The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Steps Of Strength - Trekking the Kokoda Trail with GBS - Global GBS awareness campaign
In this episode, I chat to Sienna James about her GBS journey and her remarkable Steps Of Strength project that aims to raise awareness of GBS around the globe. In December 2026 only two years after Guillain-Barré Syndrome (GBS) left her unable to walk, Sienna James will attempt to walk the Kokoda Trail a mountainous, 96km jungle path in northern Papua New Guinea. Accompanied by one of her oldest friends and a guide, Sienna is aiming to complete this arduous route made famous by t...
30 Aug 2026
The Road to LA28 - Paralympics Series with Ben Watson - #2 - Gearing up for the Worlds
As he prepares for the World Championships in Huntsville, Alabama, Ben and I sit down to catch up. We discuss how his riding is going, how he has prepared for the Worlds, his hopes for the races and a how he and his team mates relax as they gear up for an event of this kind. To follow Ben and the rest of the Para-cycling Worlds the event schedule and details of how to watch the races are at https://usacycling.org/article/how-to-watch-the-2026-uci-paracycling-road-world-championshi...
28 Aug 2026
The role of patient voice in informing government treatment funding decisions - The live case of funding a new CIDP treatment in Australia
Patient Voice matters!! This is always true, but especially when governments are considering whether to fund new treatments. With the Australian Government considering whether to fund a new CIDP treatment later this year. Nicole Tait and I take a look at the process the Pharmaceutical Benefits Advisory Committee are following, with special regard to how those affected by CIDP can share their experiences and input to the process. This is a deliberately focused episode aimed ...
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Apple Podcasts (US)
4.7 / 5
3 ratings
Podcast Authority Score: 26 / 100
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Quality
28
Social presence
0
YouTube
0
Engagement
60
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