Patient Empowerment Program: A Rare Disease Podcast
Hosted by Stan Crooke · n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
5.0from 49 ratings
- 99
- Episodes
- 19
- Transcribed
- 49
- Ratings
- Daily
- Cadence
- 2022
- First episode
About Patient Empowerment Program: A Rare Disease Podcast
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply the efficiency, versatility and specificity of antisense technology to charitably provide experimental antisense oligonucleotide (ASO) medicines to treat patients (less than 30 patients) that are the result of a single genetic defect unique to only one or very few individuals. The advantage of experimental ASO medicines is that they can be developed rapidly, inexpensively and are highly specific. n-Lorem was founded by Dr. Stan Crooke, who founded IONIS Pharmaceuticals in 1989 and, through his vision and leadership, established the company as the leader in RNA-targeted therapeutics. The podcast is produced by n-Lorem Foundation and hosted by Dr. Stanley T. Crroke, who is the Founder, CEO and Chairman. Our videographer is Jon Magnuson. Our producers are Kira Dineen, Jon Magnuson, Kim Butler, and Amy Williford. To learn more about n-Lorem, visit nlorem.org. Contact us at podcast@nlorem.org.
- Publisher
- n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
- Category
- education · health & fitness · science
- Language
- en
- Explicit
- No
- First episode
- 16 May 2022
- Latest episode
- 10 Sept 2026
Latest episodes
19 of 99 episodes have a transcript.
10 Sept 2026TRANSCRIPT
Sneak Peek of the 2026 Nano-rare Patient Colloquium
26 Aug 2026TRANSCRIPT
Realities of the Nano-rare: Siblings, Unfairness and Hard Truths with Sally Jackson
5 Aug 2026TRANSCRIPT
Silencing ALS with Neil Shneider
Inside a recent episode
Sneak Peek of the 2026 Nano-rare Patient Colloquium
Published 10 Sept 2026 · Transcript excerpt
[…] And what we then have to do is find a way to affect only the mutant. And that is the very first time in the history of drug development that such specificity has ever even been considered In somebody's dreams. And we do it routinely. So the two boys you talked about have two different pathogenic mutations. And the way we do what we do for allosal activity is then we look at silent mutations that happen in all genes. You know, you have about 300 million of those in your genome. So the larger the gene, the larger the RNA, the more likely you're going to have many of these, what are called SNPs, the single nucleotide variants or SNDs. […]
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See plansWho has been a guest on Patient Empowerment Program: A Rare Disease Podcast
Names identified in recent episode analyses. Showing up to five guests.
- Brady Huggett
- Sally Jackson
- Neil Shneider
- Becky Quick
- Bill O’Sullivan
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
- Apple Podcasts (US)
- 5.0 / 5
- 35 ratings
- Spotify
- 5.0 / 5
- 14 ratings
Contact Patient Empowerment Program: A Rare Disease Podcast
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Questions about Patient Empowerment Program: A Rare Disease Podcast
Who hosts Patient Empowerment Program: A Rare Disease Podcast?
Stan Crooke host the show. Published by n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen).
How often do new episodes come out?
The show publishes daily, based on its RSS feed.
Does Patient Empowerment Program: A Rare Disease Podcast take guests?
Yes. Guests have been identified in episode analyses.
Where can I read transcripts?
19 of 99 episodes have a transcript on Pod Engine. Full transcripts are available with a Pod Engine plan.
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