Turtle Talk

About Turtle Talk

Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care. “Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

Publisher

Turtle Talk

Category

society & culture

Language

en

Explicit

Yes

First episode

25 Jul 2021

Latest episode

6 Jun 2022

Latest episodes

27 episodes in the feed.

1. 

   6 Jun 2022

   June 6, 2022 Nutritional Tips for PCD

   Season 2, Episode 5; Nutritional Tips for PCD On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications in your PCD loved one’s food has lasting repercussions for your loved one’s lifetime.

2. 

   25 Jan 2022

   January 24, 2022 PCD Airway Clearance

   On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of airway clearance in PCD, the alarming trends to ditch airway clearance for PCD patients, mixing up airway clearance techniques to aid in better treatment compliance, we will explore another PCD myth, and finally on this week’s editorial we will discuss trend of dismissing adult patients experiencing with PCD based on the mere fact that these patients haven’t yet benefited from recent research.

3. 

   17 Jan 2022

   January 17, 2022 Chronic Illness in a Post 2020 World

   On today’s episode about life with primary ciliary dyskinesia; we will talk about the realities of time, exhausted providers, appearance of infection control policies verses the realities, we will explore another PCD myth, and finally on this week’s editorial we will discuss off label usages and the correctness of those practices.

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

2 ratings

Contact Turtle Talk

Guest appearances

Does not typically book guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.