Rare Mamas Rising

About Rare Mamas Rising

Rare Mamas Rising is a podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Hosted by Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, and a rare mom herself, each episode offers heartfelt reflections, practical tools, and empowering strategies to help you rise to the call of rare disease parenting. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered. We rise stronger when we rise together—let's rise!

Publisher

Nikki McIntosh

Category

health & fitness · kids & family

Language

en

Explicit

No

First episode

20 Apr 2021

Latest episode

6 May 2026

Latest episodes

57 episodes in the feed.

1. 

   6 May 2026

   Learning to Mother Ourselves

   RARE MAMAS RISING- EPISODE 56 Learning to Mother Ourselves In this Mother's Day episode of Rare Mamas Rising, Nikki explores what it means for rare moms to mother themselves with the same tenderness, attention, and care they so freely give their children. From noticing our needs before they become emergencies, to honoring our limits, speaking to ourselves with kindness, advocating for our own well-being, creating a soft place to land, and making room for joy and delight, this episode is a gentle reminder that rare mamas are worthy of good care too. Because we are not only the ones who comfort, protect, and hold everyone else—we are human beings with hearts that need holding, bodies that need rest, and spirits that need tending. Happy Mother's Day, rare mamas! For more support and sisterhood, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below: Amazon Apple Books Barnes & Noble Bookshop.org Books-A-Million IndieBound Indigo Kobo Porchlight Book Info: www.raremamas.com/book (http://www.raremamas.com/book) CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ (https://raremamas.com/) Email info@raremamas.com PODCAST INFO podcast@raremamas.com

2. 

   23 Feb 2026

   Plugging Into the Rare Community

   RARE MAMAS RISING- EPISODE 55 Plugging Into the Rare Community In this special Rare Disease Day episode of Rare Mamas Rising, Nikki McIntosh reads the chapter "Plugging Into the Rare Community" from her book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease and reflects on what Rare Disease Day has taught her as a rare disease mom. This heartfelt episode explores the power of the rare disease community, the importance of caregiver support, and why connection among rare moms can change the way we carry even the hardest seasons of rare disease parenting. Whether you are newly navigating a diagnosis or years into your caregiving journey, this episode offers encouragement, validation, and a reminder that no rare mama was meant to do this alone. Links & Resources Mentioned: For more info on Rare Disease Day, check out: https://www.rarediseaseday.org https://rarediseases.org For more support and sisterhood, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below: Amazon Apple Books Barnes & Noble Bookshop.org Books-A-Million IndieBound Indigo Kobo Porchlight Book Info: www.raremamas.com/book (http://www.raremamas.com/book) CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ (https://raremamas.com/) Email info@raremamas.com PODCAST INFO podcast@raremamas.com

3. 

   8 Dec 2025

   Hoping Through the Holidays

   RARE MAMAS RISING- EPISODE 54 Hoping Through the Holidays Christmas is the season of hope. But hope can be complicated for rare disease parents navigating exhaustion, medical uncertainty, chronic stress, and the ache of unanswered prayers. In this episode of Rare Mamas Rising, we explore what hope really looks like for rare disease parents and caregivers during a season that can feel both beautiful and painfully complicated. This episode gently unpacks the realities of hoping in the hard: hope in the waiting, hope after disappointment, hope when you're exhausted, and hope when you're scared to try again. It offers reflections on why hope is an action we choose, how it keeps us moving in the world of medical parenting, and the surprising ways hope can transform us even before our circumstances change. For every rare caregiver navigating uncertainty or heaviness this time of year, this conversation creates space to reconnect with hope. Links & Resources Mentioned: For more thoughts on Hope, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below: Amazon (https://www.amazon.com/dp/196382721X) Apple Books (https://www.amazon.com/dp/196382721X) Barnes & Noble Bookshop.org Books-A-Million IndieBound Indigo Kobo Porchlight Book Info: www.raremamas.com/book (http://www.raremamas.com/book) CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ (https://raremamas.com/) Email info@raremamas.com

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

29 ratings

Spotify

5.0 / 5

2 ratings