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Rare and Real

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by Stripes of Solidarity

5 episodes
Updated Daily
Accepts GuestsHas Sponsors
4

Podcast Authority

Beta
PoorBased on show quality, social media presence, reviews, charts, and more
Pod Engine
Quality9
Social0
YouTube0
Engagement0
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Podcast Overview

Rare & Real is a bold, unfiltered podcast where rare disease meets real life — and nothing’s off the table. Hosted by Nate Milam II and Carter Hemion, queer rare disease advocates, storytellers, and health equity champions, this show is built for the community and by the community. Whether you’re a patient, caregiver, provider, ally, or just trying to understand what it means to survive and show up at the margins — you’ll find yourself here. We talk about it all: sex and dating, mental health, grief, growing up rare, medical gaslighting, joy, transition care, and everything in between.

Language

🇺🇲

Publishing Since

6/27/2025

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4

Podcast Authority

Beta
PoorBased on show quality, social media presence, reviews, charts, and more
Pod Engine
Quality9
Social0
YouTube0
Engagement0
Learn more
5
Excellent Areas
0
Good Performance
14
Growth Opportunities
excellent
Episode Length
47 minutes
Performing excellently!
needs improvement
Publishing Consistency
Every 19 days

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Recent Episodes

Episode thumbnail for Ep. 5: Getting Creative w Mary - SEASON 1 FINALE

January 1, 2026

Ep. 5: Getting Creative w Mary - SEASON 1 FINALE

<p>For the final episode of the 2025 Rare &amp; Real season, co-hosts Nate Milam II and Carter Hemion turn the mic inward, welcoming a voice listeners don&#39;t hear often, but feel everywhere: SOS Creative Director, Mary Aufuldish.</p><p>From the logo to the Rare &amp; Real podcast branding, merch designs, and visual storytelling, Mary is the creative force behind the look and feel of Stripes of Solidarity. In this heartfelt and candid conversation, Mary shares what it’s been like stepping into the rare disease space, learning alongside the community, and using her creativity to support a mission rooted in advocacy, equity, and real impact. As a longtime friend of Nate, long before SOS ever existed, Mary reflects on the personal journey of blending friendship and creative collaboration.</p><p>This episode is a love letter to behind-the-scenes work, chosen family, and the power of creativity in movement-building. It’s a reminder that advocacy also lives in design and the people who help bring a vision to life.</p><p>Tune in as we close out the 2025 season of Rare &amp; Real by celebrating creativity and the people who make this work possible.</p><p>Happy New Year!!!</p><p><br></p>

Episode thumbnail for 4. Brinda's RDD Journey

September 12, 2025

4. Brinda's RDD Journey

<p>Happy Histiocytosis Awareness Month!</p><p><br></p><p>In this powerful September episode of Rare &amp; Real, we sit down with histio patient and advocate, Brinda Shukla (she/her), a medical student and rare disease champion living with Rosai-Dorfman Disease (RDD), to explore her journey of resilience, identity, and purpose.</p><p><br></p><p>Brinda shares her experience navigating treatment as a teenager, the mental health toll of living with a rare condition, and the challenges of transitioning from pediatric to adult care. She opens up about learning to own her diagnosis, finding healing through therapy and community, and how her rare disease experience shaped her path to medical school.</p><p><br></p><p>We also talk about the liberating moment of being ready to share her story, the power of music and connection, and what “being rare” really means to her. Brinda’s story is a reminder that rare disease journeys are about more than charts and scans—they’re about humanity, resilience, and building a future of better care.</p><p><br></p><p>Whether you’re part of the rare disease community, an aspiring healthcare professional, or just someone who loves hearing real stories of strength and authenticity, this conversation will inspire you.Favorite Artist: Ariana Grande</p><p>A quote/lyric that resonates: &quot;Tine makes you bolder.&quot; - Landslide by Fleetwood Mack </p>

Episode thumbnail for Back to School

August 29, 2025

Back to School

<p>Episode 3 — Back to School: Rare Diseases, Accommodations &amp; Finding Your Voice </p><p><br></p><p>Back-to-school season brings excitement for some—but for students living with rare diseases, it often comes with a unique set of challenges. In this episode of Rare &amp; Real, Nate Milam II and co-host Carter Hemion open up about their deeply personal experiences navigating school while living with chronic illness, late diagnoses, and disabilities.</p><p><br></p><p>From 504 plans and bathroom passes to missed classes, misdiagnoses, and self-advocacy, we unpack what it’s like to balance learning, health, and identity in a system that isn’t always built for us. We also reflect on the resilience it takes to fight for accommodations, the exhaustion that comes with managing your health while trying to fit in, and why conversations about accessibility in education are long overdue.</p><p>Whether you’re a rare disease patient, parent, educator, or advocate, this episode sheds light on the untold stories behind school hallways and highlights why every student deserves the chance to succeed—without having to fight for it.</p><p><br></p><p>Listen now and join the conversation about how we can create more inclusive, supportive environments for rare disease patients in education.</p>

5 total episodes available

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Frequently asked questions

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What is Rare and Real?

Rare & Real is a bold, unfiltered podcast where rare disease meets real life — and nothing’s off the table. Hosted by Nate Milam II and Carter Hemion, queer rare disease advocates, storytellers, and health equity champions, this show is built for the community and by the community.

Whether you’re a patient, caregiver, provider, ally, or just trying to understand what it means to survive and show up at the margins — you’ll find yourself here.

We talk about it all: sex and dating, mental health, grief, growing up rare, medical gaslighting, joy, transition care, and everything in between.

How often does this podcast release new episodes?

This podcast updates daily.

Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

No, this podcast does not typically feature guests.

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