The PiCC Lounge Podcast brings you conversations at the forefront of patient involvement, engagement, and healthcare innovation. Each episode features insights from patient advocates, healthcare professionals, and experts who are working to create more inclusive, collaborative, and sustainable health systems.
At PiCC United, we believe patients should not only have a voice in healthcare – they should be co-creators in the decisions that affect their lives.
Join us as we explore how stronger patient partnerships can transform care and inspire change across the globe.
Have fun!
Susanna Van Tonder: Disability and Inclusion in Patient Advocacy
Join Susanna Van Tonder, patient expert, psychologist, advocate, and disability rights activist, as she shares her personal journey into patient engagement and discusses how she’s empowering young people to get more involved today
9 Oct 2025
Meet Beatrice Credi from ELPA
Beatrice, the Head of the Brussels Office for European Liver Patients Association, speaks to us about the organisation and explores feel is the biggest opportunity and potential challenges for patient involvement. Listen to her perspective on how the digital transformation of healthcare could reshape the landscape and how to ensure involvement remains meaningful.
28 Sept 2025
Jenny Bright ICHOM
Dive into an enlightening discussion with Jenny Bright from ICHOM (International Consortium for Health Outcomes Measurement). She introduces the organisation's work in standardizing health outcomes and reveals what she sees as the biggest opportunity, or challenge, for patients in the years ahead. Jenny also delves into authentic engagement, pushing for better representation and ensuring a diverse array of patient voices shape the future of healthcare.
23 Sept 2025
Keith Berelowitz from PRXEngage
Tune in to listen to Keith talk about his organisation PRXEngage and their aim to support, signpost and guide patients into feeling more confident about taking part in Clinical Trials. Keith also shares his view on the biggest opportunities for patient involvement in the years ahead
15 Sept 2025
Mandy Daly Irish Neonatal Health Alliance
Mandy from the Irish Neonatal Health Alliance introduces herself and explores the broad scope of their vital work supporting families, advancing research, and advocating for better neonatal outcomes.
24 Aug 2025
Donna Rubenstein - PAN
Join Donna's talk about the role of PAN, the Patient Advisors Network. She shares her thoughts about the opportunities open to the growing network over the coming years.
20 Aug 2025
Patient Engagement in Practice
🎙️ Podcast intro
In this episode, we are joined by Vera Pinto Gomes from Associação Crohn Colite Portugal.
She shares her thoughts on what patient engagement really is and why it is so important – not just for patients, but also for the healthcare system and society as a whole.
How can patients' voices become an active part of decision-making?
Why is it crucial that patients are not only heard but also involved in the development of treatment, research and health strategies?
Vera tells us much more about this in today's conversation.
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