PPMD’s Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.
PPMD's Living Duchenne
Claim This Podcastby Parent Project Muscular Dystrophy
25 episodes
Updated Weekly
Accepts GuestsHas SponsorsLocation 🇺🇸
Podcast Overview
PPMD’s Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.
Language
🇺🇲
Publishing Since
9/1/2021
1 verified contact email on file for PPMD's Living Duchenne
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Recent Episodes
July 8, 2026
PPMD Living Duchenne: Raising an Independent Child: Young Adults
Welcome to our third episode in this season's PPMD podcast, Living Duchenne. Our topic is Raising and Independent Child. We welcome Adam Wechsler, a 29-year old man living with Duchenne, and Gretchen Agans, mom to Liam, a young adult living with Duchenne to talk about building independence and purpose in this time where young people are transitioning into early adulthood. Our host Rachel Poysky talks with Adam and Gretchen about remaining open to the many opportunities that exist for young men living with Duchenne--higher education, service, volunteerism, entrepreneur possibilities, consulting, and so much more. Join us and share to invite others to the conversation!
June 11, 2026
PPMD Living Duchenne: Raising an Independent Child: The Middle Years
Please join us as we continue our discussion on Raising an Independent Child: The Middle Years. Our guests include Colleen Labbadia and Kate Vanderweele sharing their experiences parenting in those adolescent and early teen years (middle school and high school ages) with a mindset of preparing their children for a future with independence. Listen in on this great conversation where Colleen and Kate talk through successful practices to build ownership, self-advocacy, and incorporate "low stakes" situations that empower their young boys to autonomy.
June 4, 2026
Living Duchenne: Raising an Independent Child
Welcome back to PPMD's podcast, Living Duchenne! This season we're discussing Raising an Independent Child. The path to purpose and independence begins at an early age for every individual. For those on the Duchenne journey this means tapping into creativity, community, and resources. This episode finds guests Christopher Bennett and Amy Ridolphi talking with our host, Rachel Poysky, about building a strong foundation for empowerment during those grade school and pre-adolescent years. Both guests share practical methods such as introducing chore responsibilities and socializing habits along with mental and emotional frameworks that benefit the entire family. Join us for a fantastic conversation!
25 total episodes available
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Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is PPMD's Living Duchenne?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 7 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
No, this podcast does not typically feature guests.
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