My Hero 360 is an online community dedicated to showing the human side of medicine. It is our deep desire and goal to honor, celebrate, and connect unsung heroes in medical communities worldwide. This initiative provides these extraordinary individuals with a platform to share their experiences and foster a ripple effect of inspiration. Together, we can empower each other and improve quality of life, one story at a time.
Misdiagnosis: From One Rare Disease to Another | Amy and Carson Flanagan
This My Hero 360 interview features Carson Flanagan and his mother, Amy Flanagan, who share their experience with a mix-up between rare conditions. Carson was first diagnosed with Marfan syndrome as a young child, but genetic testing later revealed that he has homocystinuria (HCU), a rare metabolic condition. They discuss how HCU has changed Carson’s life, especially because he must limit his protein intake and adjust his eating habits as a new college student. The two explain the importance of medical research, raising awareness, and advocating for your child. Throughout the interview, they encourage others to stay positive, ask questions of medical professionals, and keep pushing through life’s challenges. This episode was developed in partnership with HCU Network America.Key Highlights: • Hear about Carson’s journey to finding the right diagnosis through genetic testing. • Learn how Carson is learning to balance a strict, low-protein diet with college and social life.• Be inspired by Amy’s search for the right diagnosis for her son and why she wants to spread awareness about HCU.• Hear about how connecting with HCU Network America, a patient advocacy group, has helped Amy and Carson learn more about their new reality.00:00 Introduction & Background 02:23 From Marfan to HCU: A Misdiagnosis Story09:08 A Series of Surgeries16:25 HCU Patients Deserve Options28:07 Connecting With HCU America 38:20 Advice to Younger Selves 39:00 Closing Remarks Connect with HCU Network America:https://hcunetworkamerica.org/https://www.youtube.com/channel/UCdYChYZ3uMTGIpM0rBkmyaw https://www.instagram.com/hcu_network_americaAbout My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.Support My Hero 360:https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360 Listen to Our Heroes’ Stories:Apple Podcasts: https://podcasts.apple.com/us/podcast/my-hero-360/id1870681068 Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360 Subscribe to this channel for more inspirational stories
27 Oct 2026
"The Second You're Not Loud, People Stop Listening" | Gabrielle Lewis
In this My Hero 360 interview, Gabrielle Lewis talks about her experience living with classical homocystinuria (HCU), an extremely rare genetic metabolic disorder that requires following a strict, low-protein diet. Growing up, Gabrielle required multiple surgeries for scoliosis, an effect of her HCU, and reveals that photography became her creative outlet and an essential part of her recovery. Gabrielle emphasizes that continued research is needed for HCU and shares her experience working with HCU Network America, where she supports adolescents living with this rare condition and encourages them to use their voice to spread awareness and drive research for their ongoing needs. This episode was developed in partnership with HCU Network America.Key Highlights: • Hear how Gabrielle Lewis manages HCU through a strict, low-protein diet.• Learn how Gabrielle developed scoliosis and faced numerous spinal surgeries because of HCU.• Be inspired by Gabrielle’s photography journey, which allows her to express herself despite medical obstacles. • Learn about HCU Network America, a patient advocacy organization that provides resources for patients and families, influences state and federal policy, and supports the advancement of diagnosis and treatment for HCU. 00:00 Introduction & Background 01:53 One Family: Two Siblings Living With a Rare Condition 06:06 Overcoming Medical Challenges 12:10 Finding Creativity Through Photography 13:38 Improving Long-Term Care and Research for HCU16:46 Finding Connections With HCU Network America 21:21 Advice to Younger Self22:04 Closing RemarksConnect with HCU Network America:https://hcunetworkamerica.org/https://www.youtube.com/channel/UCdYChYZ3uMTGIpM0rBkmyaw https://www.instagram.com/hcu_network_america About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.Support My Hero 360:https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360 Listen to Our Heroes’ Stories:Apple Podcasts: https://podcasts.apple.com/us/podcast/my-hero-360/id1870681068 Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360 Subscribe to this channel for more inspirational stories.
20 Oct 2026
Becky Motivates and Inspires | The Family of Becky Jackson Curran
After checking in with Becky Jackson Curran for a follow-up interview with her incredibly supportive parents, Hero Philanthropy made a donation to Achilles International at Becky’s recommendation. This organization is special to Becky because its mission is to connect individuals with disabilities to walking and running programs. Learn more at https://www.achillesinternational.org/ (https://www.achillesinternational.org/)
Connect with Becky:
https://www.instagram.com/beckymotivates (https://www.instagram.com/beckymotivates)
Connect with the Achilles International:
https://www.achillesinternational.org/ (https://www.achillesinternational.org/)
About My Hero 360: At My Hero 360, we honor,celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.
Support My Hero 360:
https://myhero360.com/ (https://myhero360.com/)
https://www.instagram.com/myhero.360/ (https://www.instagram.com/myhero.360/)
https://www.tiktok.com/@myhero.360 (https://www.tiktok.com/@myhero.360)
Listen to Our Heroes’ Stories:
Apple Podcasts: https://podcasts.apple.com/us/podcast/my-hero-360/id1870681068 (https://podcasts.apple.com/us/podcast/my-hero-360/id1870681068)
Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 (https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334)
Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360 (https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360)
Subscribe to this channel for more inspirationalstories.
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