It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
This week Taylor and Liz revisit their Rare Disease and Family Planning mini-series. In this episode, Taylor shares some exciting updates on her journey. We also revisit Liz's story. Support the show Want to support and connect further with Taylor and Liz? Follow and connect with us on Facebook and Instagram! Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you! Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-...
31 May 2023
Life Update from Taylor & Liz
Taylor and Liz use this week's episode to provide an update on what is new with their lives over the last several months. Support the show Want to support and connect further with Taylor and Liz? Follow and connect with us on Facebook and Instagram! Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you! Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support!
16 Apr 2023
Advocacy
In this week's episode, Taylor and Liz discuss their own path in identifying ways to be advocates for their Rare Disease. When choosing ways to help your rare disease community, consider identifying advocacy areas that interest you and can have a broad impact. Support the show Want to support and connect further with Taylor and Liz? Follow and connect with us on Facebook and Instagram! Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you! Visit our ...
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Apple Podcasts (US)
4.9 / 5
15 ratings
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