Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

Hosted by Martine Hackett and Martine · iHeartPodcasts

4.2from 50 ratings

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69Podcast AuthorityScore out of 100 · How it is scored
44
Episodes
34
Transcribed
50
Ratings
Bi-weekly
Cadence
2023
First episode
419M
YouTube views

About Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

Publisher
iHeartPodcasts
Category
health & fitness · science
Language
en
Explicit
No
First episode
14 Jun 2023
Latest episode
22 Oct 2026

Latest episodes

34 of 44 episodes have a transcript.

  1. 22 Oct 2026TRANSCRIPT

    Waiyee: The Power of Connecting Your Myositis Care Team

  2. 7 Oct 2026TRANSCRIPT

    Allison: A Lifetime of Progress with MG

  3. 23 Sept 2026TRANSCRIPT

    Untold Stories is back for Season 7!

Inside a recent episode

Waiyee: The Power of Connecting Your Myositis Care Team

Published 22 Oct 2026 · Transcript excerpt

[…] And then there's obviously the muscle weakness, which is the myositis. Because there are multiple types of myositis, but for me, it's polymyositis, which is the muscle weakness, but without the skin involvement. For listeners who are unfamiliar, antisynthetase syndrome falls under the larger umbrella of myositis, a group of rare conditions that causes muscle inflammation and weakness. There are different types of myositis that can affect the body in different ways. In addition to antisynthetase syndrome, YI also has polymyositis, which primarily affects her muscles. Other types include dermatomyositis, which can affect the skin, and inclusion body myositis, which tends to cause muscle weakness that develops more gradually. […]

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Who has been a guest on Untold Stories: Life with a Severe Autoimmune Condition

Names identified in recent episode analyses. Showing up to five guests.

  • Waiyee
  • Allison Foss
  • Catherine
  • Carly
  • Holly

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views
419,108,275
Score snapshot 15 Sept 2025
Apple Podcasts (US)
4.1 / 5
41 ratings
Spotify
4.6 / 5
9 ratings

Podcast Authority Score: 69 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality
67
Social presence
0
YouTube
93
Engagement
84

Contact Untold Stories: Life with a Severe Autoimmune Condition

Guest appearances
Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

Questions about Untold Stories: Life with a Severe Autoimmune Condition

Who hosts Untold Stories: Life with a Severe Autoimmune Condition?

Martine Hackett and Martine host the show. Published by iHeartPodcasts.

How often do new episodes come out?

The show publishes bi-weekly, based on its RSS feed.

Does Untold Stories: Life with a Severe Autoimmune Condition take guests?

Yes. Guests have been identified in episode analyses.

Where can I read transcripts?

34 of 44 episodes have a transcript on Pod Engine. Full transcripts are available with a Pod Engine plan.

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