Each month, we feature powerful personal stories from our members, offering a unique window into their experiences, challenges, and triumphs. In addition to these firsthand accounts, we’ll engage with leading researchers, clinicians, policymakers, and industry innovators to explore the latest advancements in retina research, cutting-edge care solutions, and the evolving landscape of support for those living with retinal conditions. Tune in for thought-provoking conversations that illuminate the path forward in the fight against retinal degenerative diseases.
https://retina-international.org/
Perspectives Podcast: Episode 5- United in Vision: Retina International World Congress 2026
In this special joint episode of Canal Retina and Perspectives Podcast, recorded in Dublin, we talk about the global fight against inherited retinal degenerations (IRDs) and age-related retinal diseases – and invite you to United in Vision - the Retina International World Congress 2026 in Fort Worth, Texas.Host David Sanchez is joined by:Avril Daly – CEO, Retina InternationalJason Menzo – President & CEO, Foundation Fighting Blindness (FFB)Together, they discuss:What Retina International is: a global umbrella of patient-led organizations working to advance research, diagnosis, access to care, and patient empowerment for people living with retinal diseases worldwide.Key concerns for patients and families:Maintaining independence and accessing proper support servicesThe shock of being told you may lose visionThe importance of genetic diagnosis for IRDs (over 350 genes involved)Understanding research, clinical trials, and what they really mean for everyday lifeWhy global collaboration is essential:Researchers, clinicians, patients, policymakers, and industry working togetherBuilding capacity and support in regions where people with IRDs often stay at home without services or informationEnsuring equitable access to new therapies and care pathwaysThey then introduce the upcoming Retina International World Congress + FFB Visions Conference – “United in Vision”:When: June 12–13, 2026Where: Fort Worth, Texas, USAhttps://www.fightingblindness.org/visions-2026
25 Feb 2026
Act4RED: Rare Disease Day 2026
Act4RED is a joint initiative of Retina International (https://retina-international.org/), ERN-EYE (https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=2ahUKEwi_37yCmOiSAxWFhv0HHfD9CFcQFnoECB8QAQ&url=https%3A%2F%2Fwww.ern-eye.eu%2Ffr%2F&usg=AOvVaw2ndmboxCdLd6SlKX9rLyQ2&opi=89978449), Foundation Fighting Blindness (https://www.fightingblindness.org/) and the Ocular Diseases Foru,m (https://www.forumresearch.org/ocular) which brings together patients, clinicians, and researchers to improves diagnosis, care, and innovation for people living with Rare Eye Disease (RED).
We are calling to Stop the Loss of Vision by improving outcomes for people affected by inherited retinal degenerations, anterior segment disorders, neuro-ophthalmic conditions, and paediatric rare eye diseases.
We aim to raise awareness and visibility of these conditions, which are often underdiagnosed and underfunded and to highlight the high-unmet needs of patients to health ministries, research bodies, and regulators.
We advocate for coordinated policy action at EU global levels, and to promote research, innovation and investment in retinal health.
Through our actions we aim to, improve access to specialist care, rehabilitation, and emerge therapies, and ultimately enhance the quality of life for individuals and families affected by retinal degenerations.
23 Apr 2025
Retina International In Focus Podcast: Professor Jose Carlos Pastor
On this week’s episode of the RI In-Focus podcast, Dr. Orla Galvin welcomes Professor Jose Carlos Pastor from the Institute for Applied Ophthalmology (IOBA) in Valladolid, Spain, who is Director of the IOBA retina group.
Jose is also an ophthalmologist and joins Orla to discuss his experience of COVID-19 and its impact on ophthalmology which he believes is not being considered a priority health discipline, particularly from his experience within the clinic.
Additionally, Jose speaks very passionately about the need for adopting a multidisciplinary and more unified approach to advancing research in all specialties, something he feels will emerge after the COVID-19 pandemic as scientists from various research collaborate in earnest to develop a safe and effective vaccine.
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