About Pathfinders Podcast - Life and the world with a muscle-weakening condition
Pathfinders Neuromuscular Alliance is the first organisation in the world run by and for adults with muscle-weakening conditions. Our Pathfinders talk about life and the world from the perspective of an adult with a muscle-weakening condition, in a society not made with us in mind.
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 6: Food
In the sixth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss food; their Italian and Indian favourites, cooking and eating out.
5 Aug 2022
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 5: Independence
In the fifth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss independence; what it means to them, acceptance, the impact of the care crisis on them, their dream home, pros and cons of living with parents & Pathfinders PA training (https://www.pathfindersalliance.org.uk/courses/).
8 Jul 2022
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 4: Representation
In the fourth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss representation in the media and video games; their favourite movies, role models, theatre accessibility, opportunities in the arts, disabled video game characters and the potential for development disability sports games and accessing games.
24 Jun 2022
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 3: Mental health
In the third episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their mental health.
10 Jun 2022
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 2: Social life
In the second episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their social lives; what they like to do, accessibility and limitations, driving, PA support, buses and planes, favourite destinations, tips for flying and their funny holiday stories.
27 May 2022
Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 1: Football
In the first episode of the Pathfinders Podcast meet Sanjeev and Gianluca and hear them talk about their love of football; their teams, stadium access, favourite players, favourite football moments, tips for disabled football fans & powerchair football.
26 Jan 2021
Pathfinders Podcast Episode 3: Disability in Movies
We talk about The Upside, Untouchable, The Fundamentals of Caring, Inside I'm Dancing, Cinemability, Ironside, When You Remember Me, Me Before You and Crip Camp. Our thoughts on how disability is portrayed.
10 Jul 2020
Pathfinders Podcast Episode 2: Living Life to the Max
For our second episode Phillip and Jon are joined by musician and adult with DMD Alex James, who talks to us about his new single Direction and life as a musician with DMD.
Alex James' single is available on spotify here: https://open.spotify.com/album/0LNlndSYFJr4yG1N9BKS4d?si=KOR2GODbTVawGIW0zp2kWA
10 Jun 2020
DMD Pathfinders podcast with Phillip Carroll - Life and the World with Duchenne
In our pilot podcast episode, DMD Pathfinders discuss life and the world with Duchenne. Phillip Carroll hosts Jon Hastie and Mark Chapman, cofounders of DMD Pathfinders who talk about their personal journey with Duchenne, travel, road trips and flying with a wheelchair.
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