Sarcoma Stories
Claim This Podcastby Sarcoma Foundation of America
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Podcast Overview
<p>We're excited to announce, "Sarcoma Stories" a new podcast from SFA.</p><p>Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.</p><p>Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.</p><p>We will also have a post episode discussion on our new facebook group. Join Now: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.facebook.com/groups/512452631597704">https://www.facebook.com/groups/512452631597704</a></p>
Language
🇺🇲
Publishing Since
12/6/2024
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Recent Episodes
July 1, 2026
Brendan Locke
<p>On this episode, in honor of Sarcoma Awareness Month, Brendan Locke shares the sarcoma journey of his wife, Melissa Locke. Brendan and Melissa have been vital in the advocacy work to get July nationally recognized as Sarcoma Awareness Month and you’ll hear the origin story of how they first brought this to their elected officials in partnership with SFA.</p><p></p><p>Through emotional reflections on Melissa’s journey, we discuss why the visibility for sarcoma through a dedicated month is so important and talk about the hope we share that this platform may lead to the funding needed to achieve better treatment options for sarcoma patients.</p><p></p><p>We are so grateful to Brendan for sitting down with us and have this conversation, and also to Melissa - for all she did for the sarcoma community, and all she continues to inspire through the hope she held. Hope that cannot be extinguished by death.</p><p></p><p>Subtype Page: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/">https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/</a></p><p></p><p>Discussion Guide: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/">https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/</a></p><p></p><p>Sarcoma Stories FB Group: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.facebook.com/groups/512452631597704">https://www.facebook.com/groups/512452631597704</a></p><p></p><p>Brendan’s Email: <a target="_blank" rel="noopener noreferrer nofollow" href="mailto:melissalocke78@gmail.com">melissalocke78@gmail.com</a></p><p> </p><p>Senate Resolution: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.ronjohnson.senate.gov/2026/06/10/sen-johnson-leads-senate-passage-of-national-sarcoma-awareness-month-resolution/">https://www.ronjohnson.senate.gov/2026/06/10/sen-johnson-leads-senate-passage-of-national-sarcoma-awareness-month-resolution/</a></p><p> </p><p>Reading of the Resolution on the Senate Floor: Fast forward to 3:54:30 (S.Res.765): <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.c-span.org/congress/?chamber=senate&date=2026-06-09">Congressional Chronicle - Members of Congress, Hearings and More | </a><a target="_blank" rel="noopener noreferrer nofollow" href="http://C-SPAN.org">C-SPAN.org</a><a target="_blank" rel="noopener noreferrer nofollow" href="https://www.c-span.org/congress/?chamber=senate&date=2026-06-09"> | </a><a target="_blank" rel="noopener noreferrer nofollow" href="http://C-SPAN.org">C-SPAN.org</a> </p><p></p>
June 17, 2026
Rohini Deivasigamani
<p>On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares how time and perspective have shaped the way she processes that experience.</p><p></p><p>Rohini shares not only about her own diagnosis and treatment, but also about her father’s cancer diagnosis, which came shortly after hers. She discusses how her understanding of what they both endured has evolved over the years and the lasting impact those experiences have had on her life.</p><p></p><p>In recognition of National Cancer Survivor Month this June, we’re honored to share Rohini’s story with our community. Ten years after completing active treatment, she offers a real look at what survivorship means, the challenges and growth that come with it, and how she continues to navigate life beyond treatment.</p><p></p><p>Rohini’s optimism is magnetic, and her honest reflections are sure to resonate with many in the sarcoma community.</p><p> </p><p>Thank you so much, Rohini, for joining us and for sharing your story so openly.</p><p> </p><p>Let’s dive in.</p><p></p><p><strong>Resources:</strong></p><p>Ewing Sarcoma Subtype Page: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/">https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/</a></p><p>Discussion Guide: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/">https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/</a></p><p>Sarcoma Stories FB Group: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.facebook.com/groups/512452631597704">https://www.facebook.com/groups/512452631597704</a></p><p></p><p><strong>Connect with Rohini:</strong></p><p>Rohini's Ted Talk: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.youtube.com/watch?v=-nvcWaMXM2s">https://www.youtube.com/watch?v=-nvcWaMXM2s</a></p><p>Instagram: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.instagram.com/rohinideiv">https://www.instagram.com/rohinideiv</a></p><p>TikTok: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.tiktok.com/@rotalks">https://www.tiktok.com/@rotalks</a></p><p>LinkedIn: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.linkedin.com/in/rohini-deivasigamani-758712207/">https://www.linkedin.com/in/rohini-deivasigamani-758712207/</a></p>
June 3, 2026
Sarah Downey
<p>This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of symptoms, all while navigating her senior year of college. Since her diagnosis, she has navigated treatment as she’s entered young adulthood, and shares with us what it’s been like coping with the uncertainty of sarcoma alongside this major life transition. </p><p> </p><p>A lifelong writer, Sarah recently began the project Echoes of Us RI to highlight stories of fellow patients, medical professionals, and caretakers, contributing to narrative medicine as a form of advocacy. Sarah explains how this has played a role in her journey, and also given her both an outlet and a purpose. </p><p> </p><p>When she isn’t writing or at treatment, Sarah travels as much as she can (and gives some tips on how she makes this work between treatments!), and talks about how she chooses to live despite her prognosis. </p><p> </p><p>This episode will both educate and inspire - true to Sarah as a writer and a human.</p><p></p><p><strong>Resources:</strong></p><p>Subtype Page: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sarcoma-subtypes/angiosarcoma/">curesarcoma.org/sarcoma-subtypes/angiosarcoma/</a></p><p>Discussion Guide: <a target="_blank" rel="noopener noreferrer nofollow" href="https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/">curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/</a></p><p>Sarcoma Stories FB Group: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.facebook.com/groups/512452631597704">www.facebook.com/groups/512452631597704</a></p><p></p><p><strong>Connect with Sarah:</strong></p><p>Sarah’s Instagram: : <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.instagram.com/sarah.downey20/">www.instagram.com/sarah.downey20/</a></p><p>Echoes of US RI Instagram: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.instagram.com/echoesofusri/">www.instagram.com/echoesofusri/</a></p><p>Echoes of Us RI: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.echoesofusri.com/">www.echoesofusri.com/</a></p>
29 total episodes available
Recent guests on Sarcoma Stories
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Crystal Mollica
Guest
Carol Haslam
Guest
Joel Stetler
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Amanda Stetler
Guest
Chris Barry
Guest
Andrey Ivchenko
Guest
Breon Glass
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Leia Glass
Guest
Emily Oberst
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Dan Rubin
Guest
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Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is Sarcoma Stories?
<p>We're excited to announce, "Sarcoma Stories" a new podcast from SFA.</p><p>Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.</p><p>Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.</p><p>We will also have a post episode discussion on our new facebook group. Join Now: <a target="_blank" rel="noopener noreferrer nofollow" href="https://www.facebook.com/groups/512452631597704">https://www.facebook.com/groups/512452631597704</a></p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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