A vibrant exploration of the personal stories behind Congenital Heart Disease (CHD) - including family, physician, and researcher experiences.
One Rare Heart
Claim This Podcastby Derren Raser
5.0(17 reviews)
5 episodes
Updated Daily
Accepts GuestsHas Sponsors
Podcast Overview
A vibrant exploration of the personal stories behind Congenital Heart Disease (CHD) - including family, physician, and researcher experiences.
Language
🇺🇲
Publishing Since
8/17/2020
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Recent Episodes
June 27, 2022
Wild West of 3 Dimensions - How 3D Printing is Changing the World of Pediatric Medicine
A complex open heart surgery is an undertaking full of inherent risks, during which many things hang in the balance. But, what if some of that unforeseen risk could be mitigated? What if the surgeon could hold your heart in their hands, study every detail, visualize every structure, even practice their operation on your heart before they ever made an actual cut, or even entered the operating room? What if? Recent state-of-the-art developments in 3D imaging and 3D printing have bee...
November 29, 2021
Kabuki Syndrome, Part 2 - A Treatable Cause of Intellectual Disability
It has long been thought that the root causes of intellectual disability cannot be treated or cured. However, a growing body of research suggests that a rare genetic condition known as Kabuki syndrome (which we explored in the previous episode) might offer a path forward in being able to treat, and partially reverse the effects of some types of intellectual disability. On this episode of One Rare Heart we speak with a physician/scientist at the forefront of this research, Dr. Hans Bjornsson, ...
October 4, 2021
Kabuki Syndrome - "I Sing The Body Eclectic"
Kabuki syndrome is a very rare and unique genetic condition whose wide-ranging effects can touch almost every organ system in an affected person’s body. Remarkably, it shows up differently in every person, and the ramifications can spin seemingly endless and often mysterious medical challenges for individuals and their families. On this episode of One Rare Heart, we hear about the profound ways this disease has affected one family and their daughter. We also talk with a geneticist at Boston C...
5 total episodes available
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Frequently asked questions
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- What is One Rare Heart?
- How often does this podcast release new episodes?
This podcast updates daily.
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This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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