Narcolepsy Navigators

About Narcolepsy Navigators

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome. Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss. Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story." Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

Publisher

Kerly Bwoga

Category

business · health & fitness · society & culture

Language

en

Explicit

No

First episode

10 Dec 2023

Latest episode

6 Oct 2026

Latest episodes

77 episodes in the feed.

1. 

   6 Oct 2026

   S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

   Leave a review! Kylie Dennis O'Sullivan was diagnosed with narcolepsy type 1 at 12 years old — after years of being told by doctors that she was "just fat and lazy." In this Black History Month UK special, Kylie joins hosts Kerly and Sakhara to talk about growing up mixed-heritage in East London, the cataplexy episodes her mum mistook for night terrors, and the long road to her eventual diagnosis at Great Ormond Street Hospital — the first in her local borough in 20 years. Now 38, Kylie is an...

2. 

   29 Sept 2026

   S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

   Leave a review! Liz is a speech and language therapist. Christine is a former chartered accountant. Both were diagnosed with narcolepsy type 1 — and both have had to fight, again and again, for accommodations they were legally entitled to. In this episode, Liz and Christine sit down for an honest career chat: the university meeting where Liz was told she'd never qualify as a therapist, Christine being denied a split exam sitting and then set up to fail four exams in four days, the "breadcrum...

3. 

   22 Sept 2026

   S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

   Leave a review! Mel has narcolepsy without cataplexy.Jeanna has Tourette syndrome. They met in a Walmart parking lot, went viral for a motorcycle ride the internet still argues about, and somehow became each other's safest place — through a cancer relapse, childhood trauma, and a lot of dark humor. In this episode, hosts Kerly and Sakhara sit down with Mel ("Mel of the Mountains") and Jeanna (founder of Tourette Taxi) to talk about what happens when two very different neurological condition...

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views

221

Score snapshot 15 Sept 2025

Apple Podcasts (US)

5.0 / 5

5 ratings

Spotify

4.9 / 5

13 ratings

Podcast Authority Score: 64 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

72

Social presence

0

YouTube

66

Engagement

77