I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
Paul - Balance Awareness Week - How YOU Can Make a Difference, E55
In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation. From regional theater to healthcare, to programs offering chess to low-income students, he has helped organizers raise millions of dollars to fulfill their missions. For Paul, fundraising isn’t just about the money, it’s about the people, relationships and the shared mission that binds communities together.
In this conversation, we discuss:
~ Why fundraising is really about connection, not just donations
~ How you can support in ways that feel authentic, through words, art, social media or simply starting conversations
~ Why balance is a right, not a luxury
~ How to invite your friends and family into supporting the vestibular community
This episode is an invitation to participate. Whether through a post, poem, donation or a partnership, there’s a way for YOU to join in!
More on vestibular disorders www.vestibular.org (http://www.vestibular.org/)
Are you a vestibular patient- PLEASE take a few moments and sign this registry The Dizziness, Vertigo and Imbalance Patient Registry - Vestibular Disorders Association (https://vestibular.org/article/get-involved/participate-in-research/patient-registry/)
Connect with Heather: www.instagram.com/menieresmuse (http://www.instagram.com/menieresmuse)
Or email her at menieresmuse@gmail.com (mailto:menieresmuse@gmail.com)
Thank you for being here!
Be sure to use the hashtags #balanceawarenessweek #vestibulardisordersassociation #menieresmuse #makevestibularvisible
15 May 2025
In Sickness and Strength - Vestibular Minutes S3E54
What does support really look like when you have a chronic illness? In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change.
This episode is more than a reflection. It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect. In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily.
Whether you have a strong support system or you’re still searching for one, this episode is for you. You are seen, you are believed, and you are not alone.
VeDA Support Groups Online Support Groups - Vestibular Disorders Association (https://vestibular.org/article/coping-support/support-groups/online-support-groups/)
Lara’s private FB Support Group (2) Mummy Seeing Double Support Group | Facebook (https://www.facebook.com/groups/827264070763276)
“8 Minute, One Connection” S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuA (https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuA)
If you would like more information on vestibular disorders www.vestibular.org (http://www.vestibular.org)
If you would like to reach out to me, Heather, please email me at Menieresmuse@gmail.com (mailto:Menieresmuse@gmail.com) or find me on Instagram (www.instagram.com/menieresmuse)
Thank you for being here! Don't forget to link, share and subscribe!
#support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups
18 Apr 2025
Hope vs. Hype - Vestibular Minutes S3E53
In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease.
While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments.
Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn’t come from false promises, it comes from community and clarity.
(www.speakpipe.com/menieresmuse)
Find me on Instagram (https://www.instagram.com/menieresmuse/)
Email me at menieresmuse@gmail.com
For more information on vestibular disorders www.vestibular.org
VeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
7,096
Score snapshot 15 Sept 2025
Apple Podcasts (US)
5.0 / 5
6 ratings
Spotify
4.9 / 5
15 ratings
Podcast Authority Score: 82 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
83
Social presence
94
YouTube
74
Engagement
82
Contact Meniere's Muse
Guest appearances
Books guests
Based on episode analysis; this does not confirm that the show is currently accepting guests.
Host of Meniere's Muse?
Claim your podcast to manage its listing and keep your show details accurate.
Pod Engine is an independent podcast discovery and analytics service and is not affiliated with or endorsed by this podcast. Artwork and show content belong to their owners. Full legal notice.
Explore this show Podcast research with Pod Engine
