Sickle Cell Society Podcast

About Sickle Cell Society Podcast

The Sickle Cell Society is having open discussions about challenging subjects in this podcast. There are challenges to living with sickle cell disorder, and there are a lot of subjects that aren't openly discussed, in a way that might help others to live their best life with the condition. We are unpicking some subjects by inviting sickle cell doctors and patients onto the podcast couch to share their experiences and answer questions. About us We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder. We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life. We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell to support and advise, raise awareness of the disorder and campaign for improvements in treatments and care. Our aim is to support those living with sickle cell, empowering them to achieve their full potential.

Publisher

Sickle Cell Society

Category

health & fitness

Language

en

Explicit

No

First episode

19 Jun 2024

Latest episode

18 Jun 2026

Latest episodes

13 episodes in the feed.

1. 

   18 Jun 2026

   9. Improving management of sickle cell : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

2. 

   18 Jun 2026

   2. Growing up : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

3. 

   18 Jun 2026

   4. Sickle cell and my work life : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

4. 

   18 Jun 2026

   5. Managing priapisms : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

5. 

   18 Jun 2026

   10. Advice to my younger self : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series of podcast episodes gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It i...

6. 

   18 Jun 2026

   6.Priapism: Sleep studies and therapies : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

7. 

   18 Jun 2026

   7.Priapism: Sex and relationships : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

8. 

   18 Jun 2026

   1. Introduction : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

9. 

   18 Jun 2026

   3. Having a sickle cell crisis : My life with sickle - a patients perspective on living with sickle cell disease and priapism.

   Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for h...

10. 

    12 Feb 2026

    Pregnancy Planning and NHS Screening for Sickle Cell and Thalassaemia

    When it comes to sickle cell and thalassaemia; genetic testing and screening— early checks that can identify a condition or carrier status, often before any symptoms appear — can shape life-changing decisions. Yet many people trying to understand their risk still face confusion, stigma, and unequal access to care. In this episode of The Sickle Cell Society Podcast, host Kesewaa Browne brings together a specialist nurse, screening experts and people with lived experience to unpack everything a...

11. 

    14 Feb 2025

    Dating, relationships and sickle cell

    When we asked the sickle cell community about their ‘private life’ and sickle cell, it was clear that dating and relationships were providing for some challenging times and difficult conversations. Our host, Kesewaa Browne, asked our panel about their experiences of navigating their love life with sickle cell disorder. The discussion covers looking for love, relationships, situationships and settled long term commitment. They get into the highs and lows and challenge of it all, but they all...

12. 

    24 Jan 2025

    Love life, family planning, and sickle cell.

    We asked the sickle cell community to send us their burning questions about their intimate life, family planning and sickle cell. The response was clear - you wanted to hear more about :- Starting a family while taking hydroxycarbomide- Priapism- Fertility and pre pregnancy care and support- Risks, medications, care and support during pregnancy and while breastfeeding- Pregnancy and birth with avascular necrosis of the hip - Pain and stress caused by intimacySo we created this podcast ep...

13. 

    19 Jun 2024

    Transition from child to adult sickle cell care

    This episode generates a discussion between health care professionals and patients about how to get the best out of the transition from child to adult sickle cell services. This period can last from age 12 and last a decade, depending on needs, so there's a lot to unpack. Led by host, Kesewaa Browne, the panel exchange experiences and share insights from their clinics and lived experience, and offer tips for young patients and parents to communicate effectively with their doctors for a better transition experience. Host : Kesewaa Browne, multiplatform Journalist for the BBC, Assistant Producer and Sport Presenter at Riverside Radio.  Kesewaa has produced a BBC documentary about sickle cell disorder and is passionate about raising the profile of the condition. Clinical panel members : Samah Babiker - Paediatric Haematology Consultant , Guys and St Thomas NHS Foundation Trust and Evelina London Children’s Hospital Martin Besser - Consultant Haematologist, Cambridge University Hospitals NHS Foundation Trust Eliane Young – Consultant Clinical Psychologist, Cambridge University Hospitals NHS Foundation Trust Patient panel members : Michael Dove Bolaji Farinto The panel delve into patient experiences, and how clinicians are working on addressing  issues and creating a smooth process. They discuss the young brain and how parents can support their children as they navigate transition alongside other challenges of growing up and developing into independent adults. They look at the wider family and how they can open helpful conversations to support the transition period, tips for choosing a university while living with sickle cell, emotional wellbeing, and what else hospitals can do to make the process easier. We make no apology for a longer than usual podcast, because it is packed with insights and help for anyone involved in the process of transition to adult sickle cell care. About us We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder. We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life. We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell to support and advise, raise awareness of the disorder and campaign for improvements in treatments and care. Our aim is to support those living with sickle cell, empowering them to achieve their full potential. @SickleCellUK https://www.sicklecellsociety.org/ (https://www.sicklecellsociety.org/) Charity no. 1046631

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

1.0 / 5

1 ratings

Spotify

5.0 / 5

4 ratings

Podcast Authority Score: 16 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

19

Social presence

0

YouTube

0

Engagement

32

Contact Sickle Cell Society Podcast

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.