National Disability Radio

About National Disability Radio

An insightful podcast by the National Disability Rights Network offering advocacy tools, heartfelt storytelling, and real-world policy insights—accessible whether you’re an advocate in the field or just someone who cares deeply about disability rights.

Publisher

National Disability Rights Network

Category

business · health & fitness · society & culture

Language

en

Explicit

No

First episode

21 Feb 2020

Latest episode

25 Aug 2026

Latest episodes

49 episodes in the feed.

1. 

   25 Aug 2026

   Changing Laws Can Change Lives

   This episode of National Disability Radio highlights a recent disability rights victory in Colorado, where advocates successfully worked to repeal a law that permitted the forced sterilization of people with disabilities. One of our very own P&As, Disability Justice in Colorado, was instrumental in making this happen! Hear from policy leaders and self-advocates behind the effort as they discuss coalition-building, and why disability rights progress depends on keeping people with disabilities at the center of the conversation. **NOTE** Disability Law Colorado has recently rebranded to Disability Justice! Check out their new messaging and branding on the web and across their socials: Disability Justice’s Website: https://disabilityjustice.co/ (https://disabilityjustice.co/) Disability Justice’s Social Media Channels Facebook: https://www.facebook.com/disabilityjustice (https://www.facebook.com/disabilityjustice) Instagram: https://www.instagram.com/disabilityjusticeco/ (https://www.instagram.com/disabilityjusticeco/) YouTube: https://www.youtube.com/@disabilityjusticeCO (https://www.youtube.com/@disabilityjusticeCO) The Arc of Colorado’s Website: https://www.thearcofco.org/ (https://www.thearcofco.org/) The Arc of Colorado’s Social Media Channels: Facebook: https://www.facebook.com/TheArcofColorado (https://www.facebook.com/TheArcofColorado) Instagram: https://www.instagram.com/arcofcolorado/ (https://www.instagram.com/arcofcolorado/) LinkedIn: https://www.linkedin.com/company/the-arc-of-colorado/ (https://www.linkedin.com/company/the-arc-of-colorado/) X (Twitter): https://x.com/thearcofco (https://x.com/thearcofco) YouTube: https://www.youtube.com/@TheArcofColorado (https://www.youtube.com/@TheArcofColorado) The Arc of the United States’ Website: https://thearc.org/ (https://thearc.org/) The Arc of the United States’ Social Media Channels Facebook: https://www.facebook.com/thearcus/ (https://www.facebook.com/thearcus/) Instagram: https://www.instagram.com/thearc_us/ (https://www.instagram.com/thearc_us/) LinkedIn: https://www.linkedin.com/company/thearcus/ (https://www.linkedin.com/company/thearcus/) YouTube: https://www.youtube.com/@thearc_us (https://www.youtube.com/@thearc_us)

2. 

   24 Jul 2026

   Public Policy Pod: Putting the FUN in funding

   What does it actually mean when disability advocacy is “level funded”? What are federal appropriations, and why are they such a big deal for disability rights? On this episode of National Disability Radio (https://www.ndrn.org/issues/ndr/), Alden Blevins (Communications Manager), Stephanie Flynt McEben (Public Policy Analyst), and Eric Buehlmann (Deputy Director for Public Policy) pull back the curtain on the federal funding process and what it means for the Protection and Advocacy (P&A) network. They discuss the successful FY26 funding fight, why advocacy on Capitol Hill matters, and how everyday people can help. You also get the added bonus of hill-day survival tips, advocacy myths and truths, and a very important debate about coffee and tea. Transcript: Alden Blevins: Hello, and welcome to National Disability Radio. I am here today with two wonderful people who are about to introduce themselves. I am Alden Blevins, Communications Manager here at NDRN. I have my own lived experience with disability and I’m really glad to be here today. What about you guys? Who are you, What do you do? Stephanie Flynt…: Yeah, I’m Stephanie Flynt McEben. I am also one of your hosts of the podcast and NDRN’s Public Policy Analyst. And I have beef with a music streaming app, and I’m not going to talk about which one, but let’s just say that this [00:00:30] music streaming app told me that I was 67 for Christmas this year. And then it had the audacity to… Oh gosh, what was the playlist the other morning that was recommended? It was Old Camping Man Sunday Morning, and it was really weird. Why? I don’t listen to old camping man music unless James Taylor and Chappell Roan and Taylor Swift count as that. But anyway, hope everybody else is having a good day. And hey, if Spotify thinks [00:01:00] you’re old, you’re just… I don’t know. You’re young at heart, anyway. Alden Blevins: I think it clocked my age exactly. And I must say that I listened to a lot of Lady Gaga and Kesha in the last year. Stephanie Flynt…: Yes. Alden Blevins: And to be fair- Stephanie Flynt…: You were in the 2010’s era. Alden Blevins: They were still the two most popular artists when I was graduating from high school, so they clocked me. They clocked me for sure. Stephanie Flynt…: Oh my gosh. Time to introduce Eric, who is our Deputy Executive [00:01:30] Director for Public Policy. How are you doing? It’s great for you to be here. Eric Buehlmann: Great, it’s wonderful to be here. Evidently, your phone must be listening to my music then in that way [inaudible 00:01:44] Stephanie Flynt…: Maybe so. I don’t know what’s going on, but I don’t know how I feel about it. And also, I guess… I don’t know. I guess the Spotify age thing is eclectic because my top artist was Taylor Swift, so I don’t know. Anywho. Eric Buehlmann: So I’m Eric Buehlmann. I’m the Deputy Executive [00:02:00] Director for Public Policy. As Stephanie said, my first choice is not Taylor Swift, but my wife listens to it a lot. So when I’m in the car with her, that’s what I’m listening to. Alden Blevins: This is National Disability Radio. We are the official podcast of the National Disability Rights Network. The National Disability Rights Network works in Washington DC and around the country on behalf of the protection [00:02:30] and advocacy systems, the P&As and the client assistance programs or CAP. We are the nation’s largest provider of legal advocacy services for people with disabilities. The first thing we want to talk about is some big and good news. The P&A network was funded for the rest of FY26. Can we get a hallelujah? Stephanie Flynt…: Yay, woo-hoo! Alden Blevins: The first thing I was just going to ask is, Eric, can you explain to us why it’s a big deal that we were funded and level funded, [00:03:00] and kind of what it took for us to get to this point? Eric Buehlmann: In terms of being able to, why we were able to do this, it’s really our members reaching out to all the representatives, all the senators, making the case, all the good work that the P&As and the CAPs do, and showing all the examples and saying, “Look, if you don’t fund us, this is what’s going to happen, is that person with a disability is not going to be able to get accessible housing or accessible transportation, or the student’s going to be able to go to school or someone’s going to have an assistive [00:03:30] technology device or rampant abuse and neglect are going to be occurring in either the community or institution.” So they made those cases. Congress said, “We agree with you.” And the best we could hope for at this time was at least maintaining our funding and not losing it. Alden Blevins: I think it’s really important to remember that this is not just numbers on a spreadsheet, this has real world impacts on peoples’ lives, the lives of people with disabilities, whether or not they can access enforcement of their civil rights, so [00:04:00] super important. Stephanie Flynt…: Absolutely. Alden Blevins: Just to peel back the curtain and give a little more context for some of our listeners, I just want to go ahead and ask the kind of general question of what are federal appropriations and what does that really mean when we talk about them? Stephanie Flynt…: Yeah, sure. I’m happy to jump in a little bit here. Essentially what federal appropriations are is how Congress allocates funding. And so essentially, there is a long process as Eric kind of talked through a little bit [00:04:30] earlier, in terms of everything that’s been going on with the budget. And so individuals are able to make various appropriations requests to their office. But essentially in a nutshell, it’s essentially just how we get the funds that we need in order to do the work that we do. Alden Blevins: And just kind of practically, what are the steps in an appropriations process or what can people kind of expect out of appropriation season? Oh Stephanie Flynt…: Oh my goodness. Okay, so usually, [00:05:00] of course in the spring, we usually see a big influx of appropriations forms, which, we’re starting to kind of see that now with the House setting their committee deadlines for appropriations, so we’re starting to kind of see an influx of that now. In the Senate, we’ll probably see that a little bit later on as that comes down. But usually the offices will set their personal deadlines, their committee deadlines. And then the appropriations bills, just kind of depending on where they sit, which, all of ours sit on the subcommittee for Labor, [00:05:30] Health and Human Services, Education and related agencies on both the House and the Senate side on the Appropriations Committee. And so there will be a House markup usually around June, as well as a Senate markup in July with the hope that we are able to go ahead and pass the appropriations, the funding that we need for the next fiscal year that starts on October 1st. Alden Blevins: My next one is just why do you guys think advocacy on Capitol Hill matters [00:06:00] during appropriation season? The regular person might not realize how important this is and why. Stephanie Flynt…: Yeah. In my experience, like you said, Alden, a lot of people don’t realize how important and how crucial that kind of advocacy is. But really and truly, that kind of advocacy is what helps us acquire our funding for services, particularly advocacy. So it’s definitely super important to be continuing to follow up with your members. Of course, meeting with your members if you can, [00:06:30] and their staff. Having a steady contact in their offices, things like that. And even just building those relationships in my viewpoint is a good form of advocacy and just making sure that they know who you are, they know what your programs do. They know how it benefits folks in their state/district, et cetera, et cetera, the constituency that they serve. So just making sure that, those points. Eric Buehlmann: And the specific, the biggest requirement is staff [00:07:00] are always seeking information. You’re covering hundreds of programs, multiple issues. They don’t know everything that is going on. They can’t track everything at the same time because they just have information overload. So putting a face with a person, with the story, with the request in front of them makes the biggest difference, because then the staff begins to know who you are. But otherwise, they’re just overloaded with how much material they’re trying to cover and how much stuff they’re trying to do. And if you’re not in front of them, I mean, as [00:07:30] it’s basically said, if you’re not talking to them, you’re on the menu, you’re not the one that’s providing them the information. Stephanie Flynt…: You’re not at the table, you’re on the menu, yeah. Alden Blevins: That makes a lot of sense to me. I was also just going to ask, we’re all so excited and grateful that we were level funded for FY26, but what does level funding really mean? What has that looked like over the last couple years? And having that level or that stagnant funding, what does that mean in terms of the [00:08:00] P&A’s services or the take home impact? Eric Buehlmann: It’s difficult for the P&As because level funding really is in a way, a kind of a cut. Costs are going up continually, healthcare costs are going up. Cost of travel, cost of everything is going up. So level funding ultimately means that they’re able to do less or they may need to shift from doing as much individual case work to more systemic work where you’re helping multiple people by solving one problem. [00:08:30] So level funding is great, especially when you’re facing the potential of cuts. But ultimately if you do that for many, many years, it ultimately means that the P&As and the CAPs will have less staff and able to serve less people. Alden Blevins: Now that we’ve kind of grounded ourselves in a little bit of how this process works, we’re going to talk about the larger policy landscape that we’re all living in right now. What are some of the disability policy concerns we saw come to a head in 2025 and how do we think [00:09:00] that might influence our policy landscape for the rest of 2026? Stephanie Flynt…: Oh my goodness. Do you want to start or do you want me to? Eric Buehlmann: You go first. Stephanie Flynt…: Oh, goodness. I think for me, the biggest thing that comes to mind is the dismantling of the Department of Education. We’ve definitely seen different things that have kind of gone ahead in that regard. And so obviously, there’s a lot of different concerns that are there in those types of things. And so [00:09:30] just continuing to monitor that and what all of that looks like. Of course, I’ll leave a little bit of the healthcare stuff to Eric since that’s more of his specialty, but of course, that is something that I would be remiss not to mention. The various concerns around the Medicaid work requirements that will be taking effect and how that’s going to impact our community. So there are definitely a lot of different policies and a lot of different things that you don’t think about necessarily intersecting with [00:10:00] the disability community, but that are still having impacts on the disability community, particularly those who are members of multiple marginalized communities. Eric Buehlmann: I think building on that for Stephanie is, it’s not just the Medicaid work requirements that are going to hit people. It’s just the massive amounts of cuts to the amount of funding that the states are getting. It’s sort of a partnership between states and the federal government. And if the federal government cuts their share of funding, it means states are going to be cutting their share of funding. And what those cuts [00:10:30] really mean in the long run is that unfortunately, not required services or waiver services are going to be the ones that are going to get hit. If they have to do it, the state will pay for it. If they don’t have to do it and the state’s not willing to put up the money, then those services are going to go away. And in our case, that means home and community-based services for the most part. So not only are a number of people going to get kicked off of Medicaid because they’re having problems following the work requirements or understanding [00:11:00] what the work requirements are and/or having to go through getting re-certified every six months rather than every year, that’s going to mean more people are going to be kicked off. On top of it, you add in all the cuts and the states are going to look around and say, “Well, we’re losing $1 billion,” let’s say, in California, I think is the number they said. “How are we going to make up that gap?” And what they’re going to do is they’re going to say, “Well, these are required and required in the Medicaid program is institutionalized care versus [00:11:30] the ones that we choose to do on our own, which is home and community-based services. Well, if we have to do it, we’ll have to pay for it.” And that means there’s a gap and that gap is going to come out of home and community-based services. Alden Blevins: Yeah. And I think this is kind of a great connection to that home and community-based services piece. I was going to kind of ask, generally speaking, what themes might we be seeing in Congress right now that could affect P&A programs or disability justice as a whole? Eric Buehlmann: I do think one issue [00:12:00] that we’re encountering is more and more members that may not understand disability as well, or what the desires of people with disabilities are, and may listen to not just the person with a disability, they may be listening to their guardians or they may be listening to their parents. Not saying that they don’t know what the person with a disability wants, but if you want to go to the source, the source is the person with a disability. So I think one of the themes, and I think this is why it’s critically important for people with disabilities to be involved in these discussions and [00:12:30] doing this advocacy, is you’ve got to put yourself front and center. And you have to say, “This is what I desire, this is what I want. I want to live in the community, I want to live at home. I want to be able to work in an integrated environment. I don’t want to be paid subminimum wage.” And if they’re not hearing from people with disabilities about that, then that’s a problem. And I think what we’re seeing is sort of a return to sort of the old way of thinking, sort of pre-IDEA, pre-ADA. And people with disabilities should be [00:13:00] off to the side and not at the forefront. And so I think that theme is carrying over in a lot of the ways Congress and the administration are looking at these issues. And I think in terms of other themes, it’s, “We got to save money somewhere.” And their ideas of trying to save money is to cut programs, which actually in the long run, costs more. It costs more to be served in an institution than it costs to live and get served in the community. And [00:13:30] so we’ve really got to be making those cases. I think those are two themes that I’m thinking of. Stephanie Flynt…: Yeah, for sure. And I think that another theme really is just broader justice in the civil rights community, just not completely and fully understanding disability. And so I definitely think that if we’re not careful with everything going on, we definitely could regress back a little bit more into the medical model as opposed to the social model. And I think that some of the demonstration in the legislation [00:14:00] that could potentially be introduced, and of course that we are closely monitoring and making sure that we’re continually keeping an eye out. And of course, we’ll keep folks in the network apprised of those things. But all that to say, I think that’s kind of a demonstrated action when it comes to their understanding of what disability is. Alden Blevins: I love what you guys said, especially about people with disabilities being front and center and telling their own stories and determining, [00:14:30] telling the world what they really want and seek out in their lives. I think that that’s so important for people with disabilities to be in the driver’s seat. For those of you who don’t know, we do have a saying in the disability community that is, “Nothing about us without us.” So kind of speaking about some of the messages that have been happening in the last year, we know that a lot of things have become very polarized throughout the last year, 2025. What opportunities do you guys see for collaboration towards [00:15:00] a better future for people with disabilities? What efforts might be a good target for bipartisan support? Stephanie Flynt…: Yeah. I think for me, definitely always on the hunt for bipartisan opportunity. Because the truth of the matter is that disability, even though it is being portrayed as a partisan issue, it’s not a partisan issue. It’s a nonpartisan issue. And so just kind of keeping that in mind as we continue to do this policy work. I think [00:15:30] what it boils down to really, at least a part of it, is messaging. Because looking at the issues that are in the disability community, because they’re nonpartisan, I think that really, it comes down to it’s not about what you’re saying, it’s how you’re saying, it’s how you’re presenting it. When we’re talking to different offices, we want to emphasize different things that they are most concerned about or that may matter most to their particular constituency or the folks [00:16:00] with disabilities that they may serve. Those would be my things, but I definitely, even though it can be challenging at times, definitely just continuing to keep hope there. Eric Buehlmann: I mean, there’s always a lot of different things. And as Stephanie said, you have to sort of tailor your message around what people are interested in. I mean, things like the Transformation to Competitive Integrated Employment Act, I think there’s a large number of people, and we’ve seen it in the states, they’re phasing out the subminimum wage, even in some [00:16:30] very conservative states. And so that’s something that’s garnered bipartisan support, that people should be paid at least the minimum wage for the work they’re doing. And that they should be integrated into the employment environment and not just in segregated workshops. We were able to get a Republican co-sponsor for the Keeping All Students Safe Act this year, which would place some kind of federal restrictions on the use of restraint and seclusion in schools and provide money for [00:17:00] training, which is critically important so that the teachers know and the school personnel know what they do when they’re encountering tough situations. There’s a number of bills. I mean, ultimately disability is very bipartisan and it impacts everybody. So usually whether you’re a Republican, a Democrat or Independent, you either have a family member or know someone very close to you that has a disability. So you just got to frame the message right. Alden Blevins: I love that you guys both mentioned messaging and disability [00:17:30] being affecting everyone. That’s part of my core messaging that I always try to put out there, is that disability can come for anybody. You can be a person who has no disabilities one morning and your situation could be different by that evening, depending on what happens to you in your life. And even as you age throughout the lifespan, most of us are going to experience some degree of disability in our lives. So advocating for this [00:18:00] community now when you have the chance to is only going to benefit you when you inevitably become a part of it. I think that’s really important to remember. My kind of last question on this topic is just, what do you think you would want policymakers today to know most about our programs at the P&As? Stephanie Flynt…: I’m going to yield to the executive overseer to start. Eric Buehlmann: I mean, I think our members are hidden gems. I think that’s the biggest [00:18:30] thing, is that most people don’t know what a protection advocacy agency is and/or what it does. As I’ve said many times in my stories is I had met the Executive Director of the Vermont P&A for many times when I worked up on the Hill. Had no idea he worked for the Protection & Advocacy Agency. Talked to him about housing, talked to him about employment, talked to him about all these different things, had no idea that there was a Protection and Advocacy Agency. My second day at the job, I go into an NDRN board meeting and there he is, [00:19:00] sitting there. And I’m like, “Oh, that’s what a Protection & Advocacy Agency… Because I didn’t have a clue. So I think we’re sort of a hidden gem. And I think really, the big thing is that the P&As do a lot of work that other agencies can’t. We have these really strong… I hate saying we, but our members have strong authorities to go in and investigate and monitor for abuse and neglect. If that’s going on, they can go in unannounced. They could do these kinds of investigations that other places can’t. There are [00:19:30] story after story of the police being kept out of certain places or Child Protective Services or Adult Protective Services. But the P&A goes in and is able to sort of expose that abuse and neglect. And that’s really the important thing. And I think people just need to know they exist. But there’s more than just the systemic work. Individually, they are helping people around employment or education or accessible transportation and housing. So I just think there are ultimately hidden gems the more [00:20:00] you delve into it. And as you said, Alden, everyone’s going to become, in my opinion, a member of the disability community at one time in their life or not. Could be permanently, could be temporarily if you break your leg or something like that. And now all of a sudden, you begin to realize that yeah, curb cuts do make a heck of a lot of sense. And yes, automatic doors are very helpful and all those kinds of things. And so we just need to do a better job of sort of explaining the beauty of the work the P&As do and that [00:20:30] it’s not just these giant exposes of abuse and neglect, but there’s all the little individual work that they do that’s extremely important to families and people with disabilities. Alden Blevins: We know in this world that policy is never static. There’s always a lot coming at us, coming at you guys, to kind of figure out and think about how it impacts our community. So my next question is just what do we think might be coming in the landscape of 2026? [00:21:00] It’s hard to speculate, but what should we be looking ahead towards as a community? Eric Buehlmann: Election years are always a weird little duck. Stephanie Flynt…: Yes. Eric Buehlmann: Partly because Congress does not stay around that much, they like to go home and they like to campaign. Some would say they’re not here to do as much damage. But the administration’s still here, they could do plenty of damage. And so I mean, my expectation is there will not be [00:21:30] a lot that’s going to really occur. They’re going to do what they normally have to do, which is sort of the appropriations and try to get that done as well as they can before the elections. There may be some messaging bills that they try to work on, but I’m not expecting a lot of things to actually get passed and a lot of work to get done. But I think this gets back to the theme issue and that kind of discussion, which is you need to be laying the foundation for the members that are here now and those that are running, especially [00:22:00] in someone in a seat where a member’s retiring or if there’s an open seat. And you need to be making sure the candidates understand the needs and desires and wishes of people with disabilities so that when they do come here, they already have at least some based foundation. So I would really look at ’26 as you got to focus on funding because that’s going to have to happen no matter what. And then making sure that your candidates and then making sure that your members of Congress understand about disabilities so that when [00:22:30] they come back next year, that they’re really almost ready to get going on the issues of importance. Stephanie Flynt…: Yeah. Alden Blevins: So much of what we do is kind of playing a little bit of defense about whatever is going on in the larger policy landscape or the news cycle of that week. But we obviously also have our own policy priorities that we would like to see and that we would like movement on in the next year. So I was just going to ask, what are NDRN’s top three [00:23:00] public policy priorities? Eric Buehlmann: I think if you’re looking in the proactive world, that’s tough in this day and age. I think our policy priorities tend to be much more in the defensive world now, Which is, there’s sort of a 1A and a 1B. You always have the money aspect of it, the appropriations aspect of it, and making sure that our members have hopefully increased funding, but at least level funding. The second, as I talked about before, is our members have amazingly strong authorities [00:23:30] to sort of ferret out abuse, neglect, fraud and waste. And we got to make sure that those aren’t reduced. And so that’s sort of the other big thing. I think structurally, we’re looking at the administration and saying, “We need to make sure that disability is still centered here.” The Department of Education is extremely important for students with disabilities and the amount of work they do. And around employment because the vocational rehabilitation system is there. Health and Human [00:24:00] Services impacts people with disabilities in huge, humongous ways. And so we got to make sure that those structures stay strong, that are providing the training, the technical assistance, the support to all the different programs that support people with disabilities and that they’re strong. Alden Blevins: Yeah, absolutely. I heard education, I heard healthcare. I think these are all bread and butter issues for us and for the community at large. [00:24:30] It can just be tricky to decide when and where to focus your attention. Stephanie Flynt…: Right. And also too, again, going back to that, how do we mesh the priorities in a way that we could potentially try to work with folks and get stuff done? And I think that that’s kind of where that point of collaboration comes in. Figuring out what the priorities of various offices are and see, how can we kind of mesh ours together? Where’s the common ground? What can we work together [00:25:00] on in order to make things better for disabled folks? Eric Buehlmann: And I think as Stephanie said, this is where these relationships come into effect, because you have no idea what’s going to be the big issue of the day. Today it may be X, tomorrow it’s going to be Y. The day after it’s going to be Z, and the staff are just overwhelmed a little bit. But if you have those relationships with them, if something comes up and you need to get in touch with them, you shoot them that email, you send them that note [00:25:30] and they know who you are and they’re willing to look and listen to figure out what you’re saying and where it needs to fit in their priorities. They don’t know who you are, this gets back to the, if you’re not at the table, you’re on the menu, then they’re not going to understand why this is a problem because you’ve not laid that foundation. So that’s where those relationships come to be critically important, because you just never know what’s going to pop up. Alden Blevins: My next question is, what are kind of the strategies or things that [00:26:00] everyday folks can do to kind of help or support? There’s a lot of overwhelming information coming at folks on all sides. And it would just be really nice if we could know what would be most helpful in terms of getting that community support to advance our priorities. Stephanie Flynt…: I think for me, the biggest thing that I can think of there is just making sure that your voice is being heard and that you are able to kind of amplify your voice when it comes to these issues. [00:26:30] Making sure that you are reaching out to your senators and representative, things of that nature. Of course, there’s the number for the Capitol switchboard and we can certainly put that in the show notes if that’s helpful to people. But for everyday folks, it’s so interesting. I’ll be on Facebook and I’ll just see different things and it’ll be videos of people just calling their senators and representative. And it sounds scary, it sounds daunting, but I promise you, getting [00:27:00] constituent calls is definitely something that is super, super helpful in terms of advocacy there. So definitely, definitely recommend that. Eric Buehlmann: And as Stephanie said, take advantage of those action alerts, take advantage of those days. If you’re looking at your state and local legislatures, a lot of them have disability days where a number of groups will come together and they’ll go to the Capitol and they’ll talk up their issues. Take advantage of those. In terms of the federal, try to keep track of if they’re going to do a town hall or if they’re going to be having a [00:27:30] get together. And go and have a discussion with the staff and the members that are there. And then when it comes to the campaigns, get involved with the campaigns. Make sure that the candidates have some kind of disability platform as part of their work and what they’re doing. Because ultimately if you’ve, I’m going to say trained, trained them ahead of time, then when they come to Congress or they go into the state legislature, you don’t have to explain as much. You’re not having to spend your time explaining why this issue is important. [00:28:00] You get to jump to, “This is why we need to do this.” So you need to be working at those candidates. You need to be looking at their platforms and you need to be talking to them so that they know that you’re there. Alden Blevins: Absolutely. I think a lot of times people feel overwhelmed with just knowing how or why to help. And I love that you even mentioned people posting their calls onto social media, because I think that’s another avenue that folks can use. Talk to your friends, talk to your neighbors, talk to people that you talk with online about how these issues impact you [00:28:30] and your life personally. I think that hearing those stories from people with disabilities can be really impactful as well. All right, I’ve got some quicker round of questions just to kind of help folks get to know both you guys and your work. Stephanie Flynt…: Yay. Alden Blevins: The first one is just almost similar to two truths and a lie. If you could give me one myth and one truth about federal advocacy, what would you say? Eric Buehlmann: I think it’s sort of the flip side of the same coin. To me, [00:29:00] the myth that’s out there is, “My voice doesn’t matter.” And that, “Whatever I say isn’t going to be heard by the staff, isn’t going to be heard by the member and I’m not going to really have an impact.” It does. Again, as I said early on, staff are constantly looking for those sources of information. They cannot keep track of all the topics they cover, all the bills they have to do, all the differing appropriations they’re following. They can’t. They rely on the constituents to provide them information. And if you are a trusted resource and providing them good information, [00:29:30] you’ve got your in and they’ll understand and they’ll follow what you’re asking them to do as best they can. So I think that’s the myth, is that their voice doesn’t make any difference. To me, the flip side of that is the truth is it does make a difference. And so if you’re not engaged, then you’re automatically losing. The disability community needs to be and put itself front and center. Because as Alden said, people with disabilities are a majority of this country. You will eventually be a member [00:30:00] of the disability community. And so therefore, you need to make sure your voice is heard. And so I think the truth is your voice does matter, the myth is people think that it doesn’t. Stephanie Flynt…: I think for me, a myth that I would say, not as interesting as Eric’s, but I think a myth that I would say, and these are probably for people who are kind of newer or just more on the outskirts of things, is that a bill is going to pass overnight. That’s not how policy works. Usually it takes lots of reiterations of introduction [00:30:30] and stuff, but that’s how it’s designed. And so I think that’s kind of where my truth comes in or where the truth comes in for the myth versus truth, is that policy is designed to take a while, even though it can be frustrating at times, but that’s in order to ensure the appropriate checks and balances and whatnot. So no, you’re not going to enter in and pass a bill in two days. Hate to break into any hopefuls, but you know. Eric Buehlmann: No, that is a huge one. People think that policy moves at a lightning quick pace. [00:31:00] It is a snail. Stephanie Flynt…: Yep. Eric Buehlmann: It takes years. I worked eight years on election reform before we were finally able to get it through Congress. And reauthorizations, I mean, this is one of our smaller ones. The Assistive Technology Act program was last reauthorized in 2004. We finally got the next reauthorization done in 2021. So it moves slowly and you have got… I guess that’s another thing, sort of following up on what you’re saying. The truth is you have to stick to these people. Stephanie Flynt…: Yes. Eric Buehlmann: You can’t just say, ” [00:31:30] I talked about this once and it’s going to get done this year.” No, you’re probably back next year. Stephanie Flynt…: Not how it works. Eric Buehlmann: And you’re probably back the next Congress and you’re probably back the next Congress. So you will repeatedly have the same conversations. Stephanie Flynt…: Yes. Especially with staff turnover, too. There are going to be different staff members, folks may move back to the representative or the senator’s districts or their own home districts or change roles, what have you. But there can sometimes be a lot of that [00:32:00] turnover. But that can also be a good thing, too. Eric Buehlmann: But Stephanie, I think we’ve got another good truth and myth. Stephanie Flynt…: Oh, okay. Eric Buehlmann: Which is, the myth in my mind is if I feel like the member’s not supportive or following what I’m talking about and caring about disability, then it’s not worth my time. The truth is staff do a lot of work. Stephanie Flynt…: Yes. Eric Buehlmann: And you may encounter a member that is not really [00:32:30] interested in disability, doesn’t really care about disability, but the staff is very interested in disability. And so your message can get conveyed from the staff to the member. You may not always get everything exactly the way you wanted from the member, but you’ve moved him in a direction, or her, in a direction that they weren’t going to go without the staff. Stephanie Flynt…: Exactly, exactly. Staff definitely have a lot of influence when it comes to different member priorities and things like that, that might not usually be on their [00:33:00] radar, such as disability. Alden Blevins: Actually, I caught Eric saying something yesterday that I thought was so impactful. Somebody was expressing disappointment that their meeting was with a baby staffer. And I heard Eric say, “That baby staffer could be in charge in 10 years.” Stephanie Flynt…: I was going to say, like a Chief of Staff in five years- Alden Blevins: Yeah, you never know what inroads you’re making when you get into those rooms. And you should take the chance once you’re in that room, to make the case for people with disabilities. Stephanie Flynt…: Yes. Alden Blevins: This next one, I’m [00:33:30] hearing a lot of themes of perseverance, maybe having to stay on people, having to return year-to-year. This is just a silly question, but what is your Hill day fuel of choice? Is it coffee, is it tea? What keeps you going? Stephanie Flynt…: I think that mine is probably either, probably Celsius. And then I don’t know if y’all have ever had the Mary’s Gone Crackers, but I like to have little hummus things with me. And so I’ll do the Mary’s Gone Crackers with some hummus on the Hill. And so that’s really good to eat between [00:34:00] meetings and stuff, but they’re really good. They’re quinoa seed crackers, gluten-free, garlicky, basil. I don’t know, they’re really good, especially with hummus. So I guess for me, that’s my food and caffeine. Eric Buehlmann: And Stephanie no doubt, could tell any of everybody what mine is. Stephanie Flynt…: Anything gluten-free/unsweetened iced tea from McDonald’s. Eric Buehlmann: Yep, bingo. I’ve never had coffee in my life. Alden Blevins: Wow. Eric Buehlmann: Yeah, I’ve never had coffee in my life. Stephanie Flynt…: I thought you would at least- Eric Buehlmann: Nope, never had coffee in my life. Alden Blevins: Just not even curious? Stephanie Flynt…: Not a sip? Eric Buehlmann: I’m curious, [00:34:30] but I’ve never had it. I’ve now reached the age of, “Why should I now start?” Alden Blevins: This is so fair, because once you start, it’s hard to stop. Stephanie Flynt…: You’re not going to be able stop. Alden Blevins: It’s real hard to stop. Stephanie Flynt…: Especially when you find a roast that you really like. Eric Buehlmann: I’m a caffeine addict, don’t get me wrong. For many years it was Dr. Pepper, Diet Coke. Stephanie Flynt…: Diet Coke. Eric Buehlmann: Doctor said, “No.” Now I’m an unsweetened tea… Well, I’m not going to say always unsweetened tea, but it’s always usually some form of iced tea. Alden Blevins: [00:35:00] Yeah. And sometimes you sneak in the sweet tea as a treat, I assume? Eric Buehlmann: No, not really. I’m not a big fan of sweet tea. I find it too sweet. Alden Blevins: Wow. Stephanie Flynt…: You have to have the right sweet tea, though. Eric Buehlmann: Yeah, I’m not from the South. Stephanie Flynt…: I was going to say- Eric Buehlmann: I’m in Virginia, but I’m not the South. Stephanie Flynt…: They don’t make good sweet tea up in the DMV if you want good sweet. Actually, they just started carrying Milo’s at my local grocery store, so that’s what I recommend. Eric Buehlmann: I’ve seen Milos. Milos is good? Stephanie Flynt…: I love Milos, yes. Eric Buehlmann: Okay, I’ll have to get that one. Stephanie Flynt…: So good, yeah. I mean, it’s sweet, but it’s not too sweet. Anyway. Eric Buehlmann: See, I find it too sweet. I’ll [00:35:30] mix it with unsweetened iced tea at times. I grew my tea at home. And what I’ll do is I’ll pour a little lemon iced tea in and sort of mix it, but I find it too sweet. But yeah, I’ve never had coffee in my life. Coffee ice cream once or twice, but never- Stephanie Flynt…: Okay, but that’s really good. Eric Buehlmann: Nah, no. Stephanie Flynt…: No? Eric Buehlmann: No. Coffee smells great. I love the smell of coffee, but I’m not going to try it now if I can avoid it. Alden Blevins: Good for you. My next one [00:36:00] is just, what is your go-to story when speaking with folks on The Hill? Do you have a P&A story that you feel like you come back to? Do you speak about issues more generally or do you have a go-to story in your back pocket? Eric Buehlmann: Well, I mean, I think the one I always fall back on is the Kaufman House in Kansas. There was a place in Kansas. I think if you just Google Kaufman House in Kansas, you’ll find it. Basically, this is one of those examples where the P&A was the only one that got in. These [00:36:30] were a husband and wife that were running a, I guess I’d call it a group home, that were doing unspeakably horrible abuse and neglect of people with mental illness. And the state had been called in a number of times, the local people had been called in a number of times, and they just shut the door on them. The P&A went in and exposed the whole thing, basically showing what was going on there. They got convicted of a number of crimes, they were sent away to jail. To me, that’s the example that I will go [00:37:00] to a lot, is without the P&A, these people would’ve been just still going through abuse and neglect. I mean, I think the P&As are creating stories every single day, honestly. The number of reports that come out from P&As, we just got one from the Maryland… Maryland, wrong M. Minnesota P&A, about the use of seclusion with some amazing pictures of the various seclusion rooms in Minnesota that they had come upon. I think they’re occurring every single day and all these reports that are coming out. [00:37:30] Our members are in all sorts of facilities, just exposing abuse and neglect. Unfortunately, some of the stuff we really can’t talk about is they’re exposing the waste, fraud and abuse that’s occurring at times in the representative payee program because people aren’t using the benefits to the benefit of people with disabilities, to the beneficiaries. But the one, if you were going to ask me the one, it would be the Kaufman House. And Nancy Jensen testified [00:38:00] in front of Congress on the importance of the P&A program. She’s written some books on the issues that arose, but that would be the one go-to. Stephanie Flynt…: Yeah. I think for me personally, it really just varies from office to office and various priorities. I will say that one thing I do try to do before meeting with particular offices is I try to reach out to the P&A, just to see if there are any particular stories or any particular things that I should highlight going [00:38:30] on in their state for their senators or representative, or even if there’s anything specific in their district. Eric brought up the report that Minnesota did on restraint and seclusion. And one thing that staffers love is data. So if you’re able to kind of bring in a visual, say like the report or even send in a report of what’s been going on along with a story, along with data, that’s really going to get you far. And so those are things that I really [00:39:00] try to bring, just tangible stuff that they can take back to their higher ups in order to try to get different things up the chain, in order for us to get the support that we’re wanting to get from that particular office, whether the goal is co-sponsoring a particular bill or sponsoring something, or whether the goal is just general support or flagging something. Just making sure that you have those materials that folks can take back. Alden Blevins: Yeah, absolutely. And I [00:39:30] think what Eric said about the network generating stories all of the time, every day. Stephanie Flynt…: Yes. Alden Blevins: Where I sit, working in communications, is I try to share a story. At least every week, there’s a new, new story coming out about something that a P&A is doing, whether it be work related to abuse and neglect, whether it be work related to some states, they’re already talking about the Medicaid waiver programs and how they can apply some systemic advocacy to ensure that those are protected through the changes [00:40:00] coming in the Medicaid landscape. There’s just always something to be aware of that’s going on. And I think that really harnessing all of those stories together presents a really strong case for what our network is able to do. Stephanie Flynt…: Absolutely. Alden Blevins: Yeah. I’ve been told that maybe you’ll have a Hill day or appropriations pun and/or joke? Stephanie Flynt…: I always have a joke, you know this. Alden Blevins: Okay, so? Stephanie Flynt…: Oh my goodness. Alden Blevins: Let’s get a drum roll. Stephanie Flynt…: Yes. All right, [00:40:30] so it’s more of a question for Eric. Eric Buehlmann: Oh, no. Stephanie Flynt…: Are you ready? Eric Buehlmann: No, because we did not test this out beforehand. Stephanie Flynt…: Sorry, okay. How would you describe the appropriations process? Eric Buehlmann: How? Stephanie Flynt…: It’s fund. Alden Blevins: So much fun-d. Stephanie Flynt…: So much fun. Alden Blevins: So much fund. Stephanie Flynt…: Oh my goodness. Alden Blevins: Incredible. Stephanie Flynt…: But yes, that is my joke of the month. I’ll be here next month, assuming that I’m not kicked off the podcast [00:41:00] yet. Sorry, Michelle, you weren’t here for the joke, but I’m sure you’re actually laughing even though you pretend you don’t like them. Alden Blevins: Michelle is groaning from afar. Stephanie Flynt…: Yes. Alden Blevins: Yes. Eric Buehlmann: Stephanie’s puns get us through the day. Stephanie Flynt…: Yes, they do. See, I knew there was a… Yep, there we go. Alden Blevins: You got to laugh, you got to laugh. Stephanie Flynt…: Yes, exactly. Laughing is the best form of self-care when it comes to this kind of work, that’s for sure. Alden Blevins: Absolutely. It’s important to remember that congressional budgets and federal decision [00:41:30] making say a lot about whose rights are protected and whose are not, what voices are included, what voices are not. And I’m very grateful that I got the chance today to sit down with two of my amazing coworkers and hear more of their voices, get to share more about the amazing work that they do for our larger community. This has been National Disability Radio, where we highlight issues that impact people with disabilities. If you enjoyed this episode, be sure to subscribe and continue the [00:42:00] conversation at ndrn.org or anywhere you get your favorite podcasts. Thanks for listening. Until next time, let’s keep working together to create a world where people with disabilities can thrive. Stephanie Flynt…: Bye.

3. 

   5 Mar 2026

   “I Identify as Blind” disability pride, music and unmasking with Lachi

   On this episode of National Disability Radio (https://www.ndrn.org/issues/ndr/), we sit down with award-winning recording artist, advocate, and author Lachi for a powerful conversation about disability pride, music, and unmasking. Lachi shares her journey, from navigating the music industry as a blind artist, to founding RAMPD, a coalition amplifying disability culture across the industry. We talk about what it means to say “I identify as blind,” move beyond the medical and social models of disability into a cultural model rooted in identity and joy, and remind listeners that no one can defeat someone who hasn’t given up. From glam canes to Grammy stages, this episode is about claiming space, rejecting internalized ableism, and turning perceived flaws into flexes. Transcript: Alden Blevins: It’s Lachi? I feel very- Lachi: Lachi like Versace. Alden Blevins: Lachi like… Oh, I love that. Michelle Bishop: That is the best way to explain it. Lachi: I mean, but you know what I’m saying? Come on. Alden Blevins: Well, we’re really excited about having you today because we’re all music lovers in this group here. Michelle Bishop: Yes. Alden Blevins: We talk about music all the time. Michelle Bishop: So much. Lachi: Good, good, good, good, good, good, good. I’m in the right place. Michelle Bishop: Hi everyone. Welcome back to National Disability Radio, the official podcast of the National Disability Rights Network. I am Michelle Bishop, 1/3 of your podcast hosting team. Stephanie Flynt McEben: And I’m Stephanie Flynt McEben, public policy analyst here at NDRN. Alden Blevins: I am Alden. I am a communication specialist at NDRN and I am so excited today, like I mentioned, we’re all lovers of music, so we got a guest that I’m really excited about. Lachi is an award-winning recording artist and a recording Academy Grammy’s national trustee. She’s also a disability advocate who’s been breaking barriers in the music industry and beyond. She’s the founder of RAMPD, which by the way, is such a fun play name. I really love that. And the author of the upcoming book, I Identify as Blind. So without further ado, Michelle, you’ve got some questions to kick us off, I think. Michelle Bishop: Yes. We’re so excited to have you with us. As Alden said, we are. We’re huge music lovers. I’m pretty sure we spend most of our meetings where we allegedly plan this podcast just talking about music. So you’re absolutely in the right place today, but to get us started, I mean, you’ve been open about the fact, and I’m just really interested in this as a disability rights podcast. You’ve been really open about the fact that it took you some time to really embrace your identity as a blind and disabled woman, especially in the industry that you’re in that often really rewards conformity. Can you tell us a little bit more about that journey for you, both as an artist and as someone navigating just the world with a disability? Lachi: Okay. Yeah, for sure. Hey, everybody. Lachi here, Lachi like Versace. I am a Black woman with cornrows, chilling here in New York in my studio. I also identify as blind, I identify as neurodivergent, and I identify as an Aries. So do with that what you will. Michelle Bishop: All the important points right there. Lachi: All the important points like name, age, sign. Thank you. Okay. Yeah, but I’m really glad to be here. And thank you for that question, and thank you for having me. So music has always been a very integral part of my life of growing up. Where other babies would kick in the womb, when she was pregnant with me, I was playing the piano in the womb. I don’t know how she got a piano in there, but she’s not a liar, so I’m going to take her word for it. When I was super-duper young, I didn’t really have a lot of friends, especially because of the fact that I had differences and this and that. And so I would take to music to, I guess, understand the world better and have the world understand me better. I just knew how to express myself through song and it just said the things I needed to say. It was the prayer I needed. And because of music, I started to find confidence in how to speak and how to behave and how to act. And as I got older, when I was growing up, disability was not necessarily a thing people talked about a lot in schools and teachers didn’t know what to do. My parents didn’t really know what to do. And so I would always just turn to music. It’s actually right now I’m working on a children’s album because I think that kids need to hear music that has to do with disability and neurodivergence, as well as their parents as they grow up. When I got into college, I started wanting to do music, but I studied business and finance because when I told my parents I wanted to do music, they were like, “That’s not how you spell doctor.” because they are Nigerian immigrants and everybody else in my family went to either med school and blah, blah, blah. And I was like, “No, I want to do music.” But I did get a day job after school, after college, and didn’t love it because this girl is not going to exist behind a desk. So I ended up going to South by Southwest and I got signed actually from playing the guitar at a hole in the wall spot that nobody was at, except for this A&R apparently. So we got signed to an imprint under EMI, which was a major label back then, and we started touring and music then became my life. Now today, why wouldn’t I pay my respects back to music? I mean, it’s because of music that I was able to really lean into who I am, my disability, my confidence, et cetera. So because of that, because of how much music has given to me in my life, I’m here using music to give back to other people with disabilities. Now, your question was essentially, how do you sit here and try to bring about change for disability in an industry that is not only about conformity, but also about like, “Hey, pick me to exploit.” is essentially what the music industry is. You’re raising your hand to be exploited and that’s what kind of authenticity is that? But at the end of the day, music is some of the truest forms of storytelling. And I think to myself, just the way that hip hop has amplified Black culture and the way that country music has amplified rural culture and the way that different global musics have represented different global cultures. I want to use music to amplify disability culture. I want to use music to amplify disability stories and feelings that are difficult to put words to, that are words of the soul, which is essentially what music is. And so I started going to studios and realizing things weren’t as accessible as they should be. I started speaking with organizations and realizing things weren’t as inclusive as they should be. And the response I kept getting was like, “Oh, well, there’s nobody with a disability in the music industry, so why would we make these measures?” And so I have made it my life’s goal through RAMPD, which by the way, the best thing we ever accomplished was our acronym, not us working with the Grammys to get sign language on the red carpet, not us getting these partnerships with title, Live Nation, Spotify. I mean, we’ve done so much, not just for artists, but also for professionals. And we’ve started to realize something really interesting with the work we’ve done with RAMPD. We are getting people joining our membership who are director level folks, who are label owners, who are like the big wigs that write the checks, and they’re like, “I’m neurodivergent. I’m actually hard of hearing. I have a TBI.” And so when I originally set out, they said, “We don’t do disability inclusion because nobody’s disabled.” That was three years ago. Now I’m like, not only are there neurodivergent and disabled music professionals out here, but we all are. So really to conclude, it’s just that everyone is navigating trying to make it out in this world, but everyone’s masking. Everyone feels that they have to change some part of themselves to be as close as they can to what success looks like, be as close as they can to what “beauty” looks like, what winning looks like. But really all it is internalized ableism. And I say, as soon as we drop that internalized ableism and we really start to sit in who we truly are and we start to recognize our perceived flaws as flexes, that’s when we truly start to win. And so that’s what we’re finding out with RAMPD, that people are like, “You know what? I’m tired of navigating this difficult industry with the added layer of having to mask.” And so that’s why I do what I do. Michelle Bishop: Yes. And honestly, as ridiculous as it sounds that they say to you, “Oh, there aren’t any people with disabilities.” When I tell you, we see that in everything that we do. I do voting work at NDRN and we’ll have elections officials tell us, “This polling place isn’t accessible, but there aren’t any people with disabilities that vote here.” And it’s like, “What? You realize we’re everywhere and we do all sorts of things.” Maybe the reason they think there’s no people with disabilities here is because they’re stuck outside and they can’t get in because you didn’t make it accessible, just a thought. But I mean, it sounds like coming up against all that is really, correct me if I’m wrong, helped you to develop that identity and that disability pride in the industry. When did you first say, “I identify as blind.” and what did that mean for you? Lachi: Well, so when I first came into really doing the disability thing, really leaning in, I wanted to find out more influencers or thought leaders and such with disabilities. I didn’t really know that many people. This is pre COVID, 2018, 2019, that kind of thing. And so I came across an influencer, her name is Molly Burke, and we’re great friends now, but I didn’t know her back then. I had just seen her tagline and it had said, “I’m Molly Burke and I’m a YouTuber who happens to be blind.” And for some reason I was like, “I don’t know if I love the happens to be blind thing.” I was like, “Well, I’m proud of being blind. Blindness is part of my identity. I don’t just happen to be a woman. I don’t just happen to be a Nigerian. I don’t just happen to be all of the things I am.” And so I would go to… I was touring… We’re always touring and every time I tour and do a show, I do a comedic open where I just introduce myself, I do a quick self-description, et cetera. And in my self-description, I would say, and I don’t just happen to be blind. My blindness is part of my identity, has given me all of the opportunities I have, and it’s really made me a deeper blah, blah, blah. It was just too long. So I had punched it up to be, “My name is Lachi like Versace. She, her, I’m a Black woman with cornrows and I identify as blind.” And the interesting thing about that is people took onto it. They were like, “Oh, that’s cool, nice and punchy.” But whenever I would say it in front of a large crowd or like I’ve said it on interviews or during commercials, I would get this weird, I don’t know, pushback of like, you can’t identify as blind. Blindness is an identity. It’s a medical condition. Or they’ll be like, “Do you read braille or not?” Or they’ll be like, “We don’t want people to think trans blindness is a thing where you just have a blind identity.” And then you can be like, “Well, I’m blind today, so that’s my identity.” And I thought that was really fun. I was like, “Look, everybody’s upset. They’re talking about blindness though.” So I really leaned all the way into it. And I have to say, I am super proud of my disability identity. Was it music that brought me there? I think in a sense and in a way, like today I have a few songs, you guys are music lovers, I have a few songs out that really talk about my disability pride. I think that a lot of the times as we navigate the world, masking our disability, masking our chronic condition, our difference or whatever, we end up overcompensating. We end up building up this really, really thick problem solving muscle or this really, really thick how to get around things muscle and we overcompensate. When we’re finally accommodated, when we finally get to a place where we’re accommodated or we have the tools we need, we’re coming in like bulk as hell. We’re coming in with problem solving muscles. We’re coming in with all of these things that we had to build up because of navigating the world differently, because of every day working through this very difficult maze that is living a life unaccommodated, then when we finally are accommodated, then we are killing it and crushing it. And how could you not be proud of that? How can that not give you a sense of pride? So the songs that I would love for you guys to check out that are mine is I have a song called Life on Hard, which has gone viral several times on Instagram. I’m known as an Instagram rapper, which is like, what? Hello, I do disability advocacy. Look at that stuff. But anyway, so I have a song called Life on Hard, which is essentially about just winning the game of life, playing it on the hardest setting out here while people are still trying to consult the manual. I have another song called Professional, which is oftentimes when I walk on the stage, people see the cane and they’re like, “Aw, she’s going to do a song for us. Is this from Make a Wish Foundation?” And then I bust out these raps or I hop on the piano and I go ape on this piano and then they’re like, “Oh, snap. What? Okay.” And I’m like, “Bro, I’m a professional artist. I’m not object for pity to make you feel good because you felt weird on a Monday and you didn’t feel like getting up for work, but it’s like, she could do it. So can I.” I’m like, “No, I can do it. You most likely probably just can’t.” So that’s what that song’s about. And then there’s The Bag, and The Bag is just essentially like, I’ve been told no so much like, “No, you can’t. No, you’re not good enough. No, we don’t want you.” And I’m like, “You know what? Yes, I am good enough and I deserve everything. So I’m going to throw everything I deserve in the bag, which is everything.” I don’t know. I would not be the person I am if I didn’t love all parts of myself. And that includes my disabilities, that includes my neurodivergences and all of the other wacky, weird body jazz that I bring with me everywhere I go. Michelle Bishop: Lachi, can we maybe, do you and I just FaceTime each other every morning and hype each other up? Stephanie Flynt McEben: I was literally about to say the same thing. I would like in on a true call. Michelle Bishop: I don’t know if you know. Actually, I want to say quickly, I know some of those songs actually from social media, but they’re real. They’re so real. So people haven’t heard music, go check it out. I don’t know if you know one of our co-hosts, Stephanie is blind. You’re speaking directly to her soul right now. Stephanie Flynt McEben: I literally just texted them in our podcast group text and I was like, she’s totally speaking to my soul RN, but of course I don’t want to interrupt anything. Michelle Bishop: No, I know you’re dying to talk to her about the book, Stephanie, and take it away. Stephanie Flynt McEben: Yeah, no, absolutely, for sure. And as somebody who is blind and who also identifies as a blind person and definitely does not identify with the medical model of disability, clearly gotten to more of a social model. But yeah, in terms of going through that journey of accepting all of who you are and everything about yourself, for me, I mean, it took a minute, especially when you’re talking about your experiences as a child and I totally feel that. I was that girl playing the harmonica on the jungle gym by herself. Anyway, this is about you. This is not about me, but I’m just saying that I totally relate to you on a spiritual level. And given that, I would love to know, were there any particular moments when it came to writing the book that were particularly hard or healing? Because I mean, I think that we all know that it’s not always a linear journey. Some days are going to be harder than others. And so would love to get your perspective on that. And I think that our listeners would be interested. Lachi: Yeah, absolutely. The journey for me has been one of constantly unwrapping this amazing gift. I always try to use that as the visual, if you will, of you have this big present and you get to unwrap it and then you just keep getting something cooler inside and then you get to unwrap that and you get something cooler inside and you just keep unwrapping this beautiful gift that is yourself. But you don’t realize that when you first get the box, the amazing stuff that’s going on inside, and it takes time to get to it. So a lot of times growing up, I would kick myself in the butt of, I wish I had come to this when I was so much younger. I wish there were people out there when I was younger, role models that I could look up to when I was eight years old and pointing on the TV and saying like, “Okay, well, I mean, I understand that Ray Charles existed, but that’s not going to…” Stephanie Flynt McEben: Stevie Wonder is here, Ray Charles is here, but we need more of us. Hello. Lachi: We need more of us. Hello. Exactly. And so this time and place where I am right now is where I needed to be for this to work. So I can’t really kick myself in the butt of like, “I wish I had this. I wish I knew this so much earlier. I would’ve been so much further.” That kind of thing. You have to be where you got to be where you need to be. Even right now, this conversation we’re having right now is going to have been necessary for the next thing that is happening in our lives. And just the other day, I was hanging out with Queen Herby, who’s been one of my favorite more modern rappers. I just did a thing with Apl.de.ap. I have done some stuff with Black Caviar. Folks that I’ve looked up to, I’m having the opportunity to Snoop Dogg. I’m having the opportunity to work with these days because of the fact that I am here at the right time now. So when I was writing my book, we were peeling back all the layers. I’m a generally very positive and energetic, social butterfly type of person today. But it’s interesting, I wasn’t always this person and I had to unpack all the layers to get there. One of the biggest things that happens to me, so I’ve always been low vision. So I was born with relatively low vision and it stayed the same throughout my teens and early 20s. But one day I woke up and my sight was just gone. Boom. So the interesting thing is anybody listening would be like, “Oh my God, if I woke up and my sight was gone, I would just die or I would not know what to do. My life would be over.” Stephanie Flynt McEben: Yep. Heard that a million times. Yes. Lachi: But for me, it was weird because I was already low vision, so I was going from level one to the underwater level or whatever. So it wasn’t like that life changing of a thing. I was already using screen readers or Zoom text. I was already doing stuff of that nature. So I wake up blind and I’m just like, “Okay, I guess this is it. This is the day that they told me was coming.” What had ended up happening was my corneas had erupted. And so I went to the doctor and he was like, “You’re going to become completely blind. You’re going to go from this much worse vision than you’ve had to complete blindness over the course of time.” So here you go, here’s a coupon. Bye.” or whatever. So I’m like, all right. So I had decided at that moment that I wanted to start a bucket list. So I was like, okay, what are all the things I’ve always wanted to do before completely going completely blind? So I was like, let me go skydiving, let me go spolunking, let me go meet with people, meet with celebrities and just do all of the things I’ve always wanted to do before I lose my vision. So I went out and I did it. This is still me doing it. This is still me doing it. And so I say that because to people who say if I ever went blind, I would just die. Well, when I went blind, it made me want to live. And that’s what opened me up into being this person that I am today. Stephanie Flynt McEben: That is amazing. I genuinely love that. Lachi: We talk about charity model and propping disabled folks up as tools of pity. We talk about medical model, which is really just waiting around for cure, making the cure the hero. We talk about social model, which is a really good place to live in the sense of things are impairing if they’re not accessible. Society is impairing if it’s not inclusive. But honestly, if I have all of the things, like if I have all my tools, if I have all that I need and if folks are inclusive, then I’m still blind, but I’m not impaired. But I like to go a little step further into what is the cultural model. And so the cultural model is it’s not just a discussion of what society should and shouldn’t do. It’s actually a celebration of what you gain as a person who identifies with their disability or their neurodivergence, the things they need to overcompensate because they’re navigating the world a little differently, leaning into that. So let’s say for instance, deaf culture, sign language, and the fact that folks can have complete discussions outside of what we’re talking about, there is so much deaf pride out in these streets, that is a celebration of culture that comes out of disability. And for me, let’s say for instance, I have ADHD and it powers my one million and counting ideas. I have diagnosed OCD, which helps me carry out all those one million and counting ideas. I have diagnosed general anxiety disorder, which gives me my empathy and my excitement. And then I am blind, which when I have the tools I need, it gives me drive. It keeps me determined, it keeps me focused, and it gives me my dope ass glam canes. There was a girl and her mom, and she came up to me after a show and she was like, “Oh my God, your music was great.” I was like, thank you. She’s like, “Mommy, can I get one of those canes?” And then her mom was like, “Ugh, well, you have to be blind.” And I’m like, “Yeah, girl, you better want to be me.” Stephanie Flynt McEben: Yeah. We drive sticks. Anyway, sorry. Lachi: Yes. You know what? I speak softly and I carry a big old stick. Thank you. Stephanie Flynt McEben: Yes. Amen to that. Exactly. As somebody who considers themself a lifelong disability advocate, I never really thought about it in the sense of going beyond the social into the cultural. So thank you so, so much. We all learn something new every single day on this podcast, but I’d love to know a little bit more about, obviously you were very, very, very good at talking through these experiences in such a way that they are very relatable and easy to understand and that thing. So I’d love to pick your brain about the intended audience of your book. Who did you write it for? Other blind folks? Did you write it for, was it written for multiple audiences? Lachi: Yeah, honestly, I wrote it for the person who is masking. I wrote it for anyone who is tired of… Listen, let me put it like this. Let’s face it, disability is boring, a lot of the time it’s sad and it’s compliancy. We have to go the extra mile to make it fun because the actual truth of it is that the only reason it’s boring, sad, and compliancy is because society has kept it that way through its collective internalized ableism. And so my book is actually a humor book. It’s a pop culture book. It’s a comedy book. In fact, when we were talking to the publisher, it’s like, we should be putting this up against other comedic books, not necessarily disability books because it’s a book. I got so many jokes. I have dad jokes, they’re corny jokes, I have rap bars. I rap in a lot of the book just because I was like, “Hey, this rhymes.” I’m going to say it like a rap. We’re doing the audiobook right now, so I actually get to wrap it, which is really fun. Stephanie Flynt McEben: Oh, that is so cool. Oh my gosh. Lachi: Which is really, really fun. But really, honestly, what the book is what everything I do is it is using joy, soul, pop culture, jokes, humor, fashion, and just a really good time to celebrate disability, as well as community. So what you’ll find in this book is my story through my story, through historical deep dives, through interviews with some really, really cool popular figures and a really big deep dose of disability joy. And so a lot of folks who have disabilities, they will read this book and they’ll be energized. It’ll be like, “This is really great. I’m glad that I finally get to read a book that talks about disability in a positive way.” For blind specific folks, they might relate to a few of my stories because I talk about the day I woke up blind, I talk about when I went skydiving blind, I talk about just some of my interesting blind moments. But then I also talk about how I would go to red carpets and not know how to talk to anybody. So I’m in this amazing room with all these celebrities I can’t see and I’m just sitting on the wall. So I talk about some of the hard times too as well. But at the end of the day, really what the book is is an invitation in for somebody who feels a little different, a little awkward, has to mask, and just needed that invite in to talk about disability in a fun, joyful, celebratory way, to recognize that yes, that thing in you that’s different, that thing in you that society has told you you should view as a weakness and hide, you should be proud of. And I say this to people all the time. I say it in the industry, I say it to all my friends, I say it to anyone who will listen. I say it to my local barista and they come back and they say things like, “Oh my God, I’m so glad you said it that way. It turns out I have a titanium hip and I’ve never told anybody about that.” And that’s the vibe. The vibe is someone who was like, “I really needed this to be said to me this way, and now I am able to step all the way into my disability identity.” Alden Blevins: I love, especially what you said about joy. I feel like for me as an autistic person, my experience in the arts is that it is really a space where people who maybe don’t belong in other spaces or don’t feel like they belong in other spaces or are made to feel like they don’t belong in other spaces. I think that a lot of them really do find a safe space in music, in the arts, in theater. And I just wanted to ask, why do you think the music space is such a special one for you and why do you think it’s a place where other people with disabilities seem to flock together as well? Lachi: I mean, you hit the nail on the head. Counterculture, I mean, music often rewards counterculture. And then it eventually becomes mainstream and then we got to rebel against that. So music is a place where your soul can speak. And I think a lot of the times with disabilities, especially autism for me, I’m ADHD, OCD, a different neurodivergence situation, but a lot of the issue is communication. We don’t know how to say exactly what we need or whoever we’re talking to just doesn’t know how to hear what we’re saying. And so I think that what music does is it allows a soul to speak to a soul. A lot of the times music does this thing where you’ll be listening to a song and you’ll just be like, “That, that right there. That’s what I it me. That’s the thing I’m feeling.” type deal. Music has the ability to do that. And so for me, right now, this children’s album that I’m working on, the kids’ album, which is an album that is essentially R&B, pop, electronic, sort of the genres that I dance in for kids centered on disability and neurodivergence. Because what I want to do is be able to say, “Hey, I want you to point at that and say, that’s me.” And I think the easiest and quickest way to point at something and say, “That’s me also.” has been music. And so it’s why it’s been my strongest medium. Again, it’s not my only medium. I’m talking to folks through the book, I’m talking to folks through fashion, et cetera, et cetera. But again, music has been just the quickest, easiest point A to point B conversation easer, if you will, about disability. Another thing I also love to use is humor and comedy. So I make jokes all the time. They’re all bad. They’re all very not good jokes. I need to probably get a joke writer, but the fact that I’m having such a good time telling the jokes, I think I think is all that really matters. So I think both music and humor are just really, really great spaces for two people to get to relate to something that may be difficult to talk about. Stephanie Flynt McEben: Yo, if you need a joke writer, I’m your girl. I actually do a joke every single episode of this podcast. Michelle Bishop: Her jokes are not better than yours, Lachi. Don’t hire her. Stephanie Flynt McEben: My jokes are pretty bad. They’re worse than dad’s jokes. They’re like granddad jokes. Alden Blevins: Yeah. Stephanie is the queen of the jokes on our podcast. She always brings one through. Didn’t know that you were working on a children’s music album, and I think that’s really interesting. I actually used to be a teacher, so children’s music is something that’s near and dear to my heart. So I just wanted to ask, what would you want to tell to younger people with disabilities, younger disabled creatives about claiming space and being able to tell their own stories? Lachi: Well, one thing that I heard from someone else, I don’t remember who it was. I think it was- Michelle Bishop: Jordan? Lachi: Yes, Jordan. He’s the one that said this. Michelle Bishop: I love him. Lachi: Yeah, he’s so funny. I met him at a… What did I meet him at? The Webby Awards or something. But anyway, no one can ever defeat someone who hasn’t given up. And for some reason that hit me, and I don’t even think he was trying to say it that deep. He was just saying a joke or something. But I took that and it was like, no one can ever defeat someone who hasn’t given up. So at the end of the day, you are really the only one who can end whatever you’re trying to get. Because as long as you are still going for it, it is still still there. It’s like a Schrodinger’s cat. It’s like as long as you’re still running for it, that opportunity is still there for you to have. The opportunity is never lost as long as you’re still going for it. And people can tell you, people can take your shoulders and tell you to go right. People can take your shoulders and tell you to go left. But until you take your own shoulders and go in the direction that your heart, your soul, your passion, your fire, desires, that is when you truly begin to live. And so I say personally, lean into that. I hear from a lot of younger, especially creators with disabilities. I mentor a lot of folks, tons and tons of folks. It’s one of the things I love to do the most. But what I love to tell folks is you are going to be the best you. And that you is going to include all of the different parts of who you are, but it is especially going to include you leaning in to the things that make you different and unique as unique selling points. Earlier I talked about how people try so hard to be the “definition of beauty”, definition of success, definition of whatever. Everyone’s trying to be this reference man. Everyone’s trying to be as close as they can to the reference man. And if I’m as close as I can to the reference man, then I’ll be successful or then I’ll get this job or then I’ll get this gig. But the truth of the matter is when we look at all of the people that are doing all of the big things, they’re “eccentric”. They’re “weird”. They did some big different idea that no one was thinking about and everybody fell into their trend. The further away you are from the reference man, that is when you start to win. That is when you’ll start to see success. That is when you’ll start to feel much better about yourself. That is when you can wake up in the morning, look in the mirror and say, “I am fine.” When you are able to accept all of those different freckles of yourself that are as far away from the reference man as possible, because guess what? There is room outside of the barrel for everyone to win if they are all being their unique self and running their unique purpose. That’s what I would tell to young disabled creators. Michelle Bishop: That’s amazing. Almost feel like we should stop there, but I have so many follow-up questions. Lachi: Listen, I’m here to drop as many mics as they will let me keep breaking. Michelle Bishop: I was wondering how you see the conversation around disability and inclusion and evolving these days. And a lot of our listeners are people with disabilities or people who have other even multiple intersecting identities in which they experience barriers as well. What does allyship look like to you? Lachi: This is one of my favorite questions. So yes, we have folks with disabilities and we have folks who want to work with people with disabilities, want to help a friend with a disability, want to make sure they don’t say the wrong thing to a person with a disability, neurodivergence, chronic condition, mental health condition. That’s not an ally. Wanting to help a person with a disability is not an ally. To me, wanting to support someone with a disability, that’s an ally in the very basic definition of allyship. Here’s what I think an ally is. To answer the question, I got to do two things. One, talk about the disability umbrella. So the disability umbrella encompasses so many forms of disability. It is neurodivergence, which is ADHD, dyslexia, OCD. It is mental health conditions like anxiety, depression, bipolar. It is someone who learns a little differently. It is someone who has explosive situations like anger management. It is someone who has substance abuse disorder, maybe somebody who drinks too much or uses different substances. It is chronic back pain. You know what I’m saying? It is asthma. It is EDS. It’s POTS. It is long COVID. It is different complications that you gain after pregnancy. It is different complications that you gain as you age. It is different complications you gain through menopause. It is temporary. It is breaking your arm and wearing a cast. It is seasonal depression. There is nobody on this earth that is not within the disability umbrella. And I don’t mean that you’re going to grow into it. I don’t mean in the future. I mean right now. Whether you identify as a person with a disability or not, you have disability identity because you have experience in your body disability. And when you figure that out, then you’re an ally. Allyship is seeing yourself through the other person because you can’t look through someone else’s eyes unless you can see yourself in them. And you can’t see yourself in disability until you recognize the disability identity within yourself. All of a sudden, and I say this and people are like, “What? I say this, but I’ve seen this. I’ve seen it happen. I’ve seen people who did not associate themselves with any form of disability or anything and they’re just like, Oh, them. Oh, I’ll help them. We have a conversation and then we have a follow-up conversation and then we’re drinking and then all of a sudden they’re telling me all their disabilities and then they’re walking a little different when they encounter disability. It’s no longer a them thing. And so that’s what an ally is. People with disabilities are also allies. I am an ally to the deaf community because I recognize though I’m not deaf, I see the having to navigate the world differently in you of myself. So that’s how I define an ally. An ally is someone who understands their own disability identity and can see it in others. Michelle Bishop: Don’t mind me over here just taking notes. Stephanie Flynt McEben: Literally. Oh my gosh. Lachi, thank you so, so, so much for being with us and taking time. I know that your website, lachimusic.com is one of the places where folks can stay up to date on all of the latest and greatest things that you’re up to. Is there anything else in particular you would like to plug for our listeners? Lachi: Like you said, LACHI, L-A-C-H-I M-U-S-I-C. I’m on the internets everywhere. Instagram, Spotify, check out the old music. If you’re a creator, a music creator or professional with a disability, check us out at RAMPD, R-A-M-P-D.org. Or if you want to donate or if you want to partner with us over at RAMPD, please do. If you are a cane user, whether you’re a blind cane user or you use Mobility Cane, check out glamcanes.com, get your canes bejeweled. I Identify as Blind, our book is out on Penguin Random House, imprint called Tiny Reparations by Phoebe Robinson, who is also a comedian. So we’re out here all writing very funny books. So please check it out. And lastly, listen, try to find moments in your day of disability joy. And when you find that moment, take a picture of it or write it down so that you can go back to it and live for those moments. So thank you guys so much for having me on this podcast. It’s really been a blast getting to talk at you about all things I identify as blind. Alden Blevins: I love it. I was over here taking notes too because I just found so much of myself in what you were saying and so many things were poignant and empowering. I, as an autistic person, try to be an ally to other parts of the disability community myself. And that’s something where I’m always trying to put myself in the shoes of another person and what they might experience. So I think that’s really powerful. We were so grateful to be able to connect and learn more about you, Lachi. Lachi: Yes, yes, yes. So honored to be here, guys. Michelle Bishop: Before you head out, Lachi, do you want to hear one of Stephanie’s grandpa jokes? Lachi: I was going to say, I was like, “Let’s hear one of these granddad jokes.” Let me see. Stephanie Flynt McEben: Okay. This might be- Michelle Bishop: Okay, do it. Stephanie Flynt McEben: … a granddad joke. Okay. Where do spiders like to get their information? Lachi: The web? Michelle Bishop: That would be something to do with web. Stephanie Flynt McEben: But what kind of web? Lachi: Wow. Really? You are fired from being my comedy writer. You are fired to be my comedy writer. I was rooting for you too. I was like, let’s just… Please. Stephanie Flynt McEben: I wouldn’t even get to the punchline yet. Michelle Bishop: Worldwide web? Stephanie Flynt McEben: It is the worldwide web. Michelle Bishop: Oh. Stephanie Flynt McEben: It’s fine. It’s fine. My wife warned me not to tell that joke this month and I didn’t lose it. Michelle Bishop: Oh my gosh. I’m so glad you stuck around for that part. Lachi: As I live and breathe. Thank you guys so, so much. This has been so much fun and I will see who else I can tell that joke to. And go ahead and just to help you out, Stephanie, I’ll go ahead and embarrass myself by telling that joke to others. Stephanie Flynt McEben: Not my best work, but that is allyship. Yes. Michelle Bishop: Oh my gosh, Lachi, thank you so much. And everyone, please lachimusic.com. Check it out. Listen to the music, read the book. Alden Blevins: Speaking of the worldwide web, this has been National Disability Radio. We celebrate stories, leadership, and talent of people with disabilities. If you enjoyed this episode, be sure to subscribe, share, and continue the conversation with us on that worldwide web at ndrn.org or anywhere you get your favorite podcasts. Thanks for listening and until next time. Stephanie Flynt McEben: Bye.

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