About Pregnancy, Alcohol and FASD: The Surprising Reality
How much do you know about pregnancy and alcohol? The reality may surprise you. Alcohol exposure while in the womb may cause Fetal Alcohol Spectrum Disorder, or FASD, in the unborn child. It is more common than many people realise. It may lead to lifelong physical and developmental impairments. For such an impactful disorder, it is rarely spoken about in the popular media. This podcast will take the listener behind the scenes to chat with the people who understand FASD the most and to find out more about this surprising reality.
#42 Beyond Awareness: Becoming FASD Informed with Emma McDougall
In this episode of “Pregnancy, Alcohol and FASD: The Surprising Reality”, host Kurt Lewis speaks with Emma McDougall, a FASD-informed occupational therapist and Clinical Advisor at NOFASD Australia. Emma discusses what it truly means to be FASD informed, moving beyond simply knowing about FASD to understanding how it affects each individual’s daily life.
They explore the importance of a strengths-based and brain-based approach, the value of listening to lived experience, and how professionals can adapt environments, expectations and supports to better meet the needs of people with FASD. Emma also shares practical advice for clinicians working with people with FASD, including considerations for NDIS reports and advocacy.
The conversation highlights a key message: awareness is important, but genuine understanding, compassion and action can make a meaningful difference in the lives of people with FASD and their families. For more information about FASD, please go to: https://www.nofasd.org.au/
Producers: Kurt Lewis, Julie Flanagan and Sophie Harrington
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewees: Emma McDougall
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewees. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
8 Sept 2026
#41 Confabulation & Perseverance with Dr Vanessa Spiller
Kurt is joined by Dr Vanessa Spiller; an experienced Clinical Psychologist with around 30 years of practice who is dedicated to supporting individuals with Fetal Alcohol Spectrum Disorder (FASD). She shares her personal and professional journey with FASD - from discovering the condition through parenting her son, to seeing how lived experience has shaped her clinical practice.
Dr Spiller explores why FASD can be a “chameleon” condition, often resembling Autism, ADHD, intellectual disability and other diagnoses, and why recognising the brain-based differences behind behaviour is so important. She discusses executive functioning, memory, comprehension, confabulation and suggestibility, and the particular risks these vulnerabilities can create for people with FASD in the justice system.
The conversation also offers practical advice for caregivers and professionals, including how to respond to confabulation and perseveration with empathy, regulation and problem-solving rather than confrontation. Dr Spiller highlights the importance of ensuring that people with FASD have appropriate support when interacting with police, medical professionals and the justice system.
If you live in Australia and would like to receive some of the free “Police Information Cards” mentioned in this episode, please register your interest and provide your postal address at: https://www.nofasd.org.au/contact-us/
For more information about FASD, please go to: https://www.nofasd.org.au/
Producers: Kurt Lewis, Julie Flanagan and Sophie Harrington
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Dr Vanessa Spiller
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
15 Sept 2025
#40 Linking Caregivers: NOFASD's Online Support Program with Professor Anita Gibbs & Julie Flanagan
Kurt is joined by Professor Anita Gibbs, of the University of Otago, New Zealand and Julie Flanagan. NOFASD’s National Projects and Communications Manager. Together they discuss a research article based on the outcomes of the Families Linking with Families program and the benefits of the program as confirmed by participating caregivers.. The Families Linking with Families program is an online support group developed by NOFASD Australia in conjunction with Professor Gibbs, to provide education and peer support for those who are caregivers for individuals living with Fetal Alcohol Spectrum Disorder (FASD).
Key points about the Families Linking with Families program:
- It is a structured and guided 7-week online support group which is led by trained facilitators, each of whom is a parent or caregiver for an individual with FASD.
The main benefits include:
- Enabling caregivers to connect with others who are going through similar experiences, thereby lessening the sense of loneliness experienced by many carers.
- Providing a safe and confidential space for caregivers to share their specific situation and challenges without judgement
- Increasing caregiver knowledge about FASD, effective parenting/caregiving approaches and FASD-informed strategies.
- Empowering caregivers and building their resilience.
The online format makes the program accessible across Australia, even for those in remote areas. The program is delivered several times a year and is refined based on participant feedback and issues of concern tabled during meetings. Australians interested in participating in a future support group should contact the NOFASD Australia helpline on 1800 860 613 or visit our website through this link to express interest.
The research article discussed in this episode is: “An Australian Online Training and Support Program for Caregivers of Children and Youth with Fetal Alcohol Spectrum Disorder: Families Linking with Families” by Anita Gibbs, Julie Flanagan and Louise Gray is freely accessible. It's an open access article in the Journal of Intellectual and Developmental Disability.
The full article can be read at: https://doi.org/10.3109/13668250.2023.2271757.
For more information about FASD, please go to: https://www.nofasd.org.au/
Producers: Kurt Lewis, Julie Flanagan and Louise Gray
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewees: Professor Anita Gibbs & Julie Flanagan
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewees. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
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