The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.

Powerhouse Podcast
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The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.
Language
🇺🇲
Publishing Since
2/26/2024
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Recent Episodes

November 6, 2025
Powerhouse Podcast: Making Sense of Mito - FBXL4-Associated Mitochondrial Disease
<p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">Introducing a special episode of the Powerhouse Podcast: Making Sense of Mito - FBXL4-Associated Mitochondrial Disease. This special edition episode spotlights researchers and the years of scientific work to understand FBXL4 alongside the stories and perspectives of parents of children impacted by FBXL4-associated mitochondrial disease. Helping to Make Sense of Mito are our co-hosts: two researchers from Washington University in St. Louis, Keri-Lyn Kozul, PhD and Hannah Pletcher, and mito mom/podcaster/foundation co-founder, Susan Geoghegan.</span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">This special episode bridges the gap to tell the story of FBXL4, bringing together the "team" working toward treatments, including the patient families and the scientists</span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">FEATURED GUESTS · Janice Belcher, mom to Juliet · David Alsina, PhD, Laarson Lab at Karolinska Institute, Sweden:</span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto"><a href= "https://ki.se/en/people/david-alsina">https://ki.se/en/people/david-alsina</a></span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">o The Laarson Lab: </span><span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa1U1eS1CQ2tXRGdBZlg2QVo3RkJpNkRNZXFQZ3xBQ3Jtc0trUkpXRXZickFYVXFFZml6dWluWmtYZC1YMHNhdkU0dXY5V2k4bWg3SjRkb09ySy1QdnhvUnd0V0JreEM1dkF3UDI5aVFvOFB6QzNpd1RGaHN4aEtTVU42dDFzT2lvaGNaUkx2dmRjbUdGc3UwZVlKbw&q=https%3A%2F%2Fmolmet.ki.se%2Fnils-goran-larsson&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://molmet.ki.se/nils-goran-larsson</a></span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto">· Mike and Susan Geoghegan, parents to Lorelei and Benji · Julia Pagan, PhD, Pagan Lab at University of Queensland, Australia:</span> <span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbHBmUTVRRUVaemNZZWpoZDN3QnYzTXlDX2FMQXxBQ3Jtc0ttNW9USFRQcVlwLUdCd2FvQXFMVDQwYWlOa1BCQnpxdmw4MnZkdFZKUVpleXhTZWp5WUkwMGROMXloSW9qN0EyUGtKZFhMYTNqN1d5X0Znbm9qVlNDalNhOTdtRkRmWHNnM25QUnJKVnVZV2REd2hyQQ&q=https%3A%2F%2Fbiomedical-sciences.uq.edu.au%2Fprofile%2F6099%2Fjulia-pagan&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://biomedical-sciences.uq.edu.au...</a></span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">o The Pagan Lab: </span><span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbncxZTdoZlg0UmxxVlpFdF9ZMlduQzFsY1R3UXxBQ3Jtc0ttbG5Odm9GUThNOHNLZTBwNTAxQUZSOUxjUHhkamdLQ3FKRGcxRndBb0FJZFpzSkFMTlNvX05nRlVJSy1KQ2VOMjJNTVVvWHRGUWJIdGpmcUpyS0lvSHpsNFhscE9hTDlRZGtDc2JDZHBjcUlTNnNBQQ&q=https%3A%2F%2Fbiomedical-sciences.uq.edu.au%2Fresearch%2Fgroups%2Ftargeted-protein-degradation&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://biomedical-sciences.uq.edu.au...</a></span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto">· Natalie Niemi, PhD, Niemi Lab at Washington University, St. Louis, MO, US:</span> <span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbU5VYjVKMXdqWWpKLWlQY2J0b2lqYVhqeW56UXxBQ3Jtc0tsYkVKNnB3TE5FZWF0RUVXLWVBbXRqNUZvMXF3YmpBWjBVeGZGUWJlNHNSWktaMnBEV0NpdkZlWGdpU1RkZzRDZXB6MzFOMDMyZS1fVWRmVFd2TW0taVFfVERPUUFxMTZPQkwzRFpfMVQ1QWhvQnZBcw&q=https%3A%2F%2Fbiochem.wustl.edu%2Ffaculty%2Fniemi&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://biochem.wustl.edu/faculty/niemi</a></span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto">o The Niemi Lab:</span> <span class= "yt-core-attributed-string--link-inherit-color" dir="auto"><a href= "https://www.niemilab.com">https://www.niemilab.com</a></span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">· Kevin and Courtney Kline, parents to Emery Special thanks to the families who contributed photos of their children.</span></p> <p><span class="yt-core-attributed-string--link-inherit-color" dir= "auto">REFERENCED IN THIS EPISODE Apricity Hope Project:</span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto"><a class= "yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqazB3b3cxTHB5aFQtWm5UdHVYVUg3QS1xMXNYUXxBQ3Jtc0tsSlgyU3NGZDY1cEp3WFJ1UVhIRENxZGU1ajhjSXk3THBjRmpRbkdkV3h5SURfS2JmTVBraElBU3gxZzRad1c2d2xjLVBYLXcwUW1GZkY5bWVLM0dLM00yQ1dERWxsQzhzWk5FMHktUnBibDgxS01RTQ&q=https%3A%2F%2Fapricityhope.org%2F&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://apricityhope.org</a></span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto">When Autumn Comes:</span> <span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqazFCYnktVC1PSktvSDdFTWhESHJsbjhUWGxzUXxBQ3Jtc0tuSUxTTGdCVUwwN0ZoUl9FZ21rekZJTEN4b2YySV92ZDJaUkRQc0pEUGRiV2FOR3dQX3p1WVFpTVhVUWNidU9na01rRGhPNVMyLXFHSEVEMjY1Mzl2R18wdVNZTmpabjlPbm5TVk9IUG1BeGNYSWkzRQ&q=https%3A%2F%2Fapricityhope.org%2Fautumn%2F&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://apricityhope.org/autumn/</a></span> <span class="yt-core-attributed-string--link-inherit-color" dir= "auto">Live Like Lorelei: Amazon link to purchase UMDF's Mitochondrial Medicine Conference:</span> <span class= "yt-core-attributed-string--link-inherit-color" dir= "auto"><a class="yt-core-attributed-string__link yt-core-attributed-string__link--call-to-action-color" tabindex="0" href= "https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbFBwcW5iaXhTM01nc1o2eDBoek91N3ltc0NTZ3xBQ3Jtc0ttZVRiSWh0dFRmVnpwTU9ZVnRwR1JLZ3FQZjQwOXUxVjlkbHdyMjUxOWFYS2kwbmxadEpqM3hCZHVpRXYtemY2XzhpNThGWnphOHNEbG1uTXhTbHJkWGVfOGhQQlpTU0xRZncyaThueDM4UmtsbVgzQQ&q=https%3A%2F%2Fumdfconference.org%2F&v=6wO2IC-arpk" target="_blank" rel= "nofollow noopener">https://umdfconference.org/</a></span></p>

October 8, 2025
POWERHOUSE Oct 2025: Team Activate Charity Runners for Chicago Marathon
<div class="x_elementToProof" data-olk-copy-source="MessageBody"> Our Powerhouse Podcast for October features Morgan Crowley, DC, a chiropractor from Michigan, and Diego Santos, a medical student at Geisinger Commonwealth School of Medicine and Researcher at CHOP. Both of these incredible panelists have been training, fundraising, and spreading awareness on UMDF's #TeamActivate for the Bank of America Chicago Marathon on Sunday, October 12 -- all in service to our community with mitochondrial diseases. To them, the marathon is a bonus. It's the cause -- the mission -- that is primary. We can't be more grateful and motivated by two people who care for patients with #mitochondrialdisease in their professions AND spend their personal time fundraising toward treatments and cures. We're cheering for them and all of our Team Activate runners, who have dedicated every mile toward making a difference. #fueledbymitochondria</div> <div class="x_elementToProof"> </div> <div class="x_elementToProof">Follow Morgan's Run Journey on Facebook/Instagram @chiroontherun</div> <div class="x_elementToProof">Follow Diego's Run Journey on Instagram @jd_santos26</div> <div class="x_elementToProof">Give in support of Team Activate runners at umdf.org/teamactivate </div>

September 23, 2025
Powerhouse Podcast: an Introduction to Special Episode - Making Sense of Mito
<p>We'd proud to introduce you to Making Sense of Mito - FBXL4-Associated Mitochondrial Disease. In this new episode (dropping soon), Dr. Keri-Lyn Kozul, PhD and Hannah Pletcher, researchers from Wash U St. Louis, and Susan Geoghegan of Apricity Hope Foundation team up to weave the science and the patient journeys together into the story of FBXL4, an ultra rare mitochondrial disease. Listen in as we tease out how this special episode came to be and the hopes for all it will become to both our research and patient communities.</p> <p> </p> <p><strong>Featured Guests:</strong></p> <p>Keri-Lyn Kozul, PhD and Hannah Pletcher</p> <p>Niemi Lab at Washington University, St. Louis</p> <p><a href= "https://www.niemilab.com">https://www.niemilab.com</a></p> <p> </p> <p>Susan Geoghegan</p> <p>The Apricity Hope Project</p> <p><a href= "https://apricityhope.org/susan-geoghegan/">https://apricityhope.org/susan-geoghegan/</a> </p>
13 total episodes available
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This podcast updates bi-weekly.
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This podcast is available on 7 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
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Yes, this podcast regularly features guests.
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