Rare Care Podcast

About Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

Publisher

Rare Care Podcast

Category

health & fitness · science

Language

en

Explicit

No

First episode

11 Aug 2021

Latest episode

5 Oct 2026

Latest episodes

255 episodes in the feed.

1. 

   5 Oct 2026

   245: An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus

   Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI platform built exclusively for rare diseases.

2. 

   28 Sept 2026

   244: An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer

   Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"

3. 

   21 Sept 2026

   243: An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network

   Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of this rare disease always develop pulmonary fibrosis.

Who has been a guest on Rare Care Podcast

Names identified in recent episode analyses. Showing up to five guests.

• Dr Angela Vincent
• Dr Daniel Grant
• Ashley Stanley-Copeland
• Dr Sithara Ramdas
• Lyza Weisman

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

2 ratings

Spotify

5.0 / 5

1 ratings

Podcast Authority Score: 46 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

68

Social presence

0

YouTube

0

Engagement

60