Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
Rare Care Chronicles
Claim This Podcastby TANGO2 Research Foundation
5.0(5 reviews)
10 episodes
Updated Weekly
Accepts GuestsHas Sponsors
22
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality12
Social0
YouTube0
Engagement81
Podcast Overview
Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.
Language
🇺🇲
Publishing Since
7/11/2024
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22
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality12
Social0
YouTube0
Engagement81
6
Excellent Areas
2
Good Performance
11
Growth Opportunities
excellent
Episode Length
5 minutes
Performing excellently!
good
Show Notes Quality
3.0/5
Recommendations available
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poor
Publishing Consistency
Every 34 days
Recommendations available
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Recent Episodes
May 11, 2026
Parent Roundtable
<p><strong>Rare Care Chronicles: Parent Roundtable</strong> brings together TANGO2 parents David Longman, Amanda Hull, and Amy Clay for an honest conversation about the TANGO2 diagnosis journey. Hosted by T2RF Executive Director Ann Geffen, this episode explores early symptoms, the long search for answers, the impact of receiving a diagnosis, and how families find support, hope, and connection through the TANGO2 community.</p><p></p>
May 16, 2025
Veronica and Tyson's Story
<p>Isabella Riezler, Science Communications Manager at the Chan Zuckerberg Initiative (CZI), volunteered her time and talents to support the TANGO2 Research Foundation by capturing the story of this year's Ambassador Family: the Swetek-Jones family.In this heartfelt video, Veronica and Tyson share their journey to find a diagnosis for their daughter, Thea, and how that path led them to create the TANGO2 Family Facebook group—a vital space offering connection, information, and support for families impacted by TANGO2 Deficiency Disorder (TDD) around the world.<br>_____________________________________________________________For more information, go to: <a href="https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbU54TmhsVDk2NTJBekxlZjRzclJQVXh2VW1YZ3xBQ3Jtc0trcUZOTUN4eHNPeWdLQy05TDVTUFU1WUhTWkl5VXpuY0VCdFdOTGdWV0lKMEg2LTgxbFlJY2l2QzNaa0VPYlZ4c1NDRWI4VjdGT1hQTTFXUkhDRzM4SF8yVXFzZlRxTS16bXItUzhKZFBZbHNrb1RaUQ&q=https%3A%2F%2Ftango2research.org%2F&v=IE_J_XcmiFc" target="_blank" rel="nofollow">https://tango2research.org/</a>Find us on Facebook: / tango2research Find us on Twitter: / tango2research Find us on Instagram: / tango2researchfoundation Find us on LinkedIn: / tango2-research-foundation</p>
October 1, 2024
"Can We Fix It?" by Kasha Morris
<p>This is a story about fixing an impossible problem in an unexpected way.</p> <p><em>Kasha Morris is a retired teacher that co-founded the TANGO2 Research Foundation with her husband Mike in 2018 after a fifteen-year diagnostic journey for their son Ryan. Faced with the reality of a life-limiting ultra rare genetic condition they got to work to help their son. Although TANGO2 was newly discovered, their search would take them back twenty years to uncover some answers in an unexpected place.</em> </p> <p> To learn more, visit <a href="http://www.tango2research.org/" rel="ugc noopener noreferrer" target="_blank">www.tango2research.org</a>. Find us on Facebook: <a href="https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbnhHUUhtcUJpVmdLMmdPOTRfU0gxYjF2aXJpQXxBQ3Jtc0ttc00tendFd2JtRm5lb1BsRmhlRVREQklja1QzdzJ4ZW5PNlhvek1UOUpNa28yUzk5RnlFZmNiOVlpenpQMFYtdDVvbFVCRUw4aVJBeHVVSzZjWTM2eEdtWUNSbXNCSVBLem5ZVWVUODhtODdoNWRDbw&q=https%3A%2F%2Fwww.facebook.com%2Ftango2research&v=SjX5QGwbPUs" rel="ugc noopener noreferrer" target="_blank"> / tango2research </a> Find us on X: <a href="https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbnEwMFFydGl3SWI0N0ZuVlVUX1I5clRoZGs2QXxBQ3Jtc0trZktLTU1Ed0l0Qmpjdy1IVExiTHNCTkozamE3UjdGWlY1MUZydEhsZFIxTWtVMlRsOVVENWVNSlhwQ0hnZGp3MDJlLVRpdzE5bHZrX0pwZFJLekxGbDd2b250REZfdFdnbEVaQTQwbTZELThtRXFVcw&q=https%3A%2F%2Ftwitter.com%2Ftango2research&v=SjX5QGwbPUs" rel="ugc noopener noreferrer" target="_blank"> / tango2research </a> Find us on Instagram: <a href="https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbTNLMllzZlctcG5BSGZmUTVZWkhLVGJvZGJiUXxBQ3Jtc0tuOU9KOU1qTUViQ2YxdTZldkFfNHRWaFd2TzB2dUFza3Q0bms2ZWdqNmtjZ3J5TnFNX25sMDFGT2ZJc0pvVEl4cHhsN3YtamJNQ0l6OWZ4cWwwUXFnbjg2U29CekdsY3o5WE8yRzJRR19SNUVObDJjZw&q=https%3A%2F%2Fwww.instagram.com%2Ftango2researchfoundation%2F&v=SjX5QGwbPUs" rel="ugc noopener noreferrer" target="_blank"> / tango2researchfoundation </a> Find us on LinkedIn: <a href="https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbDFCYksyR3FUQldSOFpYYXNRRmk3RmlDTjBhd3xBQ3Jtc0tud1JkVjVRVEFRZEVpTHBHMTE5RkxVa3B5amxWYkpWdkFOU2NVbnpBM05SaVJmQzQ2QmFDbDNyT3FTRGVlbnY5Y2cyakdiNTB3V2NrdUF3RW03cDVUcE1GNXRURUtNVnRTWnVZTGY5TjhhUm80WktnZw&q=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Ftango2-research-foundation%2F&v=SjX5QGwbPUs" rel="ugc noopener noreferrer" target="_blank"> / tango2-research-foundation </a> </p>
10 total episodes available
Deep-dive analytics for Rare Care Chronicles
Frequently asked questions
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- What is Rare Care Chronicles?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 6 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
No, this podcast does not typically feature guests.
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