by Vitafriends Voices
Welcome to Vitafriends Voices - A Vitaflo Podcast! Join us as we chat about everything from managing diets to living well and overcoming challenges. Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field. Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!
Language
🇺🇲
Publishing Since
4/1/2025
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June 17, 2026
<p>What does it really mean to live well with PKU? In this deeply personal episode, two of the most passionate voices in the PKU community, Richard Farquhar and Kevin Alexander, come together for a rare, face to face conversation that spans continents, challenges, and everything in between. Despite living on opposite sides of the world, Richard and Kevin have built a close friendship rooted in shared experience, mutual understanding, and an unwavering commitment to advocacy.</p><p><br></p><p>Subsribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes!</p><p><br></p><p>Want to dive deeper into Kevin's advocacy journey? This conversation builds on two pieces he has shared previously;</p><p><br></p><p>In 'The Emotional Toll of Rare Disease Advocacy', Kevin opens up for the first time about the hidden burdens advocates carry, available as both a podcast episode and article: https://pkujournal.com/the-emotional-toll-of-rare-disease-advocacy/</p><p><br></p><p>And in 'Self Care is Advocacy', written following a candid exchange between Kevin and Richard on social media, he explores the emotional weight of holding other people's stories and why self care isn't optional for advocates: https://pkujournal.com/self-care-is-advocacy-advice-to-rare-disease-advocates/</p><p><br></p><p>All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.</p>
December 17, 2025
Lorraine, from @GrowingUpWithPKU, shares practical tips for managing a teenage daughter's PKU during the holidays, focusing on festive meals and ensuring she enjoys Christmas in this interview.
November 26, 2025
Dietitian Suzanne Ford discusses how patient organizations support individuals and families managing metabolic disorders, addressing challenges and promoting education and peer connection in this interview episode.
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Lorraine
Guest
Suzanne Ford
Guest
Lorraine Spillane
Guest
Harry Spillane
Guest
Dr Maximilian Pichler
Guest
Harald Schossmann
Guest
Nicole Weber
Guest
Éimear McGlynn
Guest
Helen Holt
Guest
Steve Holt
Guest
Stuart Sumner
Guest
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Welcome to Vitafriends Voices - A Vitaflo Podcast!
Join us as we chat about everything from managing diets to living well and overcoming challenges.
Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field.
Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!
This podcast updates daily.
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Information about guest appearances is not available.
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