About People of Precision Health: A Series by Vibrent Health
Research leaders who are building genomics or precision health programs know that it’s important to engage and enroll large numbers of participants to build a human cohort that offers diversity, objectivity, and statistical relevance. People of Precision Health interviews leaders in precision health who are facing – and solving – real challenges as they build population genomics programs. We explore the obstacles and opportunities along the path that get us closer to real novel discoveries and the future of healthcare.
How Community Engagement Drives Health Disparities Research in Cancer
How do you approach underserved communities for collaboration in your health research? With humility and flexibility, says Dr. Katherine Tossas, a cancer epidemiologist and Director of Catchment Area Data Access and Alignment at Virginia Commonwealth University (VCU) Massey Cancer Center. As part of our People of Precision Health Podcast, Vibrent Health recently interviewed Dr. Tossas in her work engaging communities and catchment areas in cancer research as it relates to health disparities.
As a native Puerto Rican, she has used her experience to develop some incredibly useful perspectives and approaches in approaching underserved communities. Some of these included sharing resources with communities, not having preconceptions about communities, understanding the limitations of research data in telling the full story, and more.
31 Aug 2023
Addressing Barriers to Cancer Research Participation For Underserved Populations
Getting participants to participate in your research is difficult, especially in oncology. Throw in the diverse perspectives, experiences, and the complexity of navigating cancer care, and it’s clear that there is no one-size-fits-all approach.
So, how do we address the barriers to cancer research participation among patients, especially underrepresented populations? How do we create partnerships with underserved communities to foster more trust, greater recruitment, and better retention rates among these populations? Should participation in research be discussed in tandem with front line treatments as a patient begins their care journey in assessing and treating malignancy?
In this episode of People of Precision Health, we sat down with Porscha Johnson, PharmD, CPGx to address these questions.
10 Aug 2023
Improving Survey Completion with Skillful Methodology
How do health researchers design surveys that make it easy for participants to answer? How do we avoid survey fatigue, non-response, and inaccurate answers? In our latest episode of People of Precision Health, our resident Survey Methodologist Megan Ruxton, PhD, addresses these questions and more to show us the science behind asking questions and gaining responses.
20 Jun 2023
Increasing Patient Access to Cancer Research, Care, and Pharmacogenomics
How can the latest insights in pharmacogenomics be folded into clinical cancer care? According to Dr. Jai Patel on our latest episode of People of Precision Health, it’s a matter of integrating data into clinical workflows, empowering patients with access to research participation and resources, providing clear and actionable results, and breaking down barriers that have made cancer research and care traditionally difficult.
23 May 2023
Engaging Elderly Populations in Genomics Research with Digital and Multi-modal Methods
Can digital and multi-modal approaches succeed in engaging aging populations for eConsent and data collection? According to Dr. Sofiya Milman, Associate Professor of Endocrinology and Genetics at Albert Einstein College of Medicine, the answer is yes.
We sat down with Dr. Milman for this episode of People of Precision Health to talk about the SuperAgers Family Study, and how she and her collaborators have cultivated several strategies and digital tools to power their recruitment, data collection, cross-institutional collaboration, and participant engagement.
25 Apr 2023
To Translate Genomics to Clinical Care, Get Practical
Key to understanding how genetics impacts healthcare is understanding its effect for every patient involved. In this episode of People of Precision Health, guest Dr. Daniel Judge discusses the “In Our DNA SC” study sequencing the genes of South Carolina’s incredibly diverse patient population—sharing the challenges of such an effort and the importance of genetic counseling for improving healthcare and patient wellbeing.
17 Mar 2023
Population Genomics is a Lifelong Relationship
Imagine if we could predict serious diseases years before they occur—what would be the impact for patient care? The key is in understanding genetics. In this premiere episode of the Vibrent Health podcast series, People of Precision Health, our guest Howard McLeod discusses the HerediGene program and its mission to sequence the genes of over 500,000 participants toward predicting and preventing disease.
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