Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

Yes, this podcast regularly features guests.

Rarity Life Heard

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by Same but Different

13 episodes

Updated Daily

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Podcast Overview

Rarity Life is a brand new online publication that offers those affected by rare disease, disability and cancer the opportunity to create content that is truly inclusive, to unify our collective experience and to celebrate and share our differences. As part of Rarity Life we have created a podcast series, Rarity Life Heard to give you the opportunity to delve a little bit deeper into some of our guest’s stories. Days of Rare is a multimedia series created by Same but Different to inspire us to look more deeply into a life lived with a rare disease.

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Publishing Since

2/16/2022

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Recent Episodes

June 15, 2022

Rarity Life Heard in conversation with Tayen Coppard

In this episode we will hear from fifteen year old  Tayen, who lives with Hypohidrotic ectodermal dysplasia, which is 1 of about 150 types of ectodermal dysplasia. Most people with hyperhidrotic ectodermal dysplasia have a reduced ability to sweat and struggle to regulate their body temperature, which is one of the symptoms Tayen has to manage.

May 31, 2022

Rarity Life Heard in conversation with Tully Kearney MBE

In this episode we spoke to Tully Kearney MBE, about her life as an athlete whilst managing a progressive neurological movement disorder. They say that to be a successful Olympian you need determination and training, and just listening to Tully speak made it clear that she has both the steely determination and the commitment to train in spades. To use her own words; ‘ It was much easier for me to move in the water than it is on dry land. I was treated as any other kid, I wasn't treated as a disabled kid. I wasn't singled out. I could keep up with kids my own age….so there was kind of just complete freedom.’

May 30, 2022

Rarity Life in conversation with Dame Laura Lee DBE

In this episode we spoke to Dame Laura Lee DBE, the Chief Executive of Maggie’s about the incredible work they do, and the ethos behind it. The ways in which Maggie’s are changing and positively impacting the world of cancer care are truly incredible. Front and foremost of their mission stands a truly reassuring and also hugely empowering statement; “we know that when you’re diagnosed with cancer you need much more than just medical treatment.” With the reality of living with, or supporting a loved one with cancer affecting so many of us this recognition of the importance of a broader support modality is absolutely vital. To read more about Dame Laura Lee and Maggie’s follow the link to the Rarity Life article: https://www.samebutdifferentcic.org.uk/raritylife

13 total episodes available

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Frequently asked questions

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What is Rarity Life Heard?: Rarity Life is a brand new online publication that offers those affected by rare disease, disability and cancer the opportunity to create content that is truly inclusive, to unify our collective experience and to celebrate and share our differences. As part of Rarity Life we have created a podcast series, Rarity Life Heard to give you the opportunity to delve a little bit deeper into some of our guest’s stories.

Days of Rare is a multimedia series created by Same but Different to inspire us to look more deeply into a life lived with a rare disease.
How often does this podcast release new episodes?: This podcast updates daily.
Where can I listen to this podcast?: This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Does this podcast accept guests?: Yes, this podcast regularly features guests.

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