Hey there! Welcome to Rarenetic! I'm Molly, a high school sophomore and I created Rarenetic to educate people about rare diseases and genetic disorders (rare + genetic = rarenetic) and to keep them up to date with what is going on in the community. Welcome to rarenetic!
Hey guys!! This week, I talk all about how COVID-19 impacted the rare disease world. Hope you enjoyed it!
SOCIALS
Instagram (//instagram.com/rareneticpod)
Twitter (//twitter.com/rareneticpod)
Linktree (//linktree.com/rarenetic)
rareneticpod@gmail.com
15 May 2022
Rare Disease Words and Phrases (that you'll hear me use a lot)
Hey Guys! Thanks for listening to RARENETIC! Today's episode definitely has a lot of info in it, but make sure to follow us on Instagram to get the link.
SOCIALS:
Instagram (//instagram.com/rareneticpod)
Twitter (//twitter.com/rareneticpod)
LinkTree (//linktree.com/rarenetic)
rareneticpod@gmail.com
29 Apr 2022
What are Rare Diseases and What Does Being Undiagnosed Mean?
Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode!
RESOURCE LINKS
Genetic and Rare Disease Information Center (https://rarediseases.info.nih.gov/)
Rare Disease Clinical Network (https://www.rarediseasesnetwork.org/)
National Organization for Rare Disorders (https://rarediseases.org/)
Rare Diseases International ( https://www.rarediseasesinternational.org/)
Rare Undiagnosed Network (https://rareundiagnosed.org/)
Undiagnosed Diseases Network (https://undiagnosed.hms.harvard.edu/)
Undiagnosed Diseases Network International (https://www.udninternational.org/)
SOCIALS
Instagram (//instagram.com/rareneticpod)
Twitter (//twitter.com/rareneticpod)
8 Apr 2022
TRAILER
Welcome, to RARENETIC! Get ready for us to launch on April 29th. Make sure to follow us on Instagram and Twitter, linked below!
instagram.com/rareneticpod
twitter.com/rareneticpod
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Apple Podcasts (US)
5.0 / 5
1 ratings
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