"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
Publisher
South Central PA Sickle Cell Council, Dwayne Golden
Marilyn Jackson recounts her experiences supporting her grandson after his sickle cell disease diagnosis, highlighting the critical need for community, education, and proactive healthcare in this interview with Dwayne Golden.
5 May 2023
Maria Mendoza's Story
Dwayne Golden interviews Maria Mendoza, a parent and sickle cell disease advocate, who shares her experiences raising children with SCD and emphasizes the need for education and advocacy.
28 Apr 2023
Hope & Destiny With Dr. Allan Platt
Allan Pratt, Director of Admissions at Emory University, discusses his book "Hope and Destiny" and the critical need for sickle cell disease education, advancements in treatment, and the destigmatization of the disease in this interview.
21 Apr 2023
Hope And Destiny With Dr. Lewis L. Hsu
Dr. Lewis L. Hsu discusses the updated edition of "Hope & Destiny," a comprehensive guide on sickle cell disease, offering insights into treatment and the impact of COVID-19, in this interview with Dwayne.
14 Apr 2023
Destiny Van Sciver
Author Destiny Van Sciver discusses her book, "Sickle Cell Superheroes," and advocates for sickle cell testing and empowering children to manage their condition in this interview.
7 Apr 2023
Megan Lippert
Megan Lippert, Executive Vice President at Hilton Publishing Co., discusses their focus on health content and their work with Lewis Hsu, James Eckman, and Allan Platt to publish books on Sickle Cell Disease, aiming to provide resources for patients; this is an interview.
24 Mar 2023
Shyala Pelmon, Living Well With Sickle Cell
Sickle cell warrior Shyala Pelmon discusses living well with sickle cell disease, emphasizing self-care, doctor visits, and finding peace, in an interview with Dwayne Golden.
17 Mar 2023
Michelle Parr Story
Sickle Cell Disease advocate Michelle Parr shares her experiences growing up with the disease, navigating relationships, and maintaining a positive mindset in an interview with Dwayne Golden.
10 Mar 2023
Erica Whiterspoon Story
Erica Witherspoon recounts her childhood experiences with sickle cell disease, the challenges she faced, and how she became a passionate advocate for awareness, in this interview.
29 Jun 2021
EP #9 The Elle Cole Story
Elle Cole shares her experiences as a mother and health advocate, focusing on raising awareness for Sickle Cell Disease and improving the lives of those with genetic disorders in this interview.
19 Jun 2021
EP #8 National Sickle Cell Day, The Toneisha Harris Story
Toneisha Harris shares her experiences as a parent and advocate for her son who battled Leukemia, offering encouragement and strength to the sickle cell community in this interview.
25 May 2021
EP #7 The Debra Brizzard Story
Debra Brizzard shares her twenty-year journey as a sickle cell advocate, highlighting her rise to becoming a knowledgeable voice utilized by agencies, in this interview episode.
4 May 2021
EP #6 The Twaina Williams Story
Twaina Williams shares her experiences as a Sickle Cell parent and advocate, offering insights into navigating the challenges of raising a child with Sickle Cell Disease in this interview.
27 Apr 2021
Ep #5 Fredrika Nabbie Interview
Fredrika Nabbie discusses her experiences with the Specific Carbohydrate Diet in an interview on SCD Stories.
20 Apr 2021
EP #4 Shalawn James Story
Shalawn James shares her experiences as a sickle cell parent, highlighting her advocacy and resilience in navigating her son Jerrick's health challenges in this interview.
13 Apr 2021
EP #3 Williams Family Story
Alisha and Freddrick Williams share their family's journey uniting to support their son Freddrick Williams Jr., offering insights into familial strength and perseverance in this interview.
6 Apr 2021
EP #2 Tristan Lee Interview
Tristan Lee shares his experiences living with sickle cell disease and becoming an international advocate, fashion designer, and community advocate in an interview.
23 Mar 2021
EP #1 Ronald Johnson Story
Ronald Johnson shares his experiences living with sickle cell disease from childhood to adulthood, highlighting his advocacy for the Sickle Cell Community in this interview.
21 Mar 2021
Welcome To SCD Stories
This episode introduces SCD Stories, a podcast sharing experiences of people and families living with Sickle Cell Disease to promote greater awareness.
Who has been a guest on SCD Stories
Names identified in recent episode analyses. Showing up to five guests.
Marilyn Jackson
Maria Mendoza
Allan Pratt
Dr Lewis L Hsu
Destiny Van Sciver
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
2 ratings
Contact SCD Stories
Guest appearances
Books guests
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