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What Am I Thankful For

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by What am I Thankful For

5.0(7 reviews)

9 episodes

Updated Daily

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Podcast Overview

We are the Remillet family – Joe, Desiree and Maddux. Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome. Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.

Language

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Publishing Since

10/26/2021

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Recent Episodes

July 18, 2022

Live Episode: Maddux will need brain surgery (#14) this week

Update on how our 2022 has been going Why we haven't been recording Update on Maddux's school year Professional Updates Brain Surgery #14 Diagnosis from routine MRI Typical signs of shunt failure Famous sports figures who wore #14 (https://www.ranker.com/list/best-athletes-who-wore-14/ranker-sports) Our brain surgery playbook Quarantine leading up to surgery Have to shave his head bald Bowel management Stay at a nearby hotel Spring Break - Hawaii Trip Trouble with COVID Protocols Flying with special accommodations Beach photoshoot Hiking Pill Box (http://www.lanikaipillbox.com/) Rental Equipment (https://www.babyquip.com/) Maddux's other accomplishments School year awards Challenger Little League Baseball Abilities Expo Celebrity Encounters (https://www.instagram.com/whatamithankfulfor/) Maddux was in a children's book (https://theablefables.com/product/garys-gigantic-dream/) Complete his 5th 5K this year Struggles with Medical Insurance Lagging authorizations Rising Co-pays Outright denials of things that he needs Leads to hours and follow-up calls and frustration How do other families navigate this? Check out the blog: https://thankfulforpod.wpcomstaging.com/home/

March 8, 2022

Episode 5- Fetal Surgery for Spina Bifida (Part 2/2)

As we continue to tell our story of Fetal Surgery at UCSF we get into post-surgical and recovery topics such as: -The 1st ultrasound after fetal surgery -How to help your loved ones in the hospital -Life on bedrest -A surprise request to sign a DNR order at the worst possible time -A THANK YOU to nurses -The outpouring of support for Maddux (including his namesake) -My baby is no longer moving/kicking -Our car gets towed in SF, insult to injury -The Fetal Surgery PLAYBOOK

December 8, 2021

Episode 5- Fetal Surgery for Spina Bifida (Part 1/2)

In Episode 5, we discuss the amazing experience that is Fetal Surgery to repair Spina Bifida (Myelomeningocele).  This process includes a surgical repair to a fetus at roughly the half-way point of a pregnancy.  The baby is operated on in-utero and then placed back into the uterus to continue the pregnancy for as long as possible until a "second-birth" is needed.  This procedure comes with some major benefits but also several risks to an otherwise healthy mother and her baby.  We share the entire experience leading up the the day of surgery in this episode. Subtopics include: -The MOMS trial: https://www.chop.edu/centers-programs/center-fetal-diagnosis-and-treatment/management-myelomeningocele-study  -A breakdown of some of the positive outcomes of Fetal repair  -Avoiding the s-word (Shunt)   -What we were hoping to gain from Fetal Surgery  -We began to educate our family and friends around the diagnosis, the plan for fetal surgery and potential outcomes  -Traveling to UCSF: https://fetus.ucsf.edu/spina-bifida/  -Navigating career challenges and paid leave  -Subtle coincidences  -A fearless mother on the day of surgery Thank you for listening! www.thankfulforpod.com

9 total episodes available

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Frequently asked questions

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What is What Am I Thankful For?: We are the Remillet family – Joe, Desiree and Maddux.

Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome.

Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
How often does this podcast release new episodes?: This podcast updates daily.
Where can I listen to this podcast?: This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Does this podcast accept guests?: Information about guest appearances is not available.

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