Untold Stories: Life with a Severe Autoimmune Condition
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Podcast Overview
<p>For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.</p>
Language
🇺🇲
Publishing Since
6/14/2023
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Recent Episodes
July 15, 2026
Holly: Moving Forward with Myositis.
Martine Hackett interviews Holly, who shares her journey of transforming a myositis diagnosis into powerful advocacy and community building.
July 1, 2026
Amanda: From CIDP Diagnosis to Discovering Her Purpose
Martine Hackett interviews Amanda, who shares her journey from a CIDP diagnosis to finding purpose as a powerful advocate for the rare disease community.
June 17, 2026
Alicia: The Long Road to Answers with Seronegative MG
Martine Hackett interviews Alicia, an artist and musician, about her persistent journey to diagnosis and finding support for seronegative MG.
40 total episodes available with 30 transcripts
Recent guests on Untold Stories: Life with a Severe Autoimmune Condition
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Holly
Guest
Amanda
Guest
Alicia
Guest
Mel
Guest
Lindsay
Guest
J'Sean
Guest
Brandon Cutrell
Guest
Dr Sujata Thawani
Guest
Sandy
Guest
Britt
Guest
Tanya Chiu
Guest
Trent
Guest
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- What is Untold Stories: Life with a Severe Autoimmune Condition?
<p>For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 9 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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