The Re-Define podcast holds space for conversations that need to be heard but more importantly that need to come from the disability community themselves. Our mission is to advocate for people with disabilities to tell their own stories and re-define what disability has meant in their own lives.
Re-Imagining Activism: A Conversation with Casey Doherty
Welcome back! This month, Gabriella sits with the kind and brilliant, Casey Doherty. Casey is a disability studies scholar who lives with several energy limiting disabilities, including myalgic encephalomyelitis. Casey shares her insight and experience living in her early twenties to advocate for accessible education, employment and more.
1 Feb 2024
Learning Together: A Candid Conversation with Tori Leak
In this podcast episode, Gabriella is joined by Tori Leak, all the way from the UK! Tori and Gabriella candidly discuss the tough realities of living with rare conditions, reflecting on childhood struggles and the valuable lessons learned at any stage in life. Tune in to explore the journey of understanding and acceptance in the realm of disability.
10 Oct 2023
A Dance with Parkinsons Disease: A Conversation with Steven Greene
Hey everyone! In this months episode we have the pleasure of hosting Steven Greene. Steven generously opens up about his life journey with Parkinson's disease. Steven illustrates how his experience mirrors the ebb and flow of a tango, with some days where he leads and others where Parkinson's takes the lead. Join us as we delve into moments of laughter, moments of tears, and continue to dance on together.
11 Sept 2023
Embracing Vulnerability: Exploring Mental Health and Sisterhood with Shaneeza Rahim
Gabriella and Shaneeza delve deeper into destigmatizing mental health conversations, emphasizing community outreach, and nurturing personal growth through vulnerability
10 Aug 2023
The Way I Walk: Getting In Our Own Way & Debunking Stereotypes
Jake April is a NYC journalist and advocate for people with disabilities, who lives with cerebral palsy. Gabriella and Jake discuss the importance of keeping it real with yourself, debunking disability stereotypes and widening your perspective. Jake uses his poetic writing to spark dialogue for others with CP to remember to take pause in their journeys, welcome messiness and celebrate themselves.
To learn more about Jake April:
Instagram: adapting2yourabilities (https://instagram.com/adapting2yourabilities?igshid=NTc4MTIwNjQ2YQ==)
To access Jake's article: The Hand Dealt ( https://theunsealed.com/activity/p/8292/)
To keep up with Jake: Twitter (https://twitter.com/jakeapril1)
4 Jun 2023
Giuseppe Floccari: Living In Your Purpose
Giuseppe Floccari is an avid advocate and activist for people with disabilities, who lives with a rare disability TAR Syndrome, otherwise known as thrombocytopenia absent radius syndrome. Born and raised in Brooklyn New York, Giuseppe is a child of Italian immigrants, with insight on the intersectionality of disability and culture, advocacy and the importance of pushing yourself outside your comfort zone as a disabled person. Giuseppe is passionate about advancing himself forward, and is actively involved on the the board for Disabled in Action, Advisory Committee for Transit Accessibility board for the MTA, ADAPT, among more. Giuseppe is on a mission to spread a message of tolerance and equality for people who are different.
His latest article published in the Helen Journal can be viewed here (https://helenjournal.org/april-2023/combating-medical-ableism)
More about Disabled In Action (https://www.disabledinaction.org/)
More about ADAPT (https://adapt.org/)
1 May 2023
Elizabeth Jameson: Her Thoughts of the Re-Define Podcast
Artist, writer and TEDx speaker, Elizabeth Jameson shares her thoughts on the Re-Define Podcast. Tune in to hear what she has to say!
About Elizabeth: Elizabeth Jameson is an artist and writer who explores what it means to live in an imperfect body as part of the universal human experience. She writes personal essays and speaks across the country to share her experiences living with Multiple Sclerosis. Her work as been featured in the New York Times, Medical Journal, Washington Post and MIT's Leonardo Journal...among others.
To learn more about Elizabeth you can visit her instagram "_elizabethjameson_" visit her website (http://www.jamesonfineart.com/about) or her youtube channel "MS Confidential" (https://unfixedmedia.com/ms-confidential)
Welcome back! Gabriella had the pleasure of speaking with the wonderful role model and disability advocate, Bri Scalesse. Gabriella and Bri talk about the messy journey of self-love, celebrating disabled bodies, and knowing what makes a true good inter-abled partner.
About Bri: Bri Scalesse advocates for disability representation in the media and air travel rights for wheelchair users. She’s a viral social media influencer, with 36k followers on instagram, and 470k on TikTok. After her time as a professional dancer with The Rolettes, she now teaches young disabled women modeling at The Rollette's yearly conferences. Bri also has an MFA in Nonfiction Writing from Columbia University in New York City, where she now lives. Recently, she starred in the Academy Award and BAFTA qualifying film “As You Are”, about a young, queer, interabled relationship.
2 Dec 2022
Meeting Analisse Guerra: Being a Better You
Analisse Guerra is a charming, funny and bright young girl who lives with a limb difference. She joins this episode to talk more with Gabriella about her lessons learned as a purple belt in jiu jitsu...to combating bullying and learning how to appreciate and become the best version of herself.
1 Oct 2022
Meeting Jessica Huang: Trailblazer in Education
This month we welcome Jessica Huang to the Redefine podcast! Listen in to hear how just at the age of 19, a young woman such as herself can pioneer tangible change for accessibility in the classroom and model how to be a better ally to one another within the disability community.
1 Sept 2022
Meeting Vernel Black: Myths and Truths about ASD
Vernel Black joins us to talk more about her experience battling stereotypes and navigating spaces living with Autism Spectrum Disorder.
1 Jul 2022
The Sibling Perspective
Viviana Amaya joins the Redefine podcast to talk more about the importance of having supportive family dynamics and making space to have uncomfortable conversations with your siblings.
1 Jun 2022
The Caregivers Perspective
Gabriella sits down with her mother to talk more about what it was like being the caregiver, advocate and friend for her daughter, to bring light to how they worked together through difficult times.
1 May 2022
The Unexpected
Gabriella shares her experience handling "the unexpected" health issues that can arise when living with complex medical needs. She highlights the importance of maintaining momentum when dealing with grief, loss and fear. Remembering that the unexpected doesn't have to be seen a setbacks but instead moments we can navigate through and rise from.
1 Apr 2022
Advocacy
Listen in to hear Gabriella talk about advocating for yourself as a patient, how to ask the "tough questions" and the importance of being at the frontline of your care.
1 Mar 2022
Embracing Your Scars
Tune in to listen to Gabriella answer some of the questions people have asked her about how to embrace your scars. Gabriella shares her insight on her "how to" when learning to embrace both old and new scars.
28 Feb 2022
Welcome to the Re-Define Podcast!
Gabriella introduces herself and the purpose of the Re-Define Podcast!
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