The MND Matters podcast offers people living with and affected by motor neurone disease access to information, informal advice and expertise.
Created by the MND Association, the podcast will explore a wide range of subjects alongside people affected by MND. As well as being an extra information source for the MND community, MND Matters will also be a new tool for the Association to use to raise awareness among the wider community.
Find out more on our website www.mndassociation.org.
MND Matters: Episode 41 – Children, young people and family support
When someone is diagnosed with MND, the effects can ripple across the whole family. Lindsay shares her experience of living with PLS – a form of MND – and how her daughter, Cally, struggled with anxiety and uncertainty following the diagnosis.
Joined by Emily from the MND Association's Children, Young People and Families Service, the episode highlights the emotional challenges young people can face, from worries about a loved one’s health to balancing school, friendships and future plans. We also discuss the tailored support available from the Association, including counselling, school support, one-to-one guidance, grants, resources and ongoing help for children and young people up to age 25.
For more information about our support for families: https://www.mndassociation.org/support-and-information/children-and-young-people/support-families-children-and-young-people (https://www.mndassociation.org/support-and-information/children-and-young-people/support-families-children-and-young-people)
27 May 2026
MND Matters: Episode 40: Preserving your voice
In this episode of MND Matters, we explore the world of voice banking and how rapidly evolving technology is changing the way people stay heard. Guided by questions from you - the MND community - Steph and speech and language therapist Jen Benson unpack why our voices are such a core part of who we are, and how voice banking helps preserve that identity.
Jen shares when to get started, what to do if your voice has already changed and how AI is creating increasingly natural digital voices. We also highlight support available, funding options and the wide range of devices and access methods now available - even for those with limited movement.
Find out more about our financial support:
Contact our MND Connect helpline on 0808 802 6262 or email mndconnect@mndassociation.org (mailto:mndconnect@mndassociation.org)
14 Apr 2026
MND Matters: Episode 39 – Love, loss and the power of pets
“Sometimes the companionship of a dog is better than human company. They don't judge you. You don't have to sort of speak. They're just there. And sometimes that's all you want, because it's hard.”
Through every chapter of our lives, our pets are right there beside us. We look after them, and they look after us. They’re not just animals we live with - they’re family.
In this episode of MND Matters, Domonique sits down with Lizzie from Woodgreen Pets Charity and Channel 4’s The Dog House. Lizzie’s husband Chris was diagnosed with MND at just 34. In this episode she discusses the challenges of being a carer while raising young children, but how bringing puppy Betty into the home gave the family comfort, routine and companionship.
Drawing on her personal and professional experience, Lizzie also shares practical advice for caring for pets while managing the changes MND might bring.
You may hear the very occasional bark during the episode – Lizzie’s dog Bumblebee couldn’t resist getting involved in the episode too.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Spotify
5.0 / 5
11 ratings
Podcast Authority Score: 34 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
55
Social presence
0
YouTube
0
Engagement
32
Contact MND Matters
Guest appearances
Books guests
Based on episode analysis; this does not confirm that the show is currently accepting guests.
Host of MND Matters?
Claim your podcast to manage its listing and keep your show details accurate.
Pod Engine is an independent podcast discovery and analytics service and is not affiliated with or endorsed by this podcast. Artwork and show content belong to their owners. Full legal notice.
Explore this show Podcast research with Pod Engine
