Rare Disease Education is an educational initiative focused on raising awareness about the current challenges in rare diseases.
Read more on, https://rarediseaseeducation.com/
Unravelling the complex relationship between PNH and associated bone marrow failure.
A podcast with Dr Austin Kulasekararaj and Dr Yasutaka Ueda, haematologists and PNH experts, unravelling the complex relationship between PNH and associated bone marrow failure (BMF), exploring the heterogeneity of PNH, how co-existing BMF can alter its clinical and laboratory picture, and the implications for monitoring and patient management.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™
4 Dec 2025
Uncovering the common multi-system consequences of a rare disease – the multidisciplinary team
A podcast with Dr Danny Hsu, Haematologist and PNH expert and Surabhi Chaturvedi, Senior Haematology Psychotherapist, discussing the psychological burden of PNH, and strategies for multidisciplinary teams to support patients and their support networks.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™
23 Jun 2025
Uncovering the common multi-system consequences of a rare disease – cardiorespiratory disease
Hematologist Dr. Alex Pike and cardiologist Dr. Jivendra Gosai discuss the multi-system consequences of rare diseases, specifically focusing on cardiorespiratory complications in this interview.
5 May 2025
Uncovering the common multi-system consequences of a rare disease – chronic kidney disease
A podcast with Prof Elena Solomou, Haematologist and PNH expert and Prof Alberto Ortiz, Nephrologist provides an overview of PNH as a complex rare disease, explores the need for better understanding of extra-haematological complications, focusing on the impact on kidney disease and addresses ways to support cross-specialty care between haematologists and nephrologists.
Podcast Authority Score: 2 / 100
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3
Social presence
0
YouTube
0
Engagement
0
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