"Rare Mind Talks" podcast explores how Education, AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives.
Learn more at https://www.theraremind.com or
Follow us on instagram @theraremindtalks
14: Between Care and Cure, Building What Doesn’t Exist Yet (with Erika Stariha)
In "Between Care and Cure, Building What Doesn't Exist Yet", Erika Stariha shares her journey from undiagnosed parent to European foundation founder. Her son's eight-year wait for a SATB2 diagnosis shaped everything that followed. Consequently, she built a foundation focused on systems, not just symptoms.
Erika discusses the real barriers to advocacy engagement: language, time and emotional load. However, she also reveals what motivates over sixty clinicians to volunteer their expertise. Meanwhile, she explains why clear priorities matter more than chasing every opportunity.
The conversation moves through leadership, collaboration and decision making under scarce resources. Ultimately, Erika reminds us that small progress is still progress. It offers honest insight for leaders navigating fragmented data and fragmented systems alike.
Rare Mind Talks podcast explores how AI, data, and Education are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.
Learn more at https://www.theraremind.com or
Follow us on Instagram @theraremindtalks
18 Jun 2026
13: Designing Education Around People, Not Conditions (with Katarzyna Świeczkowska)
In "Designing Education Around People, Not Conditions", I speak with Katarzyna Świeczkowska (a.k.a. Kasia), rare disease advocate, mother, and founder of an innovative inclusive school in Poland. Together, we explore how the F-Words for Child Development (Function, Fitness, Fun, Family, Friends, and Future) are transforming education for children with complex needs.
Kasia explains why schools must move beyond deficits and focus on strengths, aspirations, and participation. We examine how communities can become more inclusive through action rather than intention alone, and explore one of the biggest challenges facing families: preparing young people with rare diseases for adulthood, independence, and a meaningful future.
Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.
Learn more at https://www.theraremind.com or
Follow us on Instagram @theraremindtalks
11 Dec 2025
12: From Genes to Powerful Answers (with Célia Azevedo Soares)
Geneticist Célia Azevedo Soares elucidates the crucial role of genes in rare diseases and how understanding them accelerates diagnosis, while André Correia interviews her about AI's role in identifying genetic patterns.
9 Oct 2025
11: How to Break Data Silos in Rare Diseases (with Francisco Aguiar)
Francisco Aguiar discusses with André Correia how data integration and AI are reshaping the rare disease ecosystem, emphasizing data's role in personalized care and empowering patients in this interview.
25 Sept 2025
10: Hope and Leadership: Uncharted Lessons (with Ada Lio)
Ada Lio, founder, discusses hope and leadership in rare diseases with André Correia, host, sharing uncharted lessons from her experiences as a parent and leader in the rare disease community in this interview.
11 Sept 2025
09: Treating the Patient, Not the Disease (with Richard Novak)
Host André Correia interviews Richard Novak, CEO of Unravel Biosciences, about using RNA insights and AI to treat individual rare disease patients, not just the disease itself.
17 Jul 2025
08: From Adversity To Powerful Global Leadership (with Pat Furlong)
Pat Furlong, founder of Parent Project Muscular Dystrophy, discusses turning personal tragedy into a global movement for rare disease advocacy and research in an interview with Andre Correia.
3 Jul 2025
07: Chasing My Cure: A New Playbook (Hope And Data)
Host André Correia interviews Dr. David Fajgenbaum about his rare disease journey, highlighting how data-driven approaches and patient advocacy accelerate treatment discovery and offer hope for others.
19 Jun 2025
06: How to Unlock a Rare Community? (with Ana Rita Moreira)
Ana Rita Moreira discusses her journey from diagnosis to launching a research-focused alliance, highlighting the power of community building and advocacy for rare diseases in this interview with Andre Correia.
5 Jun 2025
05: Patient-Led AI for Better Health (with Bruno Amaral)
Bruno Amaral discusses his AI-driven bot, Gregory, which helps patients find and understand research, ultimately empowering them and professionals with real-time data in this interview with André Correia.
22 May 2025
04: Can Data Standards Unlock Better Solutions? (with Ronald Cornet)
In today's episode, our guest Ronald Cornet, an expert in health informatics, explains why inconsistent data causes harmful delays in diagnosis and care. Can data standards unlock better solutions?
The post 04: Can Data Standards Unlock Better Solutions? (with Ronald Cornet) first appeared on The Rare Mind.
8 May 2025
03: Can AI Make Healthcare More Human? (with Pedro Gouveia)
In this episode, our guest Pedro Gouveia explores how AI and data are not just advancing oncology and rare disease care, but also challenging us to ask: "Can AI make healthcare more human?"
We examine both the promise on personalised diagnostics, drug repurposing, connected care, and the roadblocks, including weak data governance and fragmented systems. Pedro shares practical, real-world insights while calling attention to where the sector must catch up. At the heart of it all is a recurring theme: for AI to truly transform healthcare, it must strengthen trust, empathy, and the human connection.
Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.
Learn more at https://www.theraremind.com or
Follow us on Instagram @theraremindtalks
24 Apr 2025
02: What Are We Forgetting? (with José Videira)
In this inaugural episode of the Rare Mind Talks Podcast, we discuss the power of AI and data to transform the landscape of rare diseases. Our guest, José Videira, Chief Digital and Information Officer at Solvias, shares thoughtful insights into how these technologies can accelerate diagnosis and treatment, but also reminds us to pause and ask, “What are we forgetting?”
José highlights that while the promise of AI is immense, much of its potential remains untapped. He stresses the importance of prioritising direction over perfection and explains why clearly defining the problem is often half the solution. We also explore the value of moving quickly with pilots, integrating regulation along the way rather than letting it halt innovation from the outset. José offers a compelling take on why smaller biotech firms often take the lead in rare disease innovation and warns that without a focus on outcomes, even the most exciting developments can become background noise.
Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.
Listen to the podcast on Apple Podcasts, Spotify, or any other podcast app.
Learn more at https://www.theraremind.com
Follow us on Instagram @theraremindtalks
8 Apr 2025
01: Rare Mind Talks (with André Correia)
"Rare Mind Talks" podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives.
Learn more at https://www.theraremind.com or
Follow us on instagram @theraremindtalks
Who has been a guest on Rare Mind Talks
Names identified in recent episode analyses. Showing up to five guests.
Célia Azevedo Soares
Francisco Aguiar
Ada Lio
Richard Novak
Pat Furlong
Podcast Authority Score: 23 / 100
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45
Social presence
0
YouTube
0
Engagement
0
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