About Uncommon Lungs: Perspectives From the CF Community
Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.
Yogi, mother, and island-dweller Chelsea leads a beginner-friendly meditation to support breath awareness and connection. This practice is designed to meet you wherever you are in your day.
21 Sept 2026
The Balancing Act
Chelsea believes CF is part of her family’s story, not the whole story. She shares how she and her husband are raising their two sons with openness, resilience, and compassion, while creating a home where love, understanding, and everyday life take center stage.
14 Sept 2026
Life Beyond Limits
Chelsea shares what it’s like to build a life she loves in St. Thomas while living with CF. From embracing the beauty of island life to planning ahead with her mainland care team and advocating for her needs, she offers an honest look at balancing adventure with preparation.
17 Sept 2025
Finding Purpose Through Diagnosis
Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background...
20 Aug 2025
Redefining Strength
Diagnosed with cystic fibrosis at 18, Ivan brings a powerful story of resilience, identity, and transformation. In this episode, Ivan opens up about the emotional and physical challenges of navigating CF in early adulthood and the discipline it took to reclaim his health and mindset. Now studying exercise science and working in tech sales, he channels his passion for fitness, family, and advocacy into a life of intention. Through grief, growth, and grit, Ivan is redefining...
3 Mar 2025
Traditions Through Transitions
Maggie, a proud member of the Latino community and business owner, opens up about her experience as a caregiver to her adult daughter with CF. Balancing the demands of caregiving with her love of cooking, family traditions, and entrepreneurship, Maggie shares how her cultural roots and resilience help her navigate life's toughest transitions.
5 Nov 2024
Learning How to Cope
CF caregiver and mother Carissa shares her honest and vulnerable journey of coping with the hardships and joys of raising a child with cystic fibrosis.
5 Nov 2024
Supporting Every Breath
Carissa shares vulnerable insights on caregiving for a loved one with CF, tackling topics like navigating dating, love life, and self-talk as a caregiver.
26 Mar 2024
Take a Mindful Moment
Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.
26 Mar 2024
Finding a Flow That Fits You
Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.
29 Nov 2023
Embracing Your Personal Journey with CF
From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.
19 Oct 2023
Reflecting on Past Conversations
Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.
27 Sept 2022
Making Your Career Work For You
Finding a career you enjoy can be so fulfilling. John and Julia discuss how they’ve each cultivated a work-life balance that fits their lifestyle and HR expert, Susan, gives examples of workplace accommodations and job search tips.
13 Sept 2022
Facing Finances
Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.
29 Aug 2022
Building Body Awareness
Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.
22 Jul 2021
Coming Of Age Stories
A conversation between Julia Rae & Tara.
22 Jul 2021
Caregiver Experiences
A conversation between Julia Rae, Jen, & Michael.
22 Jul 2021
Staying On Track & Making Time For Hobbies
A conversation between Julia Rae & Grace.
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