We're excited to announce, "Sarcoma Stories" a new podcast from SFA.
Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.
Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.
We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704 (https://www.facebook.com/groups/512452631597704)
On this episode we are joined by Ken Cleary, an angiosarcoma survivor and amputee. Ken describes the journey to diagnosis, how he made the decision to go forward with an amputation as his frontline treatment, and how he has adapted to life afterward. Ken’s reflections on his experience are honest and inspiring - his perspective both grounding and motivating.
Of the many topics we discuss, we talk at length about the trust Ken put in his care team while making extremely difficult decisions, and how they have helped him through more than just his treatment. His team made such a profound impact that Ken nominated his nurse, Colleen Forbes, to receive SFA’s 2026 Compassionate Care Award, which she will be honored with at the 2026 Stand Up to Sarcoma Gala in October.
We invite you to listen to Ken’s remarkable story, and if you are interested in honoring those who are making strides for the sarcoma community, we invite you to attend the Gala this October as well!
With that, let’s hear from Ken!
Information and Resources:
Gala Information and Tickets:
https://standuptosarcoma.curesarcoma.org/ (https://standuptosarcoma.curesarcoma.org/)
Subtype Page: https://curesarcoma.org/sarcoma-subtypes/angiosarcoma/ (https://curesarcoma.org/sarcoma-subtypes/angiosarcoma/)
Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ (https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/)
Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 (https://www.facebook.com/groups/512452631597704)
Connect With Ken:
Ken’s Instagram: @clearyken https://www.instagram.com/clearyken/ (https://www.instagram.com/clearyken/)
1 Jul 2026
Brendan Locke
On this episode, in honor of Sarcoma Awareness Month, Brendan Locke shares the sarcoma journey of his wife, Melissa Locke. Brendan and Melissa have been vital in the advocacy work to get July nationally recognized as Sarcoma Awareness Month and you’ll hear the origin story of how they first brought this to their elected officials in partnership with SFA.
Through emotional reflections on Melissa’s journey, we discuss why the visibility for sarcoma through a dedicated month is so important and talk about the hope we share that this platform may lead to the funding needed to achieve better treatment options for sarcoma patients.
We are so grateful to Brendan for sitting down with us and have this conversation, and also to Melissa - for all she did for the sarcoma community, and all she continues to inspire through the hope she held. Hope that cannot be extinguished by death.
Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/ (https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/)
Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ (https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/)
Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 (https://www.facebook.com/groups/512452631597704)
Brendan’s Email: melissalocke78@gmail.com (mailto:melissalocke78@gmail.com)
Senate Resolution: https://www.ronjohnson.senate.gov/2026/06/10/sen-johnson-leads-senate-passage-of-national-sarcoma-awareness-month-resolution/ (https://www.ronjohnson.senate.gov/2026/06/10/sen-johnson-leads-senate-passage-of-national-sarcoma-awareness-month-resolution/)
Reading of the Resolution on the Senate Floor: Fast forward to 3:54:30 (S.Res.765): Congressional Chronicle - Members of Congress, Hearings and More | (https://www.c-span.org/congress/?chamber=senate&date=2026-06-09)C-SPAN.org (http://C-SPAN.org) | (https://www.c-span.org/congress/?chamber=senate&date=2026-06-09)C-SPAN.org (http://C-SPAN.org)
17 Jun 2026
Rohini Deivasigamani
On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares how time and perspective have shaped the way she processes that experience.
Rohini shares not only about her own diagnosis and treatment, but also about her father’s cancer diagnosis, which came shortly after hers. She discusses how her understanding of what they both endured has evolved over the years and the lasting impact those experiences have had on her life.
In recognition of National Cancer Survivor Month this June, we’re honored to share Rohini’s story with our community. Ten years after completing active treatment, she offers a real look at what survivorship means, the challenges and growth that come with it, and how she continues to navigate life beyond treatment.
Rohini’s optimism is magnetic, and her honest reflections are sure to resonate with many in the sarcoma community.
Thank you so much, Rohini, for joining us and for sharing your story so openly.
Let’s dive in.
Resources:
Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/ (https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/)
Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ (https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/)
Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 (https://www.facebook.com/groups/512452631597704)
Connect with Rohini:
Rohini's Ted Talk: https://www.youtube.com/watch?v=-nvcWaMXM2s (https://www.youtube.com/watch?v=-nvcWaMXM2s)
Instagram: https://www.instagram.com/rohinideiv (https://www.instagram.com/rohinideiv)
TikTok: https://www.tiktok.com/@rotalks (https://www.tiktok.com/@rotalks)
LinkedIn: https://www.linkedin.com/in/rohini-deivasigamani-758712207/ (https://www.linkedin.com/in/rohini-deivasigamani-758712207/)
Who has been a guest on Sarcoma Stories
Names identified in recent episode analyses. Showing up to five guests.
Crystal Mollica
Carol Haslam
Joel Stetler
Amanda Stetler
Chris Barry
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
15 ratings
Podcast Authority Score: 23 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
25
Social presence
0
YouTube
0
Engagement
51
Contact Sarcoma Stories
Guest appearances
Books guests
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