originALS: more than ALS
Claim This Podcastby Flynn Mason & Hayley King
Podcast Overview
<p><b>originALS: more than ALS</b><b> steps into the world of the incredible people affected by Amyotrophic Lateral Sclerosis or ALS. In each episode, hosts Flynn Mason and ALS Canada Community Ambassador Hayley King highlight firsthand experiences of one special guest. From the challenges of diagnosis to the passions that make each one of us unique, you’ll hear stories of hope for all that is possible, even in the face of a devastating disease. Whether you’re here for inspiration, to learn more, or to feel the power of a community coming together, </b><b>originALS: more than ALS</b><b> is for you. </b></p>
Language
🇺🇲
Publishing Since
12/12/2025
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Recent Episodes
May 31, 2026
Jodee Karlowsky - Speak Your Truth
Send us Fan Mail "...even if my voice waivers, I'm still going to speak out and I'm speaking out because Greg can't speak." There are many words one could use to describe Jodee Karlowsky - creative mind, passionate leader, persistent advocate, dedicated caregiver, CALI grad, animal lover, instant grandma - the list goes on. But if you ask Jodee what brings the most joy to her colourful life, she'll tell you it's her husband, Greg. After 15 years of marriage and 9 months of m...
April 30, 2026
Paula Trefiak - Everything In My Power
Send us Fan Mail “I am now proving this disease is treatable.” 75% of Paula's extended family on her father's side is affected by familial ALS. Diagnosed in 2016, Paula has found life-saving treatment in the form of Tofersen, the first gene specific ALS therapy. She now works in advocacy at provincial, national, and global levels to develop expedited pathways in the drug approval process, striving for a future where ALS patients can access treatment before their lives are taken. Join us as we...
March 31, 2026
Shawn Penno - What You Can, While You Can
Send us Fan Mail "I want to do it. Give me a minute. I’m looking disabled, it might not be graceful, but I want to do it. Or at least try to do it.” Shawn Penno is a bright light of positivity in the ALS community. After his diagnosis in 2023, Shawn has become an active participant in ALS advocacy and research, determined to move the needle towards a cure in any way he can. Guided by his mantra, "Do what you can, while you can," Shawn is a beacon of hope for his fellow PALS. Join us as we dis...
8 total episodes available
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Frequently asked questions
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- What is originALS: more than ALS?
<p><b>originALS: more than ALS</b><b> steps into the world of the incredible people affected by Amyotrophic Lateral Sclerosis or ALS. In each episode, hosts Flynn Mason and ALS Canada Community Ambassador Hayley King highlight firsthand experiences of one special guest. From the challenges of diagnosis to the passions that make each one of us unique, you’ll hear stories of hope for all that is possible, even in the face of a devastating disease. Whether you’re here for inspiration, to learn more, or to feel the power of a community coming together, </b><b>originALS: more than ALS</b><b> is for you. </b></p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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