

85