Metabolically Speaking with Maridith Baker. Rare conditions, Real stories.
Living with a metabolic condition is about embracing more. More things you can do, more you can enjoy, and more adventures along the way.
Metabolically Speaking unpacks the perceived challenges facing individuals and families living with inherited metabolic conditions. Host Maridith Baker, who knows firsthand what it means to live fully with PKU, brings her unique spark, energy, and deep curiosity to every conversation.
Through expert interviews and real-world experiences, each episode blends metabolic knowledge with practical advice. Covering topics such as identity, relationships, mental health, advances in research and the ordinary moments that make life extraordinary.
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11. Learning Without Barriers: Navigating School with a Metabolic Condition
Learning Without Barriers: Navigating School with a Metabolic Condition With Dr. Eugene Lubliner Starting school is a significant milestone for any child, but when a rare metabolic condition like PKU is part of the picture, it can bring added layers of uncertainty. Alongside school routines and making new friends, there are important considerations around meals and snacks, day-to-day treatment, and ensuring children feel supported in their learning. In this episode, we’re joined by Dr....
17 Jul 2026
10. Finding Your Rare Disease Community: The Power of Being Seen with Kevin Alexander
Finding Your Rare Disease Community: The Power of Being Seen With Kevin Alexander Kevin Alexander shares how living with a rare metabolic condition can often become deeply focused on the practical side of management from strict diets to clinics and daily routines. What can sometimes get lost in these necessities is the bigger picture of connection and belonging. As a PKU advocate and storyteller, Kevin opens up about his ongoing work to bring greater visibility to the true lived experience of...
9 Jun 2026
9. Cooking for Love: Finding Hope After a PKU Diagnosis with Brenda Winiarski
Cooking for Love: Finding Hope After a PKU Diagnosis With Brenda Winiarski Brenda Winiarski shares her journey from speech pathologist to chef, shaped by the moment her daughter was diagnosed with PKU through newborn screening. What began as fear and uncertainty soon became a determination to ensure her daughter could still experience the joy, connection, and celebration that food brings to everyday life. Along the way, Brenda opens up about the sense of loss many parents feel, and how ...
28 May 2026
8. From Discovery to Daily Life: How GMP Transformed Nutrition for PKU With Dr. Denise Ney and David Paolella
Metabolically Speaking Rare conditions, Real stories. From Discovery to Daily Life: How GMP Transformed Nutrition for PKU With Dr. Denise Ney and David Paolella David and Denise share the story behind GMP and how its discovery transformed the landscape for people living with PKU. From early research to real-world impact, they reflect on the importance of involving the PKU community in developing new medical foods and ensuring they truly meet patients’ needs. In this episode, we explore how...
31 Mar 2026
7. Finding Her Voice in Early Adolescence With PKU with Norah and Staci
Metabolically Speaking Rare conditions, Real stories. Finding Her Voice in Early Adolescence With PKU With Norah and Staci At 11 years old, Norah is learning to navigate early adolescence while living with PKU - balancing school, friendships, jazz band, sports clubs, and the desire to simply fit in. With support from her Mom, Staci, she’s building confidence and independence as she learns to manage her condition and advocate for herself. In this episode, Norah shares what it really feels ...
17 Mar 2026
6. Thriving with Isovaleric Acidemia: Micah’s Journey with Justin Hensley
Metabolically Speaking Rare conditions, Real stories. Thriving with Isovaleric Acidemia: Micah’s Journey with Justin Hensley This month on Metabolically Speaking, we’re joined by Justin, who shares his family’s deeply personal journey of parenting a child with Isovaleric Acidemia (IVA). Justin explains what IVA is and how his son, Micah, was diagnosed through newborn screening. He discusses the challenges his family faced as first-time parents, including an early metabolic crisis tha...
18 Dec 2025
5. Personal Advocacy, Collective Progress: A New Era in Metabolic Care with Sarah Chamberlin
This month on Metabolically Speaking we’re joined by Sarah Chamberlin, founder and Executive Director of flok Health and parent to a daughter with PKU. A recurring theme on the Metabolically Speaking podcast is the power of community, and this episode is no exception. We explore the story behind flok; why it exists, what it hopes to change, and how its name represents people coming together for protection, support, and progress. Sarah shares how flok is determined to drive research and ...
27 Nov 2025
4. Redefining Limits – Breaking Fitness Barriers in Metabolic Conditions with Stephanie Hacker
This month on Metabolically Speaking, we’re joined by Stephanie Hacker, a Metabolic Dietitian and Newborn Screen Program Manager at the University of Miami. With years of experience supporting individuals with inborn errors of metabolism (IEMs), Stephanie is passionate about helping people live active, balanced, and fulfilling lives. In this insightful episode, Stephanie and host Maridith Baker explore the powerful connection between physical activity, health, and quality of life....
29 Oct 2025
3. From Patient to Practitioner – A PKU Story of Purpose, Passion, and Practice with Brittany Murray
This month on Metabolically Speaking, we’re joined by Brittany Murray, a doctoral graduate, public speaker, and nurse practitioner at one of the world’s leading pediatric institutions. She’s also living with PKU. In this inspiring episode, Brittany shares how she’s come to see her condition not as a limitation, but a gift. From her early involvement in the PKU community to building a career in healthcare, Brittany uses her experience to empower others living with rare metabolic co...
24 Sept 2025
2. Navigating Mental Health with a Metabolic Condition – with Dr Kendra Bjoraker
This month on Metabolically Speaking, we’re joined by pediatric neuropsychologist Dr. Kendra Bjoraker. With specialized expertise in rare genetic and metabolic conditions, Kendra has dedicated her career to supporting individuals and families as they navigate challenges, celebrate strengths, and hold onto hope. Kendra, and host Maridith Baker, dive into the realities of living with both a mental health condition and a metabolic condition, and how persistence, adaptation, and cognitive flexibi...
19 Aug 2025
1. Advocacy, Community & Innovation – A Mom’s Journey with Lynn Paolella
Welcome to the very first episode of Metabolically Speaking! We’re kicking things off with an inspiring conversation you won’t forget. Our first guest is a community advocate, leader, and founder of Cambrooke; Lynn Paolella. In this episode, Lynn shares her experience on receiving not one, but two PKU diagnoses in her family and how those life-changing moments ignited the creation of Cambrooke, a global innovator in the field of advanced medical nutrition. She shares the highs, the lows...
6 Aug 2025
Metabolically Speaking - Podcast Trailer
Living with a metabolic condition is about embracing more. More things you can do, more you can enjoy, and more adventures along the way. Metabolically Speaking unpacks the perceived challenges facing individuals and families living with inherited metabolic conditions. Host Maridith Baker, who knows firsthand what it means to live fully with PKU, brings her unique spark, energy and deep curiosity to every conversation. Through expert interviews and shared experiences, each episo...
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