Welcome to the Cripademia Book Club Podcast. We are a chronic illness and disability reading collective.
Quarterly and intersectional (with the occasional non-book episode), we explore in community: chronic illness, disability, medical history and crip culture. Hosted by Long Covid Advocacy.
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đ â Long Covid Advocacy: https://www.longcovidadvoc.com/â
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Thank you for listening and supporting sick and disabled-led work
06 - On Fairy Tales & Disability: Discussing Disfigured with Amanda Leduc | Cripademia Book Club
Join us for a conversation with Amanda Leduc, author of Disfigured: On Fairy Tales, Disability, and Making Space.
Weâll explore disability and difference in fairy tales, the Disneyfication of darker stories, representation, and what happens when disabled people reclaim the stories weâve been told about our bodies.
đ Disfigured by Amanda Leduc
đď¸ Cripademia is Long Covid Advocacyâs chronic illness and disability book club.
Chapters
0:00 Introduction
0:39 What inspired Disfigured?
5:33 Fairy tales and disability
9:10 Why are transformations so central to fairy tales?
11:08 Can fairy tales have happy endings without transformation?
14:40 How fairy tales shape attitudes towards disabled bodies
18:09 The ânerd transformationâ and beauty conventions
20:36 Disney, fairy tales and what we lose
25:30 Disney as a capitalist empire
29:16 Stories of collective transformation
37:37 Complex embodiment and Long Covid
39:00 The medical model, social model and complex embodiment
43:34 Disability is dynamic
45:22 Surgery, transformation and making space
50:44 Listening rather than measuring
53:52 Who is writing better stories about disability?
56:49 Disability in Star Trek, Pixar and Inside Out
58:41 Can changing stories change culture?
1:01:01 Disability representation and social change
1:01:39 Whatâs next for Amanda Leduc?
1:02:45 Goodbye
Amanda's website (https://amandaleduc.com/)
Cripademia on IG ( https://www.instagram.com/cripademia/)
Cripademia book club on Fable (https://fable.co/club/cripademia-with-claire-478820715680#about )Long Covid Advocacy (https://www.longcovidadvoc.com/)
#Cripademia #AmandaLeduc #Disfigured #FairyTales #DisabilityRepresentation #Bookclub #Disability #LongCovid
29 May 2026
05. On Medical Misogyny with Dr Elinor Cleghorn
In this episode of the Pedantic Zebra Book Club, weâre joined by writer and cultural historian Elinor Cleghorn to discuss her acclaimed book Unwell Women: A Journey Through Medicine and Myth in a Man-Made World.
Together we explore the long history of medical misogyny, the cultural myths that shaped womenâs healthcare, and the enduring legacy of dismissal, disbelief, and diagnostic inequality. From hysteria and psychosomatic labels to chronic illness and modern medical gaslighting, this conversation examines how historical narratives continue to shape patient experiences today.
We also discuss the emotional and political impact of writing Unwell Women and why reclaiming these histories matters now more than ever.
If youâre interested in medical humanities, feminist history, chronic illness, disability, healthcare justice, or the politics of medicine, this episode is for you.
Donât forget to like, subscribe, and hit the bell to catch more of our disability and chronic illness-focused literary discussions.
Chapters
00:00 Introduction & Elinor Cleghornâs Story
02:17 Lupus, Misdiagnosis & Medical Dismissal
08:40 The History of âHysteriaâ in Medicine
15:30 Womenâs Pain & Diagnostic Bias
21:45 Autoimmune Disease & Gender
30:55 Why Chronic Illness Is So Often Disbelieved
34:42 Medicineâs Problem With Complexity
35:31 Falling Through the Cracks of Specialisms
37:52 Medical Education & âItâs Anxietyâ
39:46 What Medical Misogyny Actually Means
41:49 Endometriosis & Systemic Failure
43:01 The NHS, Chronic Illness & Structural Problems
44:38 Why Doctors Need Time to Sit With Uncertainty
46:04 ME/CFS, Incline Village & âYuppie Fluâ
49:54 Psychologising ME & âMyalgic Nervosaâ
51:05 Long Covid, ME & Chronic Illness Stigma
53:15 Why Medicine Must Change for Chronic Disease
55:14 Exploitation, Blame & âFairy Tale Diagnosesâ
56:18 Reimagining Healthcare Around Patients
58:10 Elinorâs New Book: A Womanâs Work
58:29 Reclaiming the Radical History of Mothering
15 Mar 2026
04. On Medical Education with Prof David Putrino
In this special episode for Long Covid Awareness Day, Dr Rupert Higham (https://profiles.ucl.ac.uk/62063-rupert-higham), lecturer in Learning and Leadership from the Institute of Education at UCL speaks with Professor David Putrino (https://profiles.icahn.mssm.edu/david-f-putrino), neuroscientist and rehabilitation specialist at the Icahn School of Medicine at Mount Sinai - and general legend!
Professor Putrino is also the Nash Family Director of the Cohen Center (https://icahn.mssm.edu/research/cohen) for Recovery from Complex Chronic Illnesses (CoRE), where his team researches and treats infection-associated chronic illnesses (IACI) including Long Covid, ME, and chronic Lyme disease.
Since the start of the COVID-19 pandemic, Professor Putrino has become a leading voice in both the clinical care and research of Long Covid. He is also helping to develop medical education programmes for clinicians on infection-associated chronic illness as part of the Long Covid Open Medical Education Program (https://polybio.org/projects/open-longcovid-medical-education-program/) with Polybio and at the Icahn School of Medicine at Mount Sinai.
In this conversation we discuss:
⢠Long Covid and the emerging science of infection-associated chronic illness
⢠The overlap with ME
⢠The challenges patients face in healthcare systems
⢠Why traditional rehabilitation models can fail these conditions
⢠The urgent need for better medical education
For timestamps on specific questions, if you wish to break the interview up or view your personal most important sections, you can see them here:
0:00 Introduction
1:32 What drew David Putrino to Long Covid
4:53 How medical education has failed Long Covid and ME patients
14:19 Medical textbooks and patient experience in books
21:52 The problem with âmedically unexplained symptomsâ
27:09 Why we see optional educational programs
33:10 How to embed Long Covid in under/post-grad training
33:30 Putrino's top three changes for medical education
41:01 How to reduce infection risk
44:27 How patients can navigate difficult doctor visits
55:16 How Long Covid education is spreading internationally
1:00:21 Q&A PEM vs Fatigue
1:02:51 Q&A Relationship between Long Covid and ME
1:05:32 Q&A Dysautonomia, Gut Problems and Nutrition
1:09:12 Q&A Help for diagnosis for MCAS
Cohen Centre Living Clinical Guidelines for Infection-Associated Chronic Conditions and Illnesses on the HSS Website (https://www.hhs.gov/lyme/index.html)
Download Infection-Associated Chronic Illnesses Provider Manual (https://www.coresinai.org/manual)
13 Mar 2026
03. On ME Representation with Laura Elliott
Welcome to a special interview with Laura Elliott, author of the gripping near-future thriller Awakened. We dive into the storyâs chilling world of sleeplessness, collapsing civilisation, and a small group of scientists grappling with the consequences of their own creation - and explore the bookâs thoughtful representation of ME and chronic illness.
The Pedantic Zebra Book Club, is our disability and chronic illness reading collective.
IMPORTANT NOTE: Weâve moved our book club over to Fable - download the app and find us in Clubs for friendship, community & discussions.
đ Join Pedantic Zebra on Fable (https://fable.co/club/pedantic-zebra-book-club-with-cripademia-478820715680#faq):
đ Books discussed: Awakened by Laura Elliott (https://www.theportobellobookshop.com/9781915998903)
đ Read an extract (https://reactormag.com/revealing-awakened-by-laura-elliott/)
6 Jun 2025
02. On Medical Silencing with Dr Rageshri Dhairyawan
Welcome to our second Pedantic Zebra book club video interview! Here we have an insightful and fascinating talk with Dr Rageshri Dhairyawan, author of âUnheard: The Medical Practice of Silencingâ, our spring read.
Our discussion dives deep into what medical silencing is, the all too real issue of disease prestige, how doctors do (or donât) deal with uncertainty, give a moment to AI in medicine and moreâŚ
Handy Links:
Join the Pedantic Zebra book club on GoodReads (https://www.goodreads.com/group/show/1254946-the-pedantic-zebra-book-club)
Follow along on our social media with the hashtag #pedanticzebra
Details on the book club (https://www.longcovidadvoc.com/post/the-pedantic-zebra)
More about âUnheardâ and Dr Dhairyawan on her website (https://www.drrageshri.com/)
Podcast also available on YouTube (https://www.youtube.com/watch?v=lP6Byvwepf8) and Spotify (https://open.spotify.com/episode/1D3cx39DScLxJ1fzgKNugb?si=yAGEw36qTBO6cP_-EAwqZA)
8 Mar 2025
01. On Pseudoscience with Dr Jonathan Stea
Welcome to the first-ever Pedantic Zebra book club pod! In this episode we interview Dr Jonathan Stea, Adjunct Professor in the Department of Psychology at the University of Calgary and practising psychologist. 'Mind the Science - Saving Your Mental Health from the Wellness Industry' is his current book that we will be discussing. Pseudoscience is something that people with chronic illness are constantly having to deal with, so we will be discussing this topic and more...
You can join the Pedantic Zebra book club on GoodReads here:https://www.goodreads.com/group/show/1254946-the-pedantic-zebra-book-club
And/or follow along on the Long Covid Advocacy social media channels with the hashtag #pedanticzebra
More details on the Pedantic Zebra #bookclub:https://www.longcovidadvoc.com/post/the-pedantic-zebra
To find out more about âMind the Scienceâ and Dr Stea you can visit his website & social media:https://www.jonathanstea.com/
X https://x.com/jonathanstea
Instagramhttps://www.instagram.com/dr_jonathan_stea/
Facebookhttps://www.facebook.com/drjonathanstea/
#bookclub #jonathanstea #pedanticzebra #pseudoscience #misinformation #disinformation #conspirituality #longcovid #chronicillness #disability
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