PKD Chronicles: Navigating Life with Polycystic Kidney Disease

About PKD Chronicles: Navigating Life with Polycystic Kidney Disease

Welcome to the PKD Chronicles: Navigating Life with Polycystic Kidney Disease. Each episode offers honest conversations, expert insights, and real stories from the PKD community to help guide, support, and inspire you on your PKD journey. Whether you're newly diagnosed with PKD, navigating the challenges of the disease with a loved one, or working in the medical or research field to improve patient outcomes, PKD Chronicles is here to inform and empower the PKD community. This monthly podcast is produced by the PKD Foundation and presented generously by Otsuka Pharmaceuticals. For more information and resources on PKD, please visit pkdcure.org.

Publisher

PKD Foundation

Category

health & fitness

Language

en

Explicit

No

First episode

13 May 2025

Latest episode

7 Apr 2026

Latest episodes

3 of 12 episodes have a transcript.

1. 

   7 Apr 2026TRANSCRIPT

   Ahead of the Curve: Timely Transplants for Better Kidney Health

   Host Dr. John Smith interviews patient advocate Jane Doe about the benefits of preemptive kidney transplants for improved long-term health.

2. 

   10 Mar 2026TRANSCRIPT

   Beyond the Kidneys: Understanding PKD Side Effects

   Host [Host Name] interviews Dr. [Guest Name], a nephrologist, discussing the wide-ranging side effects of Polycystic Kidney Disease beyond kidney function.

3. 

   13 Feb 2026TRANSCRIPT

   PKD Lifestyle Essentials for Wellness

   Host Jane Doe shares practical, evidence-informed lifestyle strategies for optimizing health and well-being while living with Polycystic Kidney Disease.

4. 

   6 Jan 2026

   Nourishing Families: A Dive into Nutrition and Cooking

   In this episode, we journey into the world of nutrition and cooking, exploring what it truly means to nourish our families well. We begin by unpacking general nutrition guidelines, drawing insights from current research on the role diet may play in managing PKD, and explaining what is both evidence-based and safe. Then, we roll up our sleeves and head into the kitchen to explore both the joys and challenges of preparing nourishing meals for you and your loved ones. Listen today as we blend science with culinary creativity, serving up practical tips and real-world insights to support your family's PKD journey. For more resources and information on PKD, visit pkdcure.org (https://pkdcure.org).

5. 

   4 Dec 2025

   Family Planning and PKD: What to Know at Every Stage

   Host Dr. John Smith interviews Dr. Jane Doe, a leading nephrologist, about family planning considerations for individuals with Polycystic Kidney Disease across all stages of parenthood.

6. 

   10 Nov 2025

   Exploring Genetic Testing in PKD

   Host Dr. John Smith interviews geneticist Dr. Jane Doe about how genetic testing revolutionizes understanding and personalizing treatment for polycystic kidney disease.

7. 

   7 Oct 2025

   What You Should Know About Tolvaptan

   Host Dr. John Smith interviews Dr. Jane Doe, a leading nephrologist, about tolvaptan's history, mechanism, and impact on polycystic kidney disease treatment.

8. 

   9 Sept 2025

   Understanding Clinical Trials and Registries in PKD Research

   Host Dr. John Smith interviews Dr. Jane Doe, a leading nephrologist, about how participating in clinical trials and registries accelerates vital research for polycystic kidney disease.

9. 

   13 Aug 2025

   Measuring Progress: Understanding TKV in PKD Management

   Listeners are invited to delve into the intricacies of Total Kidney Volume (TKV) and its role in tracking the progression of PKD. Discover how TKV is measured, what it signifies for disease progression, and its implications for treatment decisions. The episode explores treatments that impact TKV measurements and offers guidance on how patients and caregivers can effectively communicate with their healthcare team about treatment options. Listeners will gain expert advice and empowering insights on engaging with healthcare professionals to navigate the complexities of managing PKD and monitoring TKV effectively.

10. 

    10 Jul 2025

    Empowerment, Support, and Connection While Navigating PKD – Part 2

    Host Dr. Anya Sharma interviews patients Lisa Smallwood Belk and Alix Piccirilli about practical ways to connect, participate in trials, and advocate for the PKD community.

11. 

    12 Jun 2025

    Empowerment, support, and connection while navigating PKD - Part I

    This episode explores empowerment, support, and connection strategies for individuals navigating life with Polycystic Kidney Disease.

12. 

    13 May 2025

    PKD and Emotions: Real Talk for Young Warriors

    This episode addresses the emotional challenges faced by young people living with Polycystic Kidney Disease, offering strategies to cope with grief, build resilience, and navigate mental health hurdles.

Inside a recent episode

Ahead of the Curve: Timely Transplants for Better Kidney Health

Published 7 Apr 2026 · Transcript excerpt

[…] So the next question that I often answer for my patients is, what is end-stage kidney disease? So end-stage kidney disease is when your kidney disease progresses to a point where they can no longer do their primary function. And you are at a point where you need a kidney replacement therapy. So when I talk to my patients, and I'm also a very structured person, I try to simplify things for them. Kidneys have three primary functions and four secondary functions. And if your kidneys are unable to do the three, any of the three primary functions is when they get to a point when they need a kidney replacement therapy, either in form of dialysis or transplant. […]

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

7 ratings

Spotify

5.0 / 5

1 ratings

Podcast Authority Score: 10 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

7

Social presence

0

YouTube

0

Engagement

32

Contact PKD Chronicles: Navigating Life with Polycystic Kidney Disease

Guest appearances

Does not typically book guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

Questions about PKD Chronicles: Navigating Life with Polycystic Kidney Disease