Your Podcast for Rare Kidney Conversations
Life with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their journey with greater confidence and support.
This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.
Living with a rare kidney disease means paying extra attention to what you put in your body. Everyday decisions around food, medication, and exercise can become so difficult that patients feel overwhelmed.
In this episode, C3GN patient Lilly joins us to share her journey managing her disease, from tracking apps to the challenges of overhauling her diet and finding motivation to stay consistent. Renal dietitian Anna Garza explains how nutrition needs a shift depending on the stage of kidney disease and dialysis status, and offers practical, realistic advice on what foods to choose day-to-day. Together, they highlight the fact that there's no one-size-fits-all kidney diet, only an individualized, balanced approach built in partnership with your care team.
For more information, visit rarekidneyandyou.com
The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.
The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
1 Oct 2026
Everyday Life
On the latest episode of The Rare Kidney Source Podcast, patient Sloane and her mom, Lindsey, share how life changed after diagnosis and the everyday routines that helped them find a new normal. From medications and meals to school, appointments, and navigating the emotional ups and downs, they offer an honest look at what living with a rare kidney condition can feel like.
Psychologist Dr. Al Freedman joins the conversation to discuss the emotional side of chronic illness, sharing practical ways to cope with uncertainty, anxiety, and the challenges that don't always show up on a lab report.
Whether you're living with a rare kidney condition, caring for someone who is, or simply looking for reassurance that you're not alone, this episode is a reminder that life after diagnosis is built one day at a time.
For more information, visit rarekidneyandyou.com
The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.
The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
10 Sept 2026
Managing Disease: Important Considerations, Conversations, Decisions
A rare kidney disease diagnosis can leave you with more questions than answers.
In this episode of The Rare Kidney Source Podcast, nephrologist Dr. Sayna Norouzi joins patients Lindsey and Sloane to share practical advice for navigating the first weeks after a C3G or primary IC-MPGN diagnosis. From organizing biopsy reports and medical records to understanding test results, preparing for appointments, and weighing treatment options, they break down the steps that can help you feel more informed and confident.
Whether you're newly diagnosed or supporting someone who is, this conversation offers honest guidance, helpful takeaways, and reassurance that every question is worth asking.
For more information, visit rarekidneyandyou.com
The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.
The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
30 Jul 2026
C3G & Primary IC-MPGN 101
On this episode of the Rare Kidney Source podcast, Lilly, a person living with C3G, and Dr. Joshua Thurman highlight why early diagnosis, ongoing lab monitoring, and open communication between a patient and their care team are so important.
For more information, visit https://rarekidneyandyou.com/
The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.
The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
10 Jun 2026
Understanding Labs: What's Really Going On?
Your labs aren't just numbers, they're trying to tell you something.
On this episode of the Rare Kidney Source podcast, Dr. Anthony Chang and Anne, a C3G patient, break down what matters, why trends matter more than a single result, and how to speak up when something doesn't add up.
For more information, visit rarekidneyandyou.com
The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.
The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
26 Mar 2026
The Road to Diagnosis
From unexplained childhood symptoms to a life-changing diagnosis, this episode traces one patient's long road to understanding C3G, a rare complement-mediated kidney disease. Michelle Farley shares how years of dismissal, misdiagnosis, and crisis ultimately led to answers, a transplant, and a new era of targeted treatment. Dr. Carla Nester breaks down the science behind the "overactive alarm system" driving these conditions and explains how recent advances are transforming what was once considered untreatable. It's a story about persistence, partnership, and the power of finally being heard.
For more information, visit rarekidneyandyou.com
Transparency Statement: The Rare Kidney Source Podcast is produced by Believe Limited (http://believeltd.com/) and made possible by Apellis Pharmaceuticals.
The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
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