Rare Matters Podcast
Claim This Podcastby Michael Stone
Podcast Overview
<p>Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.</p>
Language
🇺🇲
Publishing Since
4/20/2024
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Recent Episodes
May 8, 2024
Finding Comfort within the Unknown: Hope, Boundaries, and Beyond
<p>Welcome back to the Rare Matters Podcast! I'm your host, Mikey Stone, and in this episode, we embark on a journey through the intricate landscape of life as a disabled individual. Join me as I candidly share my personal experiences, insights, and hard-won wisdom, offering a glimpse into the challenges and triumphs that shape my everyday existence.</p><p>From navigating societal perceptions to embracing resilience and hope, I delve into the complexities of living with a disability, shedding light on the nuances often overlooked by mainstream discourse. As we explore the significance of boundaries, I offer invaluable guidance on setting healthy limits with healthcare providers, friends, and loved ones, emphasizing the paramount importance of prioritizing one's emotional well-being above societal expectations.</p><p>Through heartfelt anecdotes and empowering narratives, we unravel the layers of stigma and misconception, championing self-advocacy and authenticity in the face of adversity. Join me as we challenge preconceived notions, ignite conversations, and champion a future where inclusivity and understanding reign supreme.</p><p>In a world where conformity often masquerades as comfort, I urge you to embrace your uniqueness unabashedly, for therein lies the true essence of liberation. Tune in as we embark on this transformative journey together, because in the realm of Rare Matters, every voice, every story, and every boundary crossed, matters.</p><p>Remember, your story matters, and your resilience knows no bounds.</p>
May 1, 2024
Courageously Candid: Living with Addison's Disease and Functional Neurological Disorder - Savannah's Story
<p>In the latest installment of the Rare Matters Podcast, we have the honor of sitting down with Savannah, a remarkable individual navigating life with Addison's Disease, Functional Neurological Disorder, and a cluster of yet-to-be-diagnosed conditions. In a candid and courageous conversation, Savannah sheds light on the daily realities of living with multiple chronic illnesses. Join us as we delve into her journey, exploring the triumphs, challenges, and the resilience that defines her experience. Tune in to gain insight, empathy, and a deeper understanding of the often unseen battles faced by those living with rare conditions.</p>
April 24, 2024
Exploring Medical Gaslighting and Self Advocacy
<p>Join us for the second episode of Rare Matters, where we delve into the crucial yet often overlooked topic of medical gaslighting. In this episode, we uncover what medical gaslighting entails, shed light on its subtle manifestations, and equip you with the tools to identify and combat it. Through insightful discussion and a compelling personal narrative, we explore the journey of self-advocacy, empowering listeners to navigate the healthcare system with confidence and resilience. Tune in to discover the power of advocacy and reclaim your voice in your healthcare journey.</p>
4 total episodes available
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Frequently asked questions
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- What is Rare Matters Podcast?
<p>Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.</p> - How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 9 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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