Not Just Patients

About Not Just Patients

Hi! We’re Caitlin Rich and Clarinda Cerejo, Co-Hosts of Not Just Patients, a global podcast that aims to bring stakeholders together and break barriers to meaningful patient involvement in healthcare. We both live with rare diseases, are EUPATI Fellows, and work in healthcare research and communications. Over the past two and a half years, we have hosted in-depth conversations with a range of healthcare stakeholders to examine how healthcare can become more inclusive, collaborative, and effective. We were recently interviewed by the World Medical Journal (http://chrome-extension//efaidnbmnnnibpcajpcglclefindmkaj/https://www.wma.net/wp-content/uploads/2026/04/WMJ_2026_02_WMJ-Interview-with-Experts-in-Patient-Advocacy-and-Engagement.pdf), won the Acquisition International Non-Profit Organisation (https://www.acquisition-international.com/winners/not-just-patients/)Award for Excellence in Driving Patient Engagement 2025, and were named Patient Advocacy Podcast of the Year in the Corporate LiveWire Awards 2025/2026. Our guests are patient advocates, healthcare professionals, industry representatives, and other stakeholders who interact with the health system at large. Each of our guests brings in a unique perspective on patient engagement and shares stories of initiatives they’ve championed or been involved in. We will soon be launching a special series on Underserved Communities in Healthcare. The series will explore what meaningful patient involvement looks like for communities that healthcare systems too often fail to adequately see, hear, or design for. This includes children and young patients, disabled and neurodivergent people, LGBTQIA+ communities, racial and ethnic minorities, and people from lower- to middle-income countries. Have feedback or suggestions for us? We'd love to hear from you! Email us at info@notjustpatients.com or find us on LinkedIn.

Publisher

Caitlin and Clarinda

Category

health & fitness

Language

en

Explicit

No

First episode

2 Apr 2024

Latest episode

23 Oct 2026

Latest episodes

33 episodes in the feed.

1. 

   23 Oct 2026

   Low- to Middle-Income Countries: Underserved in Healthcare | Benjamin Akilimali Myatsi

   Welcome to another episode of our series on Underserved Communities in Healthcare, where we are focusing on the needs of people in low- to middle-income countries. Caitlin and Clarinda are joined by Benjamin Akilimali Myatsi, Founder and President of the Association Congolaise du Vitiligo in the Democratic Republic of the Congo (DRC). Having lived with vitiligo since childhood, Benjamin has experienced stigma, misunderstanding, and isolation. Those experiences led him to patient advocacy and ...

2. 

   6 Oct 2026

   THE LGBTQIA+ COMMUNITY: Underserved in Healthcare | Carter Hemion & Simon Stones

   Welcome to this episode focused on the LGBTQIA+ Community as an Underserved Community in Healthcare! In this episode, Caitlin and Clarinda are joined by Carter Hemion, a rare disease patient advocate, author, and artist, and Simon Stones, a patient and caregiver advocate and healthcare communication specialist. Carter lives with a connective tissue disorder and multiple intersecting identities, including being transgender, non-binary, queer, and asexual. Their advocacy began in child...

3. 

   21 Sept 2026

   DEFINING Underserved Communities in Healthcare | Ashish Rishi

   Welcome to the launch episode of our special new series on Underserved Communities in Healthcare. On this episode, Caitlin and Clarinda are joined by Ashish Rishi, Founder and CEO of Unwritten Health. Ashish has dedicated his career to making healthcare more inclusive, not as a moral cause, but as a practical necessity. He serves as a member of the Scientific Advisory Board for IHI-READI, a Horizon Europe initiative on health equity and research infrastructure. By consistently asking 'WHO IS...

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Spotify

5.0 / 5

7 ratings

Podcast Authority Score: 23 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

34

Social presence

0

YouTube

0

Engagement

32

Contact Not Just Patients

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.