Each week, I bring you a new exclusive interview to discuss different medical diagnoses from the perspective of the heroes behind the child, us, moms.
Each interview, we will walk a different diagnosis through the perspective of the mom. We will discuss their child's story and child’s diagnosis and get into the details of their journey through the diagnosis, advice they would give to other moms, resources they have/know of for other moms to use, information on pages to follow, or if there is research that is coming out soon.
I pray through this journey we can connect moms who are navigating their child's diagnosis, a mom who needs their story to be told, a mom looking for advocacy, connection, and community.
Welcome, to Medical Mom Talk.
Sanfilippo Syndrome and Spreading Advocacy Worldwide
Welcome to episode 4 of Medical Mom Talk. This week I had the lovely privilege to speak with Ashley Haywood, a mother, an influencer, and an advocator. After her daughter, Sadie Rae, was born, she began her journey in advocating for answers. Her advocacy journey didn't stop there. Once Sadie was diagnosed with Sanfilippo Syndrome, Ashley knew her fight for treatment and inclusion needed to continue. Join in on listening to her incredible journey and follow along her social media accounts to fight for children with Sanfilippo.
Resources:
>> Cure Sanfilippo and Sanfilippo resources:
CureSanfilippoFoundation.org
>> Sadie Rae Social Media Accounts:
https://www.savingsadierae.org/
https://www.facebook.com/SavingSadieRae
https://www.tiktok.com/@savingsadierae
https://www.instagram.com/savingsadierae
SAY HELLO!
Website -> brand.page/medicalmomtalk
Instagram -> @medicalmomtalk
Email -> medicalmomtalk@gmail.com
Music Licensing: PE4P2QVTKX24VPLC
26 Nov 2024
Strabismus, CVI, Seizure Disorder and How a Diagnosis Leads to Maximum Love
Thanks for joining our third episode of Medical Mom Talk. This week, I had the privilege to chat with Lindsay Savage, a mother who defines resilience and strength. After the onset of seizures, her son, Sterling, was quickly diagnosed with Strabismus and Cortical/Cerebral Visual Impairment (CVI). This diagnoses has shaken their world, but their family has paved the way of healing/treatment with love and joy. Join us as Lindsay shares her story of resiliency and unconditional gratitude.
Resources:
>> Light Box Play Bundle
https://www.westminstertech.com/products/light-box-play-bundle?srsltid=AfmBOopTXG528YKcOGJGGBA2J2ObuTISoRTyXysYc6ugnh2H7r747puH
>> Children's Esotropia/Exotropia/Strabismus/Amblyopia Support Page: https://www.facebook.com/groups/188023837921443/
SAY HELLO!
Website -> brand.page/medicalmomtalk
Instagram -> @medicalmomtalk
Email -> medicalmomtalk@gmail.com
Music Licensing: PE4P2QVTKX24VPLC
19 Nov 2024
Cerebral Palsy, Hemiplegia, and How Family and Community Can Help You Defy All Odds
Welcome for another episode of Medical Mom Talk. This week we talk to Erin Kutac, an incredible mother who has done all she can to help her son overcome all odds. A story of how family and community can make the difference in helping our children overcome obstacles and defy all odds.
Resources:
>> The Children’s Hemiplegia and Stroke Association (CHASA) - https://chasa.org/
>> Ronald McDonald House - https://rmhc.org/
SAY HELLO!
Website -> brand.page/medicalmomtalk
Instagram -> @medicalmomtalk
Email -> medicalmomtalk@gmail.com
Music Licensing: PE4P2QVTKX24VPLC
12 Nov 2024
Progressive Familial Intrahepatic Cholestasis and Navigating Life After Transplant
Its the very first episode of Medical Mom Talk (MMT), what a journey it has been to get to this moment. This episode, I wanted to focus on how Medical Mom Talk came to light and our story of our sweet son and his journey with a rare genetic disorder, Progressive Familial Intrahepatic Cholestasis (PFIC) and navigating life after his life saving liver transplant.
Resources:
> The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support: https://cota.org/
> PFIC Network to inspire hope in the PFIC Community: https://www.pfic.org/
SAY HELLO!
Website -> brand.page/medicalmomtalk
Instagram -> @medicalmomtalk
Email -> medicalmomtalk@gmail.com
Music Licensing: PE4P2QVTKX24VPLC
24 Oct 2024
Welcome to Medical Mom Talk
When you are told about your child's medication diagnosis, the world instantly becomes a scary, lonely, confusing place to navigate. Between doctors appointments, sleepless nights, people's misconceptions - it can be a LOT. This is why I created Medical Mom Talk, a place where moms can come and share their experiences and journey through their child's diagnosis. Where real, raw, beautiful stories are told and where true advice, connection, and community is born.
My name is Kersey Henderson, and when my son was diagnosed with a rare genetic disorder, I felt it all. That is why I created Medical Mom Talk, because I don't want mom's to do this alone. I want to build a community that mom's can come to and share their experiences of being a medical mom. I hope through this journey, everyone can find something beneficial along the way.
instagram: @medicalmomtalk
facebook: Medical Mom Talk
website: https://brand.page/medicalmomtalk
Music Licensing: VZW0PIOE47ZSEXRM
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
4 ratings
Host of Medical Mom Talk?
Claim your podcast to manage its listing and keep your show details accurate.
Pod Engine is an independent podcast discovery and analytics service and is not affiliated with or endorsed by this podcast. Artwork and show content belong to their owners. Full legal notice.
Explore this show Podcast research with Pod Engine
