Welcome to SpeakUrMND podcast
SpeakUrMND has evolved
SpeakUrMND was a place for me to share my family's experience living alongside MND, but what I've always known is that everyone's journey is unique, everyone has a different 'Why', everyone has a story to tell, I've been so inspired by the individuals I have met on this journey and would like them to SpeakTheirMND
What makes us get out of bed every morning to face MND head on.
What's been the biggest challenges to overcome.
What makes you laugh?, what makes you Cry?
It's MND Awareness but goes a little deeper, there will be laughter and a ton of tears I'm sure.
We will be chatting to some amazing individuals from the MND community, Warriors, Carers, Family & Friends, Fundraisers, Health and Social Care professionals, charities any one with a story to tell and knowledge to share,
I really hope you enjoy these episodes
Hopefully through these podcasts you will finish leaving uplifted, motivated, educated and an a better understanding of life alongside MND for individuals, carers and the wider MND community.
Thank you for listening, your support and your love.
#speakurmnd365
The latest and last episode of season 1 of the speak your MND podcast with me @mummybarrow is a little different, its just me hosting, when we started the speak your MND Podcast there were a few goals that @mbarrow1 and I had in mind, I wanted to host the show using my eye gaze and cloned voice.
We wanted our guests to be from all walks of life from living with MND, Carers to Fundraisers, who all have a their own amazing stories to share.
We wanted a podcast for the community, brought to you by the community.
We also wanted music to accompany the podcast, composed by someone from the community, Thank you @aphplusplus 🫶
We wanted to share the highs, the lows, the good, the bad and the ugly, the wins, the losses and to try and serve up some advice and let you al know that your not alone on this journey, and thanks to the amazing guests I think we have achieved this.
But one of my personal goals was to host an episode alongside a fellow individual living alongside MND, using only our Eye Gaze devices, and I had the person in mind from day one.
Mark has been apart of my MND journey from the very start, he’s a source of knowledge and experience, he’s a good ear when i need to vent, he’s the reassurance I need when I’m making tough decisions and most importantly he’s always ready to take the piss out of me and remind me not to take life to seriously.
Mark has been on this journey for over 4 years, he’s had his ups and downs, but Mark alongside his wife Steph have huge hearts and work tirelessly to help other families on the same journey through the MNDefiance Trust.
And we will return in June 🫶
Anna 🧡
#mndawareness #podcast
5 May 2026
‘The Midnight Debrief’ (4)
Welcome to the Midnight Debrief
Steph and I are joined tonight by Joe DeBoise, a friend of Steph and Marks, a friendship brought together through MND.
I asked Steph, Let’s get a guest on, last episode before the break, and there was only one person Steph wanted on the podcast or Poddy-C as Joe calls it.
Joe has sacrificed his body and time to ensure the MNDefiance trust got up and running, and the challenges that Joe has undertaken to raise vital funds for the trust is truly remarkable.
Joe is an amazing artist, an ok surfer and an incredible friend.
We still find time to discuss all things caring, latest purchases and what’s for tea.
I will leave it there….have a listen
Catch you soon
Steph & Martyn
28 Apr 2026
‘Fundraisers Unite’
This Week Anna and I chat with Stacey Kirkpatrick
Stacey lost her dear mum Gerry back in 2005 and as you will hear in this weeks episode its as still as raw and upsetting as it was 21 years ago.
In this weeks episode we talk about Stacey’s mums MND journey, loss, and the years that followed, with Stacey taking on numerous challenges raising awareness and funds for MND Scotland and the MNDA, we also talk about Stacey’s career as an estate agent to moving in to the charity sector.
In the past 12 month Stacey followed her heart after volunteering for the MNDA Manchester branch for a number of years, after leaving her role at another charity, Stacey now works for the MND Association as a area fundraiser, helping individuals on their own fundraising journey.
Thank you for listening, see you next time for the final episode of season one
Anna & Martyn
21 Apr 2026
The Midnight Debrief (3)
This Weeks Episode, Steph and I catch up on what is always a busy previous two weeks
A lot to catch up on from latest to show, what’s for tea and we talk all things feeding when living alongside MND, from feeding tubes, to what is on the menu that’s manageable.
we talk about the highs and the not so highs of the previous two weeks, as always with a bit of laughter thrown in the mix.
We promise that it’s not planned…. But every midnight debrief has been and hour and 3 minutes!
Thank you to everyone for the messages of support and we hope you continue to enjoy the debriefs.
Steph & Martyn
14 Apr 2026
'Turning Grief into Impact'
This weeks Episode, Martyn and I chat with Lynn, A truly inspiring women who Martyn and I have had the pleasure to know on our own personal MND journey, and someone who we call a dear friend.
Lynn openly talks about the darkest of days, from her beloved Mel's MND diagnosis, Losing her soulmate Mel, but how this anger has fuelled her to drive and determination to help others 'Her MND family' to one day find treatment and a cure.
This episode is a honest, raw and open conversation but left us feeling uplifted and it's comforting knowing that there are amazing individuals like lynn fighting for us.
Again, plenty of tears and plenty of laughter
Thank you Lynn
Anna and Martyn
7 Apr 2026
'The Midnight Debrief' (2)
This Week Steph and Martyn talk all things caring.
What's been happening the past 2 weeks, the highs the lows, the challenges, the wins.
They chat about the rugby team coming for hot dogs and rugby, the road trips that cause nothing but stress and uncomfortableness, the impromptu eBay buys and near misses.
the midnight debrief is taking the daily chats to podcast to share with you the real world of caring alongside MND
Thank you for your questions, keep them coming and we will be covering these on a near future episode.
Thank you for listening
Steph & Martyn
31 Mar 2026
‘MND is nothing minor’
On this weeks Episode Martyn and I, Chat to Wife, Mum and Carer, An Amazing, strong woman who is navigating her way through life alongside MND
Nicola Minor gives her time for talk about her personal journey, her husband Paul's Diagnosis, the challenges, the upheaval and the love and support from friends and family.
Nicola shares light on The dark days, the good days, the challenging days and her 'Why'
it was an emotional and honest chat, with laughter and some tears.
✌️ & 🧡🧡
Anna and Martyn
25 Mar 2026
‘The Midnight Debrief’ (1)
Welcome to the ‘The Midnight Debrief’
A new kind of episode featuring a new Host, Steph Williams, the midnight debrief spin off series focuses on the role of caring alongside MND,
Like myself Steph is a ‘carer’ Steph cares for her husband Mark, she is a Mum, Wife, MND advocate supporting families through Steph and Mark’s foundation the MNDefiance Trust.
Steph and I have become close friends as we navigate this ‘Shit Show’ of a Journey that is MND, during this time Steph and I often message each other at all hours, normally around midnight, discussing our day or what tomorrow will hold in store, so we thought, lets take these to the podcast.
We will be talking all things caring, parenting, friends and family, Holidays, MND Community, finances, relationships and intimacy.
We will be talking about some very serious topics, but what I can guarantee is that you will be laughing alongside us and the occasional tear.
We would love to have you involved in our conversation so please ask any questions and will will be sure to talk about these on the podcast.
Steph and I look forward to sharing more of our journey, stories, our successes and absolutely our mistakes or Fuck up’s as we like to call them
A warning…there will be some explicit language used during the episodes.
Thank you
Steph & Martyn
18 Mar 2026
"Diagnosed Dad"
In the latest episode Anna and I chat with James Smith, Husband, Dad, MND Warrior and MND Advocate.
James spends his time in front of the camera showing the world what living alongside MND is truly like.
but today he's behind the Mic as James 'Speaks His MND'
We talk about 'life before the shift, the impact on family, parenting alongside MND and what keeps him up at night?
Thank you, James
And thank you to everyone for taking the time to listen to our past episodes
We have so many amazing people joining us in the coming weeks.
✌️ & 🧡🧡
Anna & Martyn
4 Mar 2026
'Take Me Home United Road'
On this weeks Episode Anna and I had the privilege of speaking with Abbie Pilkington,
Abbie sadly lost her younger brother Jordan 'Jord' 'Jordie' Pilkington in August 2024 after a 5 year battle alongside MND.
Our conversation with Abbie focuses on grief and celebrates Jordan's legacy.
We would like to Thank Abbie for her time, honesty and her continued dedication to the fight against MND
We send our love to the Pilkington Family & Friends.
✌️ & ❤️
18 Feb 2026
"The Hasler Show"
On this weeks episode Martyn and I chat with Rob Hasler, Rob was diagnosed with MND in October 2024,
This episode is emotional, raw, honest, with plenty of tears and laughter.
We talk about Robs life before MND, the early days, the impact on his family, the heartbreak in telling his children.
we talk about why 'everyday matters' is so important, the generosity of his friends and family and his local community and the impact and lifeline this has had.
Then we move on to Anna's inquisition, 3 quick fire questions, 'The Challenge', 'The Soundtrack', 'The Time Machine'
We hope you enjoy this episode as much as we enjoyed recording it and speaking with Rob.
Anna & Martyn
4 Feb 2026
"More Than a Script"
On this weeks episode Anna and I chat with An Actor across, Tv, Film and Theatre, an MNDA ambassador for 24 years, Probably best known for his role in coronation street playing 'Billy' husband of Paul, during one of coronation streets most impactful story lines in recent years.
The Amazing Daniel Brocklebank
We talk about life alongside MND and his beloved Grandfather, Daniel's Advocacy work for the MND community, the impact of the Corrie storyline, what's next after 'Billy' and we then have Anna's inquisition.
3 Questions to reflect and inspire.
What a lovely human being, who has a huge heart and a lot of love for the MND community.
Thank you
Anna and Martyn
24 Jan 2026
Welcome to the SPEAKURMND podcast channel
Welcome to SpeakUrMND podcast a Foreword by Anna,
SpeakUrMND has evolved, SpeakUrMND was a place for me to share my family's experience living alongside MND, but what I've always known is that everyone's journey is unique, everyone has a different 'Why', everyone has a story to tell, I've been so inspired by the individuals I have met on this journey and would like them to SpeakTheirMND
What makes us get out of bed every morning to face MND head on.
What's been the biggest challenges to overcome.
What makes you laugh?, what makes you Cry?
It's MND Awareness but goes a little deeper, there will be laughter and a ton of tears I'm sure.
We will be chatting to some amazing individuals from the MND community, Warriors, Carers, Family & Friends, Fundraisers, Health and Social Care professionals, charities any one with a story to tell and knowledge to share,
I really hope you enjoy these episodes
Hopefully through these podcasts you will finish leaving uplifted, motivated, educated and an a better understanding of life alongside MND for individuals, carers and the wider MND community.
Thank you for listening, your support and your love.
Martyn & Anna
Contact SPEAK YOUR MND
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