Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illnesses. Join host Giusiana as she sits down with inspiring guest speakers—patients, caregivers, advocates, and experts—to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.
Rare Living with Giusiana
Claim This Podcastby Giusiana
5.0(6 reviews)
4 episodes
Updated Daily
Accepts GuestsHas Sponsors
22
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality31
Social0
YouTube0
Engagement32
Podcast Overview
Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illnesses. Join host Giusiana as she sits down with inspiring guest speakers—patients, caregivers, advocates, and experts—to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.
Language
🇺🇲
Publishing Since
12/17/2024
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22
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality31
Social0
YouTube0
Engagement32
6
Excellent Areas
1
Good Performance
12
Growth Opportunities
excellent
Episode Length
24 minutes
Performing excellently!
good
iTunes Tags
6.5/10
Recommendations available
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needs improvement
Publishing Consistency
Every 17 days
Recommendations available
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Recent Episodes
February 22, 2025
Pediatric Pain Programs with Exposing Pain Programs
<p>Todays episode is a little different, joining us anonymously is the person behind Exposing Pain Programs. Exposing Pain Programs is dedicated to speaking our truth about harm done by pain rehab programs. #youdidntcureus</p><p>To find support for survivors, resources to make an informed decision, or to share your story, follow Exposing Pain Programs <a href="linktr.ee/exposingpainprograms" target="_blank" rel="ugc noopener noreferrer">here</a></p><p><br /></p><p>You can also follow Giusiana <a href="linktr.ee/giusiana" target="_blank" rel="ugc noopener noreferrer">here</a></p>
January 25, 2025
Fluoroquinolone Toxicity with Talia Smith
<p>Some mic difficulties, but the show must go on. <a href="https://linktr.ee/giusiana" target="_blank" rel="ugc noopener noreferrer"><br></a><br>Today I met with Talia to discuss her experience with floxxing, or fluoroquinolone toxicity. Talia Smith is a wife and step-mother; she had a career that she loved, had an active/healthy lifestyle and was the primary caretaker of her husband, who is a disabled Veteran. In April 2021, she was disabled by 3 pills of a fluoroquinolone antibiotic, called Ciprofloxacin, and ended up on Hospice, weighing only 60 pounds. She fought her way off Hospice and onto Palliative care. Talia still requires 24/7 care for her survival, but has become an advocate for fluoroquinolone toxicity syndrome via her social media platforms, awareness campaigns, videos and interviews.</p> <p>You can find Talia, sign the petition, and learn more about fluoroquinolone toxicity <a href="https://linktr.ee/finding.vulneraries?fbclid=PAZXh0bgNhZW0CMTEAAabVTiBzMOn2VOL2zPtMGpvBxAZffYkazzyv_Ez20SXDifyh7sAH9eVNJ9A_aem_LQGQi7fUNYOHYJBuKG-P1A" target="_blank" rel="noopener noreferer">here</a></p> <p>Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illness. Join host Giusiana as she sits down with inspiring guest speakers - patients, caregivers, advocates, and experts - to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.On todays solo episode, we dive into a not-so-fun side of life with chronic illness, and how the lack of autonomy over your own body and the feeling of being less than human can impact our mental wellbeing.</p> <p>Episodes will be released monthly, with some bonus episodes along the way. We can't wait to have you walk alongside us and learn to Live Rare. You can find Giusiana on Instagram and TikTok <a href="https://linktr.ee/giusiana">here</a></p>
January 6, 2025
Lack of Autonomy in Chronic Illness
<p>Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illness. Join host Giusiana as she sits down with inspiring guest speakers - patients, caregivers, advocates, and experts - to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community. On todays solo episode, we dive into a not-so-fun side of life with chronic illness, and how the lack of autonomy over your own body and the feeling of being less than human can impact our mental wellbeing. Episodes will be released monthly, with some bonus episodes along the way. We can't wait to have you walk alongside us and learn to Live Rare. You can find Giusiana on Instagram and TikTok <a href="https://linktr.ee/giusiana " target="_blank" rel="ugc noopener noreferrer">here </a></p> <p><br /></p>
4 total episodes available
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Frequently asked questions
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- What is Rare Living with Giusiana?
- How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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