PEP Talks from ISPEP
The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
Seth D. Ginsberg: Not just every patient’s friend, now every PEP’s Inspiration!
In this episode, Seth D. Ginsburg, co-founder of Creaky Joints and the Global Healthy Living Foundation (GHLF), shares his journey from patient advocate to industry leader. Driven by personal and family experiences with arthritis, Seth built a community that now reaches millions, championing a human-centred approach rooted in empathy and trust.
Seth explains why effective patient engagement demands long-term relationships rather than short-lived campaigns. He calls on professionals to build genuine bridges between patients and the healthcare industry, arguing that authentic engagement is "good ethics, good science, and great business." Finally, he tackles the industry's biggest challenges: avoiding performative advocacy, proving business value to leadership, and ensuring patient insights translate into real-world changes in protocols and access pathways.
29 May 2026
Building teams, trust and transparency: The Rebecca Vermuelen way!
This episode features a conversation between host Emma and Rebecca Vermeulen, a VP at Roche Genentech, who clarify that the PEPs community and ISPEP are complementary, non-competing organisations working to raise industry standards.
Moving from pharmacy into medical affairs, Rebecca built key capabilities at Roche—including MSL teams, publications, call centres, and a global patient partnership team. Both she and Emma emphasise choosing purpose-driven roles over linear CV-building.
Navigating large organisations requires resilience and adaptability. Supported by the Healthcare Businesswomen’s Association (HBA), Rebecca rejects traditional masculine styles in favour of authentic, emotional leadership.
Finally, they highlight vulnerability and openness regarding neurodiversity as essential tools to build psychological safety, noting that leaders should give teams the space to fail, grow, and lean on industry peers during setbacks.
12 May 2026
TIffany Patrick on the marathon ‘Mile 19 Magic’ of professionalising patient engagement practices
‘Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity’.
In this Pep Talks episode, Emma and Tiffany Patrick (Amicus Therapeutics) discuss the maturation of patient engagement. Tiffany highlights how Amicus embeds patient perspectives into executive decisions, reflecting a wider industry shift where patients are now treated as co-creation partners and expert evidence generators.
Key takeaways include:
Strategic Value: The field is professionalising, with a focus on measuring impact and aligning with new FDA guidance on patient preferences.
Career Advice: Tiffany encourages practitioners to seek non-profit experience and remain intentional about their therapeutic settings.
Future Outlook: While AI presents new opportunities, it must be managed with empathy. The speakers conclude that patient engagement is nearing a "marathon finish," supported by new academic and certification standards.
Who has been a guest on PEP Talks ISPEP
Names identified in recent episode analyses. Showing up to five guests.
Marlena Vincent
Danielle Alstat
Dr Anthony Yanni
Alexandra Charge
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Spotify
5.0 / 5
1 ratings
Podcast Authority Score: 16 / 100
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YouTube
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