Raising the Extraordinary

About Raising the Extraordinary

Hi! welcome to my little corner of the world, my name is Aimee, I am a Mum of two, one of which has a diagnosis of CLN2 Batten Disease, with this comes epilepsy, severe learning difficulties and a whole host of other things. Day to day life can be exhausting, hard to navigate, lonely and heart breaking BUT I try to have a positive view on life, make happy memories with those that I love and care about. I want to use my experience of live so far (with a special needs child) to help others, bring a community of parents together and encourage others to live life as best they can. Through listening to me (and future guests) I hope you will learn, laugh and find enjoyment in your road ahead Over coming episodes I hope to educate, encourage, inspire, support, share and hold space for us all. I am on a learning journey which I'd like you will join me on too. A little more about me. I love: family, visiting the beach even though I don't like sand, woodland walks, listening to podcasts (favourites include Mel Robbins, Minimalish and Law of Attraction Saved My Life) decluttering and organising (other peoples homes - not my own!) and crocheting. I love to help people, take the kids swimming and horse riding and lastly I ADORE my loving husband. Whether you have a special needs child or not, I hope you'll join me over the coming episodes & help enable me to not only help others, but help me to find my own identity again as Mum navigating this journey I find myself on . Please SUBSCRIBE to get my podcast to others, Thank you! you can find me on Instagram @raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

Publisher

Aimee Tilley

Category

education · health & fitness · kids & family

Language

en

Explicit

No

First episode

29 Feb 2024

Latest episode

6 Apr 2024

Latest episodes

5 episodes in the feed.

1. 

   6 Apr 2024

   Attending a children's Hospice

   Hi! Welcome to episode 5, I recorded this during our recent visit to Rainbows Hospice in Loughborough. I hope hearing our experience of visiting will help others that are unsure of what to expect when visiting a children's hospice for respite. Raising The Extraordinary - a podcast for parents and carers raising children with additional needs Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community. I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch! PLEASE NOTE : DISCLAIMER I am not medically trained, always consult your child's health professionals before trying any therapies, exercises or tasks I talk about in ANY of my episodes. Please connect with me at www.instagram.com/raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

2. 

   22 Mar 2024

   Life Lessons Since Diagnosis

   The last two years, life sure has taught me a few things! I have shared just a few here with you today in the hope to help others going through the same! Raising The Extraordinary - a podcast for parents and carers raising children with additional needs Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community. I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch! PLEASE NOTE : DISCLAIMER I am not medically trained, always consult your child's health professionals before trying any therapies, exercises or tasks I talk about in ANY of my episodes. Please connect with me at www.instagram.com/raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

3. 

   18 Mar 2024

   Coping with Guilt

   Raising The Extraordinary - a podcast for parents and carers raising children with additional needs TRIGGER WARNING. In this episode I briefly mention eating disorders/disordered eating. Do you struggle with Guilt? It is such a strong emotional that ruin an entire day right? As Isaacs Mum I feel such intense guilt over him having Batten Disease & everything that comes with that. I feel guilty for Eva’s childhood and it not being what I had hoped for. Our emotions play a huge part in how we cope with day to day life, join me today as I talk about the small things I do to stop the feelings of guilt taking over. Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community. I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch! PLEASE NOTE : DISCLAIMER I am not medically trained, always consult your child's health professionals before trying any therapies, exercises or tasks I talk about in ANY of my episodes. Please connect with me at www.instagram.com/raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

4. 

   8 Mar 2024

   Isaac's Diagnosis Journey

   Raising the extraordinary – a podcast for parents and carers raising children with additional needs During this episode I share Isaacs diagnosis journey from speech delay to Batten Disease, it was a heartbreakingly long journey. I share some experiences of feeling let down by health professionals, how I coped and how I felt during this time. I wanted to share Isaacs diagnosis journey early on in the podcast because its such an important part of who I am today & why I am here creating this podcast. I am often asked questions about the process of Isaac being diagnosed and how it all happened, so for those who are interested, here it is! PLEASE NOTE. Unfortunately there is a sound issue from 8m35s to 12m15s. You may need to turn up the volume for these 4 minutes. Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community. I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch! PLEASE NOTE : DISCLAIMER I am not medically trained, always consult your child's health professionals before trying any therapies, exercises or tasks I talk about in ANY of my episodes. Please connect with me at www.instagram.com/raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

5. 

   29 Feb 2024

   Welcome

   Raising the extraordinary – a podcast for parents and carers raising children with additional needs. Are you a parent or carer of a child who has a form or additional needs? Whether that be mild autism or a rare genetic disease? If so my podcast could be for you. After my son Isaac was diagnosed with CLN2 Batten Disease, I entered a new world that I didn’t know much about. I felt like I had been thrown into a deep dark hole with no ladder to climb out. 2 Years on and I have navigated my way through many challenges. I do not claim to be an expert but I do want to use what I have learnt to help you. I want to bring the community of families with children with all types of needs and/or diseases together. Lets support, guide & nurture one another. Join me each week as I discuss different topics, chat with guests and learn alongside you as we navigate this journey together. No one needs to feel alone in this community, whether you’re a parent, carer, auntie, uncle, grandparent, foster parent etc come and join me. In this first episode you will learn a little about me, what it is like to be a mother of a child with Batten Disease. You'll hear about some of the battles I have faced and moving forward, what I hope to achieve with this podcast. Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community. I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch! PLEASE NOTE : DISCLAIMER I am not medically trained, always consult your child's health professionals before trying any therapies, exercises or tasks I talk about in ANY of my episodes. Please connect with me at www.instagram.com/raising_the_extraordinary Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

1 ratings

Spotify

5.0 / 5

5 ratings