WeHaveAVoice

About WeHaveAVoice

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.

Publisher

WeHaveAVoice

Category

education · government · society & culture

Language

en

Explicit

No

First episode

5 Mar 2016

Latest episode

23 Jun 2026

Latest episodes

129 episodes in the feed.

1. 

   23 Jun 2026

   Could Huntington's families be forced into institutions? The truth behing the new DOJ memo!

   What does the new Justice Dept. memo really mean for people living with Huntington's Disease and their families?  We separate fact from fear in this episode.

2. 

   10 Feb 2026

   Positive Eugenics - Should we worry?

   That's not a rhetorical question. I'm not asking to provoke. I'm asking because something is shifting in our culture, and people with genetic disease  are the first to fell it.

3. 

   21 Nov 2025

   AMT-130 Update: Breaking through the hype

   AMT-130 was sold as the breakthrough Huntington’s families have waited generations for — a one-shot gene therapy that “changes everything.” Researchers celebrated, headlines exploded, and desperate families finally believed they might be saved. But behind the hype, the FDA slammed the brakes, a leading scientist called out exaggerated claims, and truth collided with marketing. This episode exposes the divide: real science vs. false hope. We dig into the hype machine, the backlash, and why Huntington’s families are being pushed into a letter-writing campaign to fix a mess they never deserved. If you’re tired of miracles being promised and ripped away, this is the show you’ve been waiting for.

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

4 ratings

Podcast Authority Score: 59 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

85

Social presence

0

YouTube

0

Engagement

81

Contact WeHaveAVoice

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.